Literature DB >> 17085403

Taking our obligations to research participants seriously: disclosing individual results of genetic research.

Teri A Manolio1.   

Abstract

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Year:  2006        PMID： 17085403     DOI： 10.1080/15265160600935993

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  9 in total

1.  Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results.

Authors:  Robin Zoe Hayeems; Fiona Alice Miller; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2011-03-16       Impact factor: 4.246

Review 2.  Integrating genomic and clinical medicine: searching for susceptibility genes in complex lung diseases.

Authors:  Ankit A Desai; Pirro Hysi; Joe G N Garcia
Journal:  Transl Res       Date:  2007-12-18       Impact factor: 7.012

3.  Prospective biorepository participants' perspectives on access to research results.

Authors:  Laura M Beskow; Sondra J Smolek
Journal:  J Empir Res Hum Res Ethics       Date:  2009-09       Impact factor: 1.742

Review 4.  Managing incidental findings in human subjects research: analysis and recommendations.

Authors:  Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

5.  Singleton deletions throughout the genome increase risk of bipolar disorder.

Authors:  D Zhang; L Cheng; Y Qian; N Alliey-Rodriguez; J R Kelsoe; T Greenwood; C Nievergelt; T B Barrett; R McKinney; N Schork; E N Smith; C Bloss; J Nurnberger; H J Edenberg; T Foroud; W Sheftner; W B Lawson; E A Nwulia; M Hipolito; W Coryell; J Rice; W Byerley; F McMahon; T G Schulze; W Berrettini; J B Potash; P L Belmonte; P P Zandi; M G McInnis; S Zöllner; D Craig; S Szelinger; D Koller; S L Christian; C Liu; E S Gershon
Journal:  Mol Psychiatry       Date:  2008-12-30       Impact factor: 15.992

6.  Public expectations for return of results from large-cohort genetic research.

Authors:  Juli Murphy; Joan Scott; David Kaufman; Gail Geller; Lisa LeRoy; Kathy Hudson
Journal:  Am J Bioeth       Date:  2008-11       Impact factor: 11.229

7.  Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.

Authors:  Juli Murphy Bollinger; Joan Scott; Rachel Dvoskin; David Kaufman
Journal:  Genet Med       Date:  2012-03-08       Impact factor: 8.822

8.  Returning Individual Genetic Research Results to Research Participants: Uptake and Outcomes Among Patients With Breast Cancer.

Authors:  Angela R Bradbury; Linda Patrick-Miller; Brian L Egleston; Kara N Maxwell; Laura DiGiovanni; Jamie Brower; Dominique Fetzer; Jill Bennett Gaieski; Amanda Brandt; Danielle McKenna; Jessica Long; Jacquelyn Powers; Jill E Stopfer; Katherine L Nathanson; Susan M Domchek
Journal:  JCO Precis Oncol       Date:  2018-04-16

9.  Return of individual genetic results in a high-risk sample: enthusiasm and positive behavioral change.

Authors:  Sarah M Hartz; Emily Olfson; Robert Culverhouse; Patricia Cavazos-Rehg; Li-Shiun Chen; James DuBois; Sherri Fisher; Kimberly Kaphingst; David Kaufman; Andrew Plunk; Shelina Ramnarine; Stephanie Solomon; Nancy L Saccone; Laura J Bierut
Journal:  Genet Med       Date:  2014-08-28       Impact factor: 8.822
  9 in total

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