Literature DB >> 17005503

Measuring autonomy in disabled people: Validation of a new scale in a UK population.

A Sibley1, P Kersten, C D Ward, B White, R Mehta, S George.   

Abstract

OBJECTIVE: To evaluate the validity and reliability of an English version of the Impact on Participation and Autonomy Questionnaire (IPA). The original Dutch IPA has been shown to load onto five factors.
DESIGN: A validation study.
SETTING: Outpatients clinics and people's homes.
SUBJECTS: Two hundred and thirteen people with multiple sclerosis, rheumatoid arthritis, spinal cord injury, and general practice attendees, stratified by level of disability (median age 54, 42% male, 58% female). INCLUSION CRITERIA: English as first language, aged 18-75, Mental Status Questionnaire score >6.
INTERVENTIONS: Self- and interviewer-administered outcome measures. MAIN MEASURES: IPA, including one new item (66 participants completed the IPA on a second occasion). OTHER MEASURES: Short Form-36 Health Survey (SF-36), London Handicap Scale, three domains of the Functional Limitations Profile (FLP): household management, social integration, emotion.
RESULTS: Confirmatory factor analysis confirmed the construct validity of the IPA (Normal Fit Index = 0.98, Comparative Fit Index = 0.99), indicating a good fit to the model. Convergent and discriminant validity were confirmed by the predicted associations, or lack of, with the exception of a poor association between the 'social life/relationships' IPA subscale and FLP-emotion. Internal reliability of the IPA was confirmed (Cronbach alphas >0.8; item-total correlations for all subscales >0.5). Test-retest reliability was confirmed for all items (weighted kappas >0.6) and subscales (intraclass correlation coefficients >0.90).
CONCLUSIONS: The English IPA is a valid, reliable and acceptable measure of participation and autonomy in people with a range of conditions and can make a unique and fundamental contribution to outcome assessment. Further research is required to examine the responsiveness of the IPA to change over time, its clinical utility and suitability for use with people from ethnic minorities and with older people.

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Year:  2006        PMID: 17005503     DOI: 10.1177/0269215506070808

Source DB:  PubMed          Journal:  Clin Rehabil        ISSN: 0269-2155            Impact factor:   3.477


  12 in total

1.  Maintaining autonomy despite multimorbidity: self-efficacy and the two faces of social support.

Authors:  Lisa M Warner; Jochen P Ziegelmann; Benjamin Schüz; Susanne Wurm; Clemens Tesch-Römer; Ralf Schwarzer
Journal:  Eur J Ageing       Date:  2011-02-10

Review 2.  A review of instruments assessing participation in persons with spinal cord injury.

Authors:  V K Noonan; W C Miller; L Noreau
Journal:  Spinal Cord       Date:  2009-02-24       Impact factor: 2.772

3.  Effectiveness of a patient self-management programme for breast cancer as a chronic illness: a non-randomised controlled clinical trial.

Authors:  Siew Yim Loh; Tanya Packer; Karuthan Chinna; Kia Fatt Quek
Journal:  J Cancer Surviv       Date:  2013-03-22       Impact factor: 4.442

4.  Impact on participation and autonomy questionnaire: psychometric properties of the thai version.

Authors:  Jatuporn Suttiwong; Mantana Vongsirinavarat; Roongtiwa Vachalathiti; Pakaratee Chaiyawat
Journal:  J Phys Ther Sci       Date:  2013-08-20

5.  Psychometric properties of the Dutch WHOQOL-OLD.

Authors:  Robbert J J Gobbens; Marcel A L M van Assen
Journal:  Health Qual Life Outcomes       Date:  2016-07-15       Impact factor: 3.186

6.  Changing physical activity behaviour for people with multiple sclerosis: protocol of a randomised controlled feasibility trial (iStep-MS).

Authors:  Jennifer M Ryan; Jennifer Fortune; Andrea Stennett; Cherry Kilbride; Nana Anokye; Christina Victor; Wendy Hendrie; Mohamed Abdul; Lorraine DeSouza; Grace Lavelle; Debbie Brewin; Lee David; Meriel Norris
Journal:  BMJ Open       Date:  2017-11-15       Impact factor: 2.692

7.  Comparing the content of participation instruments using the international classification of functioning, disability and health.

Authors:  Vanessa K Noonan; Jacek A Kopec; Luc Noreau; Joel Singer; Anna Chan; Louise C Mâsse; Marcel F Dvorak
Journal:  Health Qual Life Outcomes       Date:  2009-11-13       Impact factor: 3.186

8.  Social participation in patients with multiple sclerosis: correlations between disability and economic burden.

Authors:  Arnaud Kwiatkowski; Jean-Pierre Marissal; Madani Pouyfaucon; Patrick Vermersch; Patrick Hautecoeur; Benoît Dervaux
Journal:  BMC Neurol       Date:  2014-05-27       Impact factor: 2.474

9.  The course of complaints of arm, neck and/or shoulder: a cohort study in a university population participating in work or study.

Authors:  Vivian E J Bruls; Nicole W H Jansen; Sander M J van Kuijk; IJmert Kant; Caroline H G Bastiaenen
Journal:  BMC Musculoskelet Disord       Date:  2018-06-30       Impact factor: 2.362

10.  Functioning and quality of life in patients with neuropathy associated with anti-MAG antibodies.

Authors:  Yuri M Falzone; Marta Campagnolo; Mariangela Bianco; Patrizia Dacci; Daniele Martinelli; Marta Ruiz; Silvia Bocci; Federica Cerri; Angelo Quattrini; Giancarlo Comi; Luana Benedetti; Fabio Giannini; Giuseppe Lauria; Eduardo Nobile-Orazio; Chiara Briani; Raffaella Fazio; Nilo Riva
Journal:  J Neurol       Date:  2018-10-10       Impact factor: 4.849

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