Literature DB >> 17085408

Clinical utility and full disclosure of genetic results to research participants.

Richard R Sharp1, Morris W Foster.   

Abstract

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Year:  2006        PMID： 17085408     DOI： 10.1080/15265160600938443

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  19 in total

1.  Ethical challenges in genotype-driven research recruitment.

Authors:  Laura M Beskow; Kristen N Linney; Rodney A Radtke; Erin L Heinzen; David B Goldstein
Journal:  Genome Res       Date:  2010-04-23       Impact factor: 9.043

Review 2.  Informed consent in genomics and genetic research.

Authors:  Amy L McGuire; Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2010       Impact factor: 8.929

3.  Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results.

Authors:  Robin Zoe Hayeems; Fiona Alice Miller; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2011-03-16       Impact factor: 4.246

4.  Return of individual results in epilepsy genomic research: A view from the field.

Authors:  Ruth Ottman; Catharine Freyer; Heather C Mefford; Annapurna Poduri; Daniel H Lowenstein
Journal:  Epilepsia       Date:  2018-08-10       Impact factor: 5.864

5.  Return of individual genomic research results: what do consent forms tell participants?

Authors:  Stacey Pereira; Jill Oliver Robinson; Amy L McGuire
Journal:  Eur J Hum Genet       Date:  2016-06-22       Impact factor: 4.246

6.  Finding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.

Authors:  Elizabeth R Pike; Karen H Rothenberg; Benjamin E Berkman
Journal:  Georgetown Law J       Date:  2014

7.  Return of results: ethical and legal distinctions between research and clinical care.

Authors:  Wylie Burke; Barbara J Evans; Gail P Jarvik
Journal:  Am J Med Genet C Semin Med Genet       Date:  2014-03-10       Impact factor: 3.908

8.  Psychiatric genetics researchers' views on offering return of results to individual participants.

Authors:  Kristin M Kostick; Cody Brannan; Stacey Pereira; Gabriel Lázaro-Muñoz
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2018-10-25       Impact factor: 3.568

9.  Prospective biorepository participants' perspectives on access to research results.

Authors:  Laura M Beskow; Sondra J Smolek
Journal:  J Empir Res Hum Res Ethics       Date:  2009-09       Impact factor: 1.742

10.  IRB chairs' perspectives on genotype-driven research recruitment.

Authors:  Laura M Beskow; Emily E Namey; Patrick R Miller; Daniel K Nelson; Alexandra Cooper
Journal:  IRB       Date:  2012 May-Jun
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