Literature DB >> 19238163

A review of instruments assessing participation in persons with spinal cord injury.

V K Noonan1, W C Miller, L Noreau.   

Abstract

STUDY
DESIGN: A systematic search of the literature.
OBJECTIVES: To critically review instruments that assess participation in persons with spinal cord injury (SCI).
SETTING: Vancouver, British Columbia.
METHODS: Four electronic databases (MEDLINE/PubMed, CINAHL, EMBASE and PsychInfo) were searched for studies published between 1980 and March 2008. Instruments were included if information was published in English in at least one peer-reviewed journal on its measurement properties (reliability, validity and responsiveness) in a sample that included adults with SCI. Instruments were evaluated using criteria proposed for disability outcome measures.
RESULTS: Six instruments were included: Craig Handicap Assessment and Reporting Technique (CHART); Impact on Participation and Autonomy Questionnaire (IPA); Assessment of Life Habits Scale (Life-H); Occupational Performance History Interview; Physical Activity Recall Assessment for People with Spinal Cord Injury; and Reintegration to Normal Living Index. Evidence supporting the reliability of the instruments was reported for four of the six instruments and was adequate. Validity was assessed in all the instruments. Only the Life-H and CHART have been compared with each other. No evidence on responsiveness was available.
CONCLUSION: The instruments differ in how participation is operationalized. Currently, the CHART that measures objective aspects of participation has the most evidence supporting its measurement properties. More evidence is becoming available for instruments such as the IPA, which consider the person's perspective. It is important to determine what information about participation is required before selecting an instrument.

Entities:  

Mesh:

Year:  2009        PMID: 19238163      PMCID: PMC3535488          DOI: 10.1038/sc.2008.171

Source DB:  PubMed          Journal:  Spinal Cord        ISSN: 1362-4393            Impact factor:   2.772


  38 in total

1.  Rasch modeling and the measurement of social participation.

Authors:  Claire Dumont; Richard Bertrand; Patrick Fougeyrollas; Marie Gervais
Journal:  J Appl Meas       Date:  2003

2.  Linking health-status measurements to the international classification of functioning, disability and health.

Authors:  Alarcos Cieza; Thomas Brockow; Thomas Ewert; Edda Amman; Barbara Kollerits; Somnath Chatterji; T Berdihan Ustün; Gerold Stucki
Journal:  J Rehabil Med       Date:  2002-09       Impact factor: 2.912

3.  ICF linking rules: an update based on lessons learned.

Authors:  Alarcos Cieza; Szilvia Geyh; Somnath Chatterji; Nenad Kostanjsek; Bedirhan Ustün; Gerold Stucki
Journal:  J Rehabil Med       Date:  2005-07       Impact factor: 2.912

4.  Development and evaluation of an activity measure for people with spinal cord injury.

Authors:  Kathleen A Martin Ginis; Amy E Latimer; Audrey L Hicks; B Catharine Craven
Journal:  Med Sci Sports Exerc       Date:  2005-07       Impact factor: 5.411

5.  Development and investigation of the occupational performance history interview.

Authors:  G Kielhofner; A D Henry
Journal:  Am J Occup Ther       Date:  1988-08

6.  The use of proxies in community integration research.

Authors:  C P Cusick; C A Brooks; G G Whiteneck
Journal:  Arch Phys Med Rehabil       Date:  2001-08       Impact factor: 3.966

7.  Participation objective, participation subjective: a measure of participation combining outsider and insider perspectives.

Authors:  Margaret Brown; Marcel P J M Dijkers; Wayne A Gordon; Teresa Ashman; Heather Charatz; Zhifen Cheng
Journal:  J Head Trauma Rehabil       Date:  2004 Nov-Dec       Impact factor: 2.710

8.  Reintegration to Normal Living as a proxy to quality of life.

Authors:  S Wood-Dauphinee; J I Williams
Journal:  J Chronic Dis       Date:  1987

9.  Subjective well-being: implications for medical rehabilitation outcomes and models of disablement.

Authors:  M J Fuhrer
Journal:  Am J Phys Med Rehabil       Date:  1994 Sep-Oct       Impact factor: 2.159

10.  Assessment of global function: The Reintegration to Normal Living Index.

Authors:  S L Wood-Dauphinee; M A Opzoomer; J I Williams; B Marchand; W O Spitzer
Journal:  Arch Phys Med Rehabil       Date:  1988-08       Impact factor: 3.966

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  15 in total

1.  The extent to which common health-related quality of life indices capture constructs beyond symptoms and function.

Authors:  Nancy E Mayo; Carolina Moriello; Miho Asano; Susara van der Spuy; Lois Finch
Journal:  Qual Life Res       Date:  2010-11-25       Impact factor: 4.147

2.  Phrenic pacing compared with mechanical ventilation.

Authors:  Morten Packert Andersen; Michael Laub; Fin Biering-Sørensen
Journal:  Spinal Cord Ser Cases       Date:  2017-04-27

3.  Development of the International Spinal Cord Injury Activities and Participation Basic Data Set.

Authors:  M W Post; S Charlifue; F Biering-Sørensen; A Catz; M P Dijkers; J Horsewell; V K Noonan; L Noreau; D G Tate; K A Sinnott
Journal:  Spinal Cord       Date:  2015-10-20       Impact factor: 2.772

4.  An examination of the psychometric properties of the community integration questionnaire (CIQ) in spinal cord injury.

Authors:  Anna L Kratz; Edmund Chadd; Mark P Jensen; Matthew Kehn; Thilo Kroll
Journal:  J Spinal Cord Med       Date:  2014-01-03       Impact factor: 1.985

Review 5.  Relevance of the international spinal cord injury basic data sets to youth: an Inter-Professional review with recommendations.

Authors:  A Carroll; L C Vogel; K Zebracki; V K Noonan; F Biering-Sørensen; M J Mulcahey
Journal:  Spinal Cord       Date:  2017-02-28       Impact factor: 2.772

6.  Report of practicability of a 6-month home-based functional electrical stimulation cycling program in an individual with tetraplegia.

Authors:  David R Dolbow; Ashraf S Gorgey; Jewel R Moore; David R Gater
Journal:  J Spinal Cord Med       Date:  2012-05       Impact factor: 1.985

7.  [Participation in the community after the rehabilitation: multi-center study in Argentina]

Authors:  Gustavo Heider; Laura Gonzalez Atchabahian; Yanina Gambero; Cristian Herrera; Sabrina Suárez; Silvina Sciuto; María de la Paz Sampayo; Eliana Buffetti; Mariana Bonetto; María Soledad Relancio; Miriam Beatriz Elorriaga; Lorena Impagliazzo; Juan Solohaga; Andrés Estelita; Gabriela García; Nadia Leizica; Daiana Del Valle Mirabal; Jorge Cancino; Hernán Pavón; Darío Toledo; Rodrigo Di Yorio
Journal:  Rev Fac Cien Med Univ Nac Cordoba       Date:  2022-03-07

Review 8.  Identifying and classifying quality-of-life tools for assessing pressure ulcers after spinal cord injury.

Authors:  Sander L Hitzig; Christina Balioussis; Ethne Nussbaum; Colleen F McGillivray; B Catharine Craven; Luc Noreau
Journal:  J Spinal Cord Med       Date:  2013-05-22       Impact factor: 1.985

9.  Home-based functional electrical stimulation cycling enhances quality of life in individuals with spinal cord injury.

Authors:  David R Dolbow; Ashraf S Gorgey; Jessica M Ketchum; David R Gater
Journal:  Top Spinal Cord Inj Rehabil       Date:  2013

10.  Gait and Function in Class III Obesity.

Authors:  Catherine Ling; Teresa Kelechi; Martina Mueller; Sandra Brotherton; Sheila Smith
Journal:  J Obes       Date:  2012-02-16
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