Literature DB >> 17125785

Satisfaction with communicative participation as defined by adults with multiple sclerosis: a qualitative study.

Kathryn M Yorkston1, Carolyn R Baylor, Estelle R Klasner, Jean Deitz, Brian J Dudgeon, Tanya Eadie, Robert M Miller, Dagmar Amtmann.   

Abstract

PURPOSE: This study examined satisfaction with communicative participation as reported by adults with multiple sclerosis (MS).
METHOD: Eight community-dwelling adults with MS participated in semi-structured interviews. They were asked to discuss their satisfaction with their communication in a variety of situations. Interviews were analyzed using a constant comparative method of qualitative description.
RESULTS: Themes derived included: Comfort, consisting of Ease and Confidence; Success of the Outcome, including Function is Achieved and A Connection is Made; and Personal Meaning of Participation, including Personal Preferences, Comparison with the Past, and Thinking about One's Own Communication.
CONCLUSIONS: Participants described multiple facets of satisfaction with communicative participation. Some of the dimensions were similar to those in existing assessment instruments such as levels of ease or difficulty with performance. Participants did not talk about frequency of activities as a key part of their satisfaction. Implications for identifying intervention targets and treatment outcome measurements are provided. LEARNING OUTCOMES: The reader should be able to: 1) define communicative participation and identify key elements of this construct; 2) identify the issues that were most relevant to satisfaction with communicative participation with participants with MS; and 3) identify reasons for greater emphasis on the subjective viewpoint of people with communication disorders in measurement of treatment outcomes.

Entities:  

Mesh:

Year:  2006        PMID: 17125785     DOI: 10.1016/j.jcomdis.2006.10.006

Source DB:  PubMed          Journal:  J Commun Disord        ISSN: 0021-9924            Impact factor:   2.288


  11 in total

1.  A qualitative study of interference with communicative participation across communication disorders in adults.

Authors:  Carolyn Baylor; Michael Burns; Tanya Eadie; Deanna Britton; Kathryn Yorkston
Journal:  Am J Speech Lang Pathol       Date:  2011-08-03       Impact factor: 2.408

2.  Achieving Participation-Focused Intervention Through Shared Decision Making: Proposal of an Age- and Disorder-Generic Framework.

Authors:  Carolyn Baylor; Meghan Darling-White
Journal:  Am J Speech Lang Pathol       Date:  2020-05-28       Impact factor: 2.408

3.  Separate and Combined Influence of Cognitive Impairment and Dysarthria on Functional Communication in Multiple Sclerosis.

Authors:  Lynda Feenaughty; Kris Tjaden; Bianca Weinstock-Guttman; Ralph H B Benedict
Journal:  Am J Speech Lang Pathol       Date:  2018-08-06       Impact factor: 2.408

4.  Variables associated with communicative participation in people with multiple sclerosis: a regression analysis.

Authors:  Carolyn Baylor; Kathryn Yorkston; Alyssa Bamer; Deanna Britton; Dagmar Amtmann
Journal:  Am J Speech Lang Pathol       Date:  2009-11-30       Impact factor: 2.408

5.  Developing the communicative participation item bank: Rasch analysis results from a spasmodic dysphonia sample.

Authors:  Carolyn R Baylor; Kathryn M Yorkston; Tanya L Eadie; Robert M Miller; Dagmar Amtmann
Journal:  J Speech Lang Hear Res       Date:  2009-08-28       Impact factor: 2.297

6.  The Communicative Participation Item Bank (CPIB): item bank calibration and development of a disorder-generic short form.

Authors:  Carolyn Baylor; Kathryn Yorkston; Tanya Eadie; Jiseon Kim; Hyewon Chung; Dagmar Amtmann
Journal:  J Speech Lang Hear Res       Date:  2013-07-01       Impact factor: 2.297

7.  Communicative participation restrictions in multiple sclerosis: associated variables and correlation with social functioning.

Authors:  Kathryn M Yorkston; Carolyn Baylor; Dagmar Amtmann
Journal:  J Commun Disord       Date:  2014-05-26       Impact factor: 2.288

8.  Evaluating the views of paramedics, cardiologists, emergency department physicians and nurses on advanced prehospital management of acute ST elevation myocardial infarction.

Authors:  Naheed A Rajabali; Ross T Tsuyuki; Sunil Sookram; Scot H Simpson; Robert C Welsh
Journal:  Can J Cardiol       Date:  2009-09       Impact factor: 5.223

9.  Variables Associated with Self-reported Language Impairment in Multiple Sclerosis: A Regression Analysis.

Authors:  Sarah El-Wahsh; Rob Heard; Hans Bogaardt; Fiona Kumfor; Kirrie J Ballard
Journal:  Int J MS Care       Date:  2021-04-14

10.  Narratives reflecting the lived experiences of people with brain disorders: common psychosocial difficulties and determinants.

Authors:  Sally Hartley; Maggie McArthur; Michaela Coenen; Maria Cabello; Venusia Covelli; Joanna Roszczynska-Michta; Tuuli Pitkänen; Jerome Bickenbach; Alarcos Cieza
Journal:  PLoS One       Date:  2014-05-07       Impact factor: 3.240

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