Literature DB >> 17259641

Has the quality of health-related quality of life reporting in cancer clinical trials improved over time? Towards bridging the gap with clinical decision making.

F Efficace1, D Osoba, C Gotay, M Sprangers, C Coens, A Bottomley.   

Abstract

BACKGROUND: Previous work highlighted a number of methodological constraints when reporting health-related quality of life (HRQOL) outcomes from randomized controlled trials (RCTs). Given this, the objective of this study was to investigate whether the quality of such HRQOL reports has improved over time.
MATERIALS AND METHODS: On the basis of a predefined set of criteria, 159 RCTs with a HRQOL end point, published between 1990 and 2004 were identified and analyzed. Each study was evaluated by a number of issues (e.g. sample size and industry sponsorship) and by the "minimum standard checklist for evaluating HRQOL outcomes in cancer clinical trials".
RESULTS: The quality of HRQOL reports, as measured by the overall checklist score, was independently related to more recently published studies (P < 0.0001). This relationship was independent of industry funded, HRQOL end point (primary versus secondary), cancer disease site, size of the study and HRQOL difference between treatment arms. While only 39.3% of studies published between 1990 and 2000 (89/159 RCTs) were identified as being probably robust, thus likely to support clinical decision making, this percentage was 64.3% for studies published after 2000 (70/159 RCTs).
CONCLUSION: Since we found a significant learning curve in HRQOL trial reporting since 1990, it can be expected that HRQOL data will increasingly impact on clinical decision making and treatment policies in the near future.

Entities:  

Mesh:

Year:  2007        PMID: 17259641     DOI: 10.1093/annonc/mdl494

Source DB:  PubMed          Journal:  Ann Oncol        ISSN: 0923-7534            Impact factor:   32.976


  26 in total

Review 1.  Patterns of reporting health-related quality of life outcomes in randomized clinical trials: implications for clinicians and quality of life researchers.

Authors:  Michael Brundage; Brenda Bass; Judith Davidson; John Queenan; Andrea Bezjak; Jolie Ringash; Anna Wilkinson; Deb Feldman-Stewart
Journal:  Qual Life Res       Date:  2010-11-26       Impact factor: 4.147

2.  Improving patient-centered medical-surgical nursing practice with quality-of-life assessment.

Authors:  Angela Starkweather
Journal:  Medsurg Nurs       Date:  2010 Jul-Aug

Review 3.  Quality-of-life assessment in phase III clinical trials of gemcitabine in non-small-cell lung cancer.

Authors:  Jonathan K Reynolds; Terri L Levien
Journal:  Drugs Aging       Date:  2008       Impact factor: 3.923

4.  Health-related quality of life with adjuvant docetaxel- and trastuzumab-based regimens in patients with node-positive and high-risk node-negative, HER2-positive early breast cancer: results from the BCIRG 006 Study.

Authors:  Heather-Jane Au; Wolfgang Eiermann; Nicholas J Robert; Tadeusz Pienkowski; John Crown; Miguel Martin; Marek Pawlicki; Arlene Chan; John Mackey; John Glaspy; Tamás Pintér; Mei-Ching Liu; Tommy Fornander; Sandeep Sehdev; Jean-Marc Ferrero; Valerie Bée; Maria J Santana; Dave P Miller; Deepa Lalla; Dennis J Slamon
Journal:  Oncologist       Date:  2013-06-28

5.  Reporting on quality of life in randomised controlled trials in gastrointestinal surgery.

Authors:  Valerie Bridoux; Grégoire Moutel; Benoit Lefebure; Michel Scotte; Francis Michot; Christian Herve; Jean-Jacques Tuech
Journal:  J Gastrointest Surg       Date:  2009-10-14       Impact factor: 3.452

6.  Methodological issues in designing and reporting health-related quality of life in cancer clinical trials: the challenge of brain cancer studies.

Authors:  Fabio Efficace; Martin Taphoorn
Journal:  J Neurooncol       Date:  2012-02-25       Impact factor: 4.130

7.  Quality of patient-reported outcome reporting across cancer randomized controlled trials according to the CONSORT patient-reported outcome extension: A pooled analysis of 557 trials.

Authors:  Fabio Efficace; Peter Fayers; Andrea Pusic; Yeliz Cemal; Jane Yanagawa; Marc Jacobs; Andrea la Sala; Valentina Cafaro; Katie Whale; Jonathan Rees; Jane Blazeby
Journal:  Cancer       Date:  2015-06-16       Impact factor: 6.860

Review 8.  Reporting of health-related quality of life (HRQOL) data in oncology trials: a comparison of the European Organization for Research and Treatment of Cancer Quality of Life (EORTC QLQ-C30) and the Functional Assessment of Cancer Therapy-General (FACT-G).

Authors:  Adam B Smith; Kim Cocks; David Parry; Matthew Taylor
Journal:  Qual Life Res       Date:  2013-10-05       Impact factor: 4.147

9.  Scientific imperatives, clinical implications, and theoretical underpinnings for the investigation of the relationship between genetic variables and patient-reported quality-of-life outcomes.

Authors:  Mirjam A G Sprangers; Jeff A Sloan; Andrea Barsevick; Cynthia Chauhan; Amylou C Dueck; Hein Raat; Quiling Shi; Cornelis J F Van Noorden
Journal:  Qual Life Res       Date:  2010-10-14       Impact factor: 4.147

10.  Quality of Life in Community-Dwelling Chinese American Patients with Cancer Pain.

Authors:  Malcolm Barrett; Alice Chu; Jack Chen; Kin Yui Lam; Russell Portenoy; Lara Dhingra
Journal:  J Immigr Minor Health       Date:  2017-12
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