Literature DB >> 16824981

The caregiver's perspective on existential and spiritual distress in palliative care.

Patricia H Boston1, Balfour M Mount.   

Abstract

There is a paucity of research relating to how palliative caregivers conceptualize, identify, and provide for spiritual and existential domains of care. Focus groups comprising experienced palliative care providers participated in three semistructured 2-2.5 hour interviews, which were transcribed and subjected to thematic analysis. Eight themes were revealed: conceptualization of spirituality; creating openings; issues of transference and countertransference; cumulative grief; healing connections; the wounded healer; sustaining a healing environment for the caregiver; and challenges and strengths for the spiritual and existential domains of palliative care. While the spiritual and existential domains were variously conceived by experienced care providers, their significance for both patient and caregiver was affirmed. Transference and countertransference issues and the "wounded healer" concept were considered fundamental to effective care. Strategies for promoting therapeutic depth discussion were suggested and the importance of self-awareness and staff support emphasized.

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Year:  2006        PMID: 16824981     DOI: 10.1016/j.jpainsymman.2006.01.009

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  12 in total

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2.  Spirituality in palliative home care: a framework for the clinician.

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3.  Palliative care specialists' beliefs about spiritual care.

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6.  Impact of death and dying on the personal lives and practices of palliative and hospice care professionals.

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Review 7.  Improving well-being in caregivers of terminally ill patients. Making the case for patient suffering as a focus for intervention research.

Authors:  Randy S Hebert; Robert M Arnold; Richard Schulz
Journal:  J Pain Symptom Manage       Date:  2007-07-05       Impact factor: 3.612

8.  Coping strategies for existencial and spiritual suffering in Israeli patients with advanced cancer.

Authors:  Netta Bentur; Daphna Yaira Stark; Shirli Resnizky; Zvi Symon
Journal:  Isr J Health Policy Res       Date:  2014-06-24

9.  Getting Out or Remaining in the Cage of Inauthentic Self: The Meaning of Existential Challenges in Patients' with Cancer.

Authors:  Zohreh Khoshnood; Sedigheh Iranmanesh; Masoud Rayyani; Mahlegha Dehghan
Journal:  Indian J Palliat Care       Date:  2018 Apr-Jun

10.  Documento de Posición Oficial sobre la Promoción Global de Cuidados Paliativos: Recomendaciones del Grupo Internacional Asesor PAL-LIFE de la Academia Pontificia de la Vida, Ciudad del Vaticano.

Authors:  Carlos Centeno; Thomas Sitte; Liliana de Lima; Sami Alsirafy; Eduardo Bruera; Mary Callaway; Kathleen Foley; Emmanuel Luyirika; Daniela Mosoiu; Katherine Pettus; Christina Puchalski; M R Rajagopal; Julianna Yong; Eduardo Garralda; John Y Rhee; Nunziata Comoretto
Journal:  J Palliat Med       Date:  2018-09-26       Impact factor: 2.947

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