Literature DB >> 17076127

The complexities of ethical evaluation of genomics research.

R Hoedemaekers1, B Gordijn, Y Hekster, F van Agt.   

Abstract

Mesh：

Year:  2006        PMID： 17076127     DOI： 10.1007/s10730-006-7985-6

Source DB:  PubMed          Journal:  HEC Forum        ISSN： 0956-2737


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  9 in total

Review 1.  Solidarity and equity: new ethical frameworks for genetic databases.

Authors:  R Chadwick; K Berg
Journal:  Nat Rev Genet       Date:  2001-04       Impact factor: 53.242

2.  Proposed International Guidelines on Ethical Issues in Medical Genetics and Genetic Services (Part II). World Health Organization, Human Genetics Programme.

Authors: 
Journal:  Rev Derecho Genoma Hum       Date:  1998 Jul-Dec

3.  HUGO Ethics Committee Statement on DNA sampling: control and access.

Authors:  B M Knoppers; M Hirtle; S Lormeau; C M Laberge; M Laflamme
Journal:  Genetic Resour       Date:  1998

4.  Coding and consent: moral challenges of the database project in Iceland.

Authors:  Vilhjalmur Arnason
Journal:  Bioethics       Date:  2004       Impact factor: 1.898

5.  Genetic Privacy: A Challenge to Medico-Legal Norms.

Authors:  Stephanie L. Anderson
Journal:  J Leg Med       Date:  2004

6.  Informed consent for population-based research involving genetics.

Authors:  L M Beskow; W Burke; J F Merz; P A Barr; S Terry; V B Penchaszadeh; L O Gostin; M Gwinn; M J Khoury
Journal:  JAMA       Date:  2001-11-14       Impact factor: 56.272

7.  Protection of privacy by third-party encryption in genetic research in Iceland.

Authors:  J R Gulcher; K Kristjánsson; H Gudbjartsson; K Stefánsson
Journal:  Eur J Hum Genet       Date:  2000-10       Impact factor: 4.246

Review 8.  [Genetic research with stored human tissue: a coding procedure with optimal use of information and protection of privacy].

Authors:  M K Schmidt; F E van Leeuwen; H M Klaren; R A Tollenaar; L J van 't Veer
Journal:  Ned Tijdschr Geneeskd       Date:  2004-03-20

9.  Some limits of informed consent.

Authors:  O O'Neill
Journal:  J Med Ethics       Date:  2003-02       Impact factor: 2.903
  9 in total
  6 in total

Review 1.  Data sharing in genomics--re-shaping scientific practice.

Authors:  Jane Kaye; Catherine Heeney; Naomi Hawkins; Jantina de Vries; Paula Boddington
Journal:  Nat Rev Genet       Date:  2009-05       Impact factor: 53.242

2.  'All her children are born that way': gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya.

Authors:  Vicki M Marsh; Dorcas M Kamuya; Sassy S Molyneux
Journal:  Ethn Health       Date:  2011 Aug-Oct       Impact factor: 2.772

3.  Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya.

Authors:  Vicki M Marsh; Dorcas M Kamuya; Albert M Mlamba; Thomas N Williams; Sassy S Molyneux
Journal:  BMC Med Ethics       Date:  2010-07-15       Impact factor: 2.652

4.  Ethical issues in human genomics research in developing countries.

Authors:  Jantina de Vries; Susan J Bull; Ogobara Doumbo; Muntaser Ibrahim; Odile Mercereau-Puijalon; Dominic Kwiatkowski; Michael Parker
Journal:  BMC Med Ethics       Date:  2011-03-18       Impact factor: 2.652

Review 5.  Ethical implications of the use of whole genome methods in medical research.

Authors:  Jane Kaye; Paula Boddington; Jantina de Vries; Naomi Hawkins; Karen Melham
Journal:  Eur J Hum Genet       Date:  2009-11-04       Impact factor: 4.246

6.  Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'consulting communities' to inform policy.

Authors:  Vicki Marsh; Francis Kombe; Ray Fitzpatrick; Sassy Molyneux; Michael Parker
Journal:  Soc Sci Med       Date:  2013-08-03       Impact factor: 4.634
  6 in total

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