Literature DB >> 11283704

Solidarity and equity: new ethical frameworks for genetic databases.

R Chadwick1, K Berg.   

Abstract

Genetic database initiatives have given rise to considerable debate about their potential harms and benefits. The question arises as to whether existing ethical frameworks are sufficient to mediate between the competing interests at stake. One approach is to strengthen mechanisms for obtaining informed consent and for protecting confidentiality. However, there is increasing interest in other ethical frameworks, involving solidarity--participation in research for the common good--and the sharing of the benefits of research.

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction

Mesh:

Substances:

Year:  2001        PMID: 11283704     DOI: 10.1038/35066094

Source DB:  PubMed          Journal:  Nat Rev Genet        ISSN: 1471-0056            Impact factor:   53.242


  44 in total

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2.  Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.

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Authors:  Eric M Meslin
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5.  Motivating donors to genetic research? Anthropological reasons to rethink the role of informed consent.

Authors:  Klaus Hoeyer; Niels Lynöe
Journal:  Med Health Care Philos       Date:  2006

6.  Solidarity: a (new) ethic for global health policy.

Authors:  Shawn H E Harmon
Journal:  Health Care Anal       Date:  2006-12

7.  The complexities of ethical evaluation of genomics research.

Authors:  R Hoedemaekers; B Gordijn; Y Hekster; F van Agt
Journal:  HEC Forum       Date:  2006-03

8.  The informed consent aftermath of the genetic revolution. An Italian example of implementation.

Authors:  Federica Artizzu
Journal:  Med Health Care Philos       Date:  2007-07-19

9.  Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.

Authors:  Joanna Stjernschantz Forsberg; Mats G Hansson; Stefan Eriksson
Journal:  Eur J Hum Genet       Date:  2009-05-27       Impact factor: 4.246

10.  Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers.

Authors:  Kristien Hens; Herman Nys; Jean-Jacques Cassiman; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2009-08       Impact factor: 4.246

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