P J Manns1, L A May. 1. Faculty of Rehabilitation Medicine, Department of Physical Therapy, University of Alberta, Glenrose Rehabilitation Hospital, Alberta, Canada. trish.manns@ualberta.ca
Abstract
STUDY DESIGN: Qualitative design using focus groups. OBJECTIVE: To explore the perceptions of people with SCI and their caregivers about information needs and service delivery options that may assist them to maintain or improve their long-term health. SETTING: Province wide project in Alberta, Canada. METHODS: Eight focus groups were conducted; five with community dwelling people with SCI and three with unpaid caregivers (family and friends). Content analysis was used to identify categories and themes arising from the data. RESULTS: The findings from the study are broader than the original objective to explore information needs and service delivery options to promote long-term health. The participants more globally discussed factors that contribute to or provide barriers to their long-term health. Those factors are captured in five categories, including readiness, information pathways, community health care, health promotion, and contextual factors. A framework that illustrates the relationships between categories was constructed. CONCLUSION: The framework identifies areas to target in programmes designed to reduce or prevent secondary conditions in people with SCI. SPONSORSHIP: This study was funded by the Alberta Paraplegic Foundation and the Glenrose Rehabilitation Hospital Foundation.
STUDY DESIGN: Qualitative design using focus groups. OBJECTIVE: To explore the perceptions of people with SCI and their caregivers about information needs and service delivery options that may assist them to maintain or improve their long-term health. SETTING: Province wide project in Alberta, Canada. METHODS: Eight focus groups were conducted; five with community dwelling people with SCI and three with unpaid caregivers (family and friends). Content analysis was used to identify categories and themes arising from the data. RESULTS: The findings from the study are broader than the original objective to explore information needs and service delivery options to promote long-term health. The participants more globally discussed factors that contribute to or provide barriers to their long-term health. Those factors are captured in five categories, including readiness, information pathways, community health care, health promotion, and contextual factors. A framework that illustrates the relationships between categories was constructed. CONCLUSION: The framework identifies areas to target in programmes designed to reduce or prevent secondary conditions in people with SCI. SPONSORSHIP: This study was funded by the Alberta Paraplegic Foundation and the Glenrose Rehabilitation Hospital Foundation.
Authors: Jeanne Hoffman; Cynthia Salzman; Chris Garbaccio; Stephen P Burns; Deborah Crane; Charles Bombardier Journal: J Spinal Cord Med Date: 2011 Impact factor: 1.985
Authors: John D Shepherd; Karla M Badger-Brown; Matthew S Legassic; Saagar Walia; Dalton L Wolfe Journal: J Spinal Cord Med Date: 2012-09 Impact factor: 1.985
Authors: Joy Bailey; Marcel P Dijkers; Julie Gassaway; Jane Thomas; Patricia Lingefelt; Scott E D Kreider; Gale Whiteneck Journal: J Spinal Cord Med Date: 2012-11 Impact factor: 1.985
Authors: Milagros Evardone; Catherine S Wilson; Diana Weinel; Jason R Soble; Younghee Kang Journal: J Spinal Cord Med Date: 2016-05-05 Impact factor: 1.985