Literature DB >> 17135068

The transition study: a look at youth and adults with cerebral palsy, spina bifida and acquired brain injury.

Nancy Young1, Anna McCormick, Wendy Mills, Wendy Barden, Katherine Boydell, Mary Law, John Wedge, Darcy Fehlings, Shubhra Mukherjee, Peter Rumney, J I Williams.   

Abstract

A group of 100 adults and 190 youth who have cerebral palsy (CP), spina bifida (SB), and acquired brain injuries from childhood (ABIc) participated in a multi-method study focused on the transition to adult health care. The results show that 95% of youth and 61% of adults were living with their parents; 23% of the youth and 55% of adults were employed; and 60% of youth and 42% of adults reported "excellent" or "very good" health. The lowest health scores were reported by adults with SB. These findings provide a starting point for examining health issues specific to youth and young adults with CP, SB, and ABIc.

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Mesh:

Year:  2006        PMID: 17135068

Source DB:  PubMed          Journal:  Phys Occup Ther Pediatr        ISSN: 0194-2638            Impact factor:   2.360


  8 in total

1.  The development of a lifetime care model in comprehensive spina bifida care.

Authors:  Betsy Hopson; Brandon G Rocque; David B Joseph; Danielle Powell; Amie B Jackson McLain; Richard D Davis; Tracey S Wilson; Michael J Conklin; Jeffrey P Blount
Journal:  J Pediatr Rehabil Med       Date:  2018

2.  Activity level, functional health, and quality of life of children with myelomeningocele as perceived by parents.

Authors:  Ann Flanagan; Marianne Gorzkowski; Haluk Altiok; Sahar Hassani; Kwang Woo Ahn
Journal:  Clin Orthop Relat Res       Date:  2011-05       Impact factor: 4.176

Review 3.  Advances and Challenges in Transitional Urology: Caring for Adolescents and Young Adults with Lifelong Complex Genitourinary Conditions.

Authors:  Alexander J Skokan; Robert Caleb Kovell
Journal:  Curr Urol Rep       Date:  2018-03-07       Impact factor: 3.092

4.  The Impact of Vocational Interventions on Vocational Outcomes, Quality of Life, and Community Integration in Adults with Childhood Onset Disabilities: A Systematic Review.

Authors:  Zechen Ma; Priya Dhir; Laure Perrier; Mark Bayley; Sarah Munce
Journal:  J Occup Rehabil       Date:  2020-03

5.  Adolescents and Young Adults With Spina Bifida Transitioning to Adulthood: A Comprehensive Community-Based Needs Assessment.

Authors:  Ashley M Jenkins; Diane Burns; Rhonda Horick; Brittany Spicer; Lisa M Vaughn; Jason Woodward
Journal:  Acad Pediatr       Date:  2021-02-10       Impact factor: 2.993

6.  Variables Associated With Shift of Responsibility for Daily Tasks From Parents to Children With and Without Disabilities.

Authors:  Ying-Chia Kao; Gael I Orsmond; Ellen S Cohn; Wendy J Coster
Journal:  Am J Occup Ther       Date:  2020 Nov/Dec

Review 7.  Psychological Interventions for Individuals With Acquired Brain Injury, Cerebral Palsy, and Spina Bifida: A Scoping Review.

Authors:  Morgan Jefferies; Taylor Peart; Laure Perrier; Andrea Lauzon; Sarah Munce
Journal:  Front Pediatr       Date:  2022-03-21       Impact factor: 3.418

8.  Longitudinal Evaluation of Transition Services ("LETS Study"): protocol for outcome evaluation.

Authors:  Irina Tsybina; Shauna Kingsnorth; Joanne Maxwell; Mark Bayley; Sally Lindsay; Patricia McKeever; Angela Colantonio; Yani Hamdani; Helen Healy; Colin Macarthur
Journal:  BMC Pediatr       Date:  2012-05-15       Impact factor: 2.125

  8 in total

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