Literature DB >> 16986992

Mothers' reflections on raising a child with a craniofacial anomaly.

Tovah Klein1, Alice W Pope, Eskedar Getahun, Jill Thompson.   

Abstract

OBJECTIVE: To conduct a qualitative evaluation of parenting among families with school-aged and young adolescent children with craniofacial anomalies (CFAs).
METHODS: Interview responses were obtained from nine mothers of children ages 9 to 14 years old with CFAs. Mothers were asked to describe their perceptions of their children, their children's special needs because of CFAs, and their parenting strategies. Narratives were coded into categories, including maternal concerns and worries, children's strengths, proactive maternal behaviors, and role of CFAs in the families' lives. RESULTS AND
CONCLUSIONS: Mothers' responses indicated concern and protectiveness because of the challenges of having a CFA, as well as parenting strategies intended to promote autonomy and positive social and emotional adjustment.

Entities:  

Mesh:

Year:  2006        PMID: 16986992     DOI: 10.1597/05-117

Source DB:  PubMed          Journal:  Cleft Palate Craniofac J        ISSN: 1055-6656


  8 in total

1.  Prenatal diagnosis of orofacial clefts: association with maternal satisfaction, team care, and treatment outcomes.

Authors:  James M Robbins; Peter Damiano; Charlotte M Druschel; Charlotte A Hobbs; Paul A Romitti; April A Austin; Margaret Tyler; J Alex Reading; Whitney Burnett
Journal:  Cleft Palate Craniofac J       Date:  2010-09

Review 2.  Educational paper: parenting a child with a disfiguring condition-how (well) do parents adapt?

Authors:  Willem H Leemreis; Jolanda M E Okkerse; Peter C J de Laat; Gerard C Madern; Léon N A van Adrichem; Frank Verhulst; Arnold P Oranje
Journal:  Eur J Pediatr       Date:  2013-06-18       Impact factor: 3.183

3.  Attitudes of pregnant women and mothers of children with orofacial clefts toward prenatal diagnosis of nonsyndromic orofacial clefts in a semiurban set-up in India.

Authors:  Poornima Kadagad; Pascal Pinto; Rajesh Powar
Journal:  Indian J Plast Surg       Date:  2011-09

4.  Readability of Information Related to the Parenting of a Child With a Cleft.

Authors:  Nanci De Felippe; Farnaz Kar
Journal:  Interact J Med Res       Date:  2015-07-08

5.  Centre-level variation in behaviour and the predictors of behaviour in 5-year-old children with non-syndromic unilateral cleft lip: The Cleft Care UK study. Part 5.

Authors:  A Waylen; O Mahmoud; A K Wills; D Sell; J R Sandy; A R Ness
Journal:  Orthod Craniofac Res       Date:  2017-06       Impact factor: 1.826

6.  "Will You Still Feel Beautiful When You Find Out You Are Different?": Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference.

Authors:  Kristin J Billaud Feragen; Anita Myhre; Nicola Marie Stock
Journal:  Qual Health Res       Date:  2021-10-01

7.  Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review.

Authors:  Jinrong Yang; Lin Lin; Yuqin Gao; Weiren Wang; Lulu Yuan
Journal:  Front Psychiatry       Date:  2022-09-23       Impact factor: 5.435

8.  Associations Among Perceived Parent and Peer Support, Self-Esteem, and Cancer-Related Worry in Adolescent and Young Adult Cancer Survivors.

Authors:  Glynnis A McDonnell; Alice W Pope; Jennifer S Ford
Journal:  J Adolesc Young Adult Oncol       Date:  2020-08-20       Impact factor: 1.757

  8 in total

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