Literature DB >> 16980135

Parents of children with cancer: factors influencing their treatment decision making roles.

Kimberly A Pyke-Grimm1, Janet L Stewart, Katherine P Kelly, Lesley F Degner.   

Abstract

This study examined the factors that parents identified as influencing their role in treatment decision making (TDM) for their child with cancer. Content analysis of qualitative data from semistructured interviews with 36 parents as part of a mixed-methods study revealed numerous themes related to parents' TDM roles. Factors that were frequently identified included: relationship with the physician, nature of communication, trust in the physician, parents' and physician's knowledge and experience, and importance of parental role. Parents acknowledged a strong sense of responsibility and feeling of "ownership" of their child. Parents initially lacked knowledge and experience, but acquiring these over time contributed to a more active participation in TDM.

Entities:  

Mesh:

Year:  2006        PMID: 16980135     DOI: 10.1016/j.pedn.2006.02.005

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  22 in total

1.  Do parents of children with cancer want to participate in treatment decision-making?

Authors:  Ágata Salvador; Carla Crespo; Magda Sofia Roberto; Luísa Barros
Journal:  Support Care Cancer       Date:  2019-06-08       Impact factor: 3.603

2.  Decision-making in childhood cancer: parents' and adolescents' views and perceptions.

Authors:  Eden G Robertson; Claire E Wakefield; Joanne Shaw; Anne-Sophie Darlington; Brittany C McGill; Richard J Cohn; Joanna E Fardell
Journal:  Support Care Cancer       Date:  2019-03-18       Impact factor: 3.603

3.  Improving the Validity of Stated-Preference Data in Health Research: The Potential of the Time-to-Think Approach.

Authors:  Semra Ozdemir
Journal:  Patient       Date:  2015-06       Impact factor: 3.883

4.  Uncertainty and Posttraumatic Stress: Differences Between Mothers and Fathers of Infants with Disorders of Sex Development.

Authors:  Alexandria M Delozier; Kaitlyn L Gamwell; Christina Sharkey; Dana M Bakula; Megan N Perez; Cortney Wolfe-Christensen; Paul Austin; Laurence Baskin; Kerlly J Bernabé; Yee-Ming Chan; Earl Y Cheng; David A Diamond; Rebecca E H Ellens; Allyson Fried; Denise Galan; Saul Greenfield; Thomas Kolon; Bradley Kropp; Yegappan Lakshmanan; Sabrina Meyer; Theresa Meyer; Natalie J Nokoff; Kristy J Reyes; Blake Palmer; Dix P Poppas; Alethea Paradis; Amy C Tishelman; Elizabeth B Yerkes; John M Chaney; Amy B Wisniewski; Larry L Mullins
Journal:  Arch Sex Behav       Date:  2019-05-29

5.  Ethical issues for control-arm patients after revelation of benefits of experimental therapy: a framework modeled in neuroblastoma.

Authors:  Yoram Unguru; Steven Joffe; Conrad V Fernandez; Alice L Yu
Journal:  J Clin Oncol       Date:  2013-01-07       Impact factor: 44.544

6.  Making choices about medical interventions: the experience of disabled young people with degenerative conditions.

Authors:  Wendy A Mitchell
Journal:  Health Expect       Date:  2012-02-02       Impact factor: 3.377

Review 7.  What is known about parents' treatment decisions? A narrative review of pediatric decision making.

Authors:  Ellen A Lipstein; William B Brinkman; Maria T Britto
Journal:  Med Decis Making       Date:  2011-10-03       Impact factor: 2.583

8.  Factors related to voluntary parental decision-making in pediatric oncology.

Authors:  Victoria A Miller; Robert M Nelson
Journal:  Pediatrics       Date:  2012-04-16       Impact factor: 7.124

9.  Real life clinic visits do not match the ideals of shared decision making.

Authors:  Ellen A Lipstein; Cassandra M Dodds; Maria T Britto
Journal:  J Pediatr       Date:  2014-04-30       Impact factor: 4.406

10.  Exploring factors influencing health-seeking decisions and retention in childhood cancer treatment programmes: perspectives of parents in Ghana.

Authors:  Lorna Awo Renner; Deborah McGill
Journal:  Ghana Med J       Date:  2016-09
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.