Literature DB >> 16948286

Information and service needs of persons with Alzheimer's disease and their family caregivers living in rural communities.

Perry Edelman1, Daniel Kuhn, Bradley R Fulton, Gregory A Kyrouac.   

Abstract

This study aimed to identify the information and service needs of persons with Alzheimer's disease (AD) and their family caregivers living in rural communities and to assess differences and similarities in each partner's perspective. In an outpatient clinic setting, a self-report survey was completed by 100 caregivers, while a similar survey was used to interview 100 persons with mild to moderate AD. The survey assessed respondents' interest in information or services related to 22 topics about AD and various aspects of coping with the disease. Although more caregivers than persons with AD reported interest in each topic, 8 of the top 10 topics endorsed by each group of respondents were the same. However, analysis of responses by dyads revealed substantial disagreement in terms of each partner's interest in information and services. Patient and family education, as well as referrals for services, must take into account each partner's unique perspective and needs.

Entities:  

Mesh:

Year:  2006        PMID: 16948286     DOI: 10.1177/1533317506290664

Source DB:  PubMed          Journal:  Am J Alzheimers Dis Other Demen        ISSN: 1533-3175            Impact factor:   2.035


  11 in total

1.  Exploring the reasons urban and rural-dwelling older adults participate in memory research.

Authors:  Amanda Hunsaker; C Elizabeth Sarles; Daniel Rosen; Jennifer H Lingler; Marla Bonacile Johnson; Lisa Morrow; Judith Saxton
Journal:  Am J Alzheimers Dis Other Demen       Date:  2011-02-21       Impact factor: 2.035

2.  Do older adults with Alzheimer's disease engage in estate planning and advance care planning preparation?

Authors:  Shinae Choi; Minjung Kim; Ian M McDonough
Journal:  Aging Ment Health       Date:  2018-04-18       Impact factor: 3.658

3.  Barriers to Online Dementia Information and Mitigation.

Authors:  Emma Dixon; Jesse Anderson; Diana Blackwelder; Mary Radnofsky; Amanda Lazar
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2022-04-29

4.  Information-seeking at a caregiving website: a qualitative analysis.

Authors:  Leslie P Kernisan; Rebecca L Sudore; Sara J Knight
Journal:  J Med Internet Res       Date:  2010-07-28       Impact factor: 5.428

5.  Exploring how caregivers for people living with dementia use strategies to overcome work system constraints.

Authors:  Dustin T Weiler; Aloysius J Lingg; David M Wilkins; Laura Militello; Nicole E Werner
Journal:  Appl Ergon       Date:  2022-01-19       Impact factor: 3.661

Review 6.  How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer's disease or related diseases? A systematic review of quantitative and qualitative studies.

Authors:  T Novais; V Dauphinot; P Krolak-Salmon; C Mouchoux
Journal:  BMC Geriatr       Date:  2017-04-17       Impact factor: 3.921

7.  A Model of Health for Family Caregivers of Elders.

Authors:  Florence M Weierbach; Yan Cao
Journal:  Healthcare (Basel)       Date:  2016-12-22

8.  ABIDE Delphi study: topics to discuss in diagnostic consultations in memory clinics.

Authors:  Agnetha D Fruijtier; Leonie N C Visser; Ingrid S van Maurik; Marissa D Zwan; Femke H Bouwman; Wiesje M van der Flier; Ellen M A Smets
Journal:  Alzheimers Res Ther       Date:  2019-08-31       Impact factor: 6.982

9.  Health Care Utilization Among Elderly Medicare Beneficiaries With Coexisting Dementia and Cancer.

Authors:  Satish K Kedia; Prachi P Chavan; Sarah E Boop; Xinhua Yu
Journal:  Gerontol Geriatr Med       Date:  2017-01-17

10.  Communication strategies for designing Facebook advertising campaigns to recruit rural participants to develop healthcare delivery interventions.

Authors:  Elizabeth Flood-Grady; Deaven Hough; Rachel E Damiani; Nioud Mulugeta Gebru; David A Fedele; Robert F Leeman; Janice L Krieger
Journal:  J Clin Transl Sci       Date:  2020-01-16
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