Literature DB >> 17060267

Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making.

Judith A C Rietjens1, Agnes van der Heide, Bregje D Onwuteaka-Philipsen, Paul J van der Maas, Gerrit van der Wal.   

Abstract

BACKGROUND: Euthanasia and other end-of-life decisions are acceptable to the large majority of the Dutch public. Insight in the relationships of such acceptance, with characteristics considered important for a 'good death', may contribute to the understanding of this liberal attitude.
METHOD: Questionnaires were mailed to 1777 members of the Dutch public (response: 78%), containing questions relating to a good death, attitudes towards euthanasia, terminal sedation and increasing morphine, and demographics. Associations between characteristics of a good death and attitudes towards these end-of-life decisions were analysed.
FINDINGS: Characteristics that were considered important for a good death were: the possibility to say goodbye to loved ones (94%), dying with dignity (92%), being able to decide about end-of-life care (88%), and dying free of pain (87%). Acceptance of euthanasia, terminal sedation and increasing morphine were related to the wish to have a dignified death, and with concerns about burdening relatives with terminal care. Acceptance of euthanasia was also associated with the wish to be able to decide about medical end-of-life treatments and about the moment of death.
INTERPRETATION: Besides saying farewell and dying pain free and with dignity, many members of the Dutch public consider values of control and maintenance of independence as important for a good death.

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Mesh:

Year:  2006        PMID: 17060267     DOI: 10.1177/0269216306070241

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  23 in total

Review 1.  End-of-life decision-making in Canada: the report by the Royal Society of Canada expert panel on end-of-life decision-making.

Authors:  Udo Schüklenk; Johannes J M van Delden; Jocelyn Downie; Sheila A M McLean; Ross Upshur; Daniel Weinstock
Journal:  Bioethics       Date:  2011-11       Impact factor: 1.898

2.  Making sense of continuous sedation in end-of-life care for cancer patients: an interview study with bereaved relatives in three European countries.

Authors:  S M Bruinsma; J Brown; A van der Heide; L Deliens; L Anquinet; S A Payne; J E Seymour; J A C Rietjens
Journal:  Support Care Cancer       Date:  2014-07-15       Impact factor: 3.603

Review 3.  Defining a Good Death (Successful Dying): Literature Review and a Call for Research and Public Dialogue.

Authors:  Emily A Meier; Jarred V Gallegos; Lori P Montross Thomas; Colin A Depp; Scott A Irwin; Dilip V Jeste
Journal:  Am J Geriatr Psychiatry       Date:  2016-01-22       Impact factor: 4.105

4.  Priorities of a "good death" according to cancer patients, their family caregivers, physicians, and the general population: a nationwide survey.

Authors:  Young Ho Yun; Kyoung-Nam Kim; Jin-Ah Sim; EunKyo Kang; Jihye Lee; Jiyeon Choo; Shin Hye Yoo; Miso Kim; Young Ae Kim; Beo Deul Kang; Hyun-Jeong Shim; Eun-Kee Song; Jung Hun Kang; Jung Hye Kwon; Jung Lim Lee; Soon Nam Lee; Chi Hoon Maeng; Eun Joo Kang; Young Rok Do; Yoon Seok Choi; Kyung Hae Jung
Journal:  Support Care Cancer       Date:  2018-04-22       Impact factor: 3.603

5.  Palliative sedation in Dutch general practice from 2005 to 2011: a dynamic cohort study of trends and reasons.

Authors:  Gé A Donker; Frank G Slotman; Peter Spreeuwenberg; Anneke L Francke
Journal:  Br J Gen Pract       Date:  2013-10       Impact factor: 5.386

6.  Opinions of the Dutch public on palliative sedation: a mixed-methods approach.

Authors:  Hilde T H van der Kallen; Natasja J H Raijmakers; Judith A C Rietjens; Alex A van der Male; Herman J Bueving; Johannes J M van Delden; Agnes van der Heide
Journal:  Br J Gen Pract       Date:  2013-10       Impact factor: 5.386

7.  Factors related to withholding life-sustaining treatment in hospitalized elders.

Authors:  A Esteve; C Jimenez; R Perez; J A Gomez
Journal:  J Nutr Health Aging       Date:  2009-08       Impact factor: 4.075

8.  The end-of-life phase of high-grade glioma patients: dying with dignity?

Authors:  Eefje M Sizoo; Martin J B Taphoorn; Bernard Uitdehaag; Jan J Heimans; Luc Deliens; Jaap C Reijneveld; H Roeline W Pasman
Journal:  Oncologist       Date:  2013-01-18

9.  Concerns about end-of-life care and support for euthanasia.

Authors:  Jane L Givens; Susan L Mitchell
Journal:  J Pain Symptom Manage       Date:  2009-04-05       Impact factor: 3.612

10.  Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?

Authors:  Judith A C Rietjens; Paul J van der Maas; Bregje D Onwuteaka-Philipsen; Johannes J M van Delden; Agnes van der Heide
Journal:  J Bioeth Inq       Date:  2009-07-28       Impact factor: 1.352

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