Literature DB >> 16823778

What the other children are thinking: brothers and sisters of persons with Down syndrome.

Brian G Skotko1, Susan P Levine.   

Abstract

Brothers and sisters are obligatorily welcomed to the disability community when a person with Down syndrome (DS) is part of the family unit. How they react to such an invitation is the focus of this investigation. Here, we review the most current research on brothers and sisters of persons with DS, and comment on our own experience in facilitating sibling workshops at the local, state, and national levels. The evidence, to date, seems clear: brothers and sisters experience a wide range of emotions, but typically the positive feelings outweigh the negative ones. Further, siblings find rich value in having a family member with DS, and most will assume positions of advocacy at some level in their lives. Recommendations for physicians on how parents can nurture healthy relationships among their children are offered.

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Year:  2006        PMID: 16823778     DOI: 10.1002/ajmg.c.30101

Source DB:  PubMed          Journal:  Am J Med Genet C Semin Med Genet        ISSN: 1552-4868            Impact factor:   3.908


  6 in total

1.  What I wish I knew then...reflections from personal experiences in counseling about Down syndrome.

Authors:  Campbell K Brasington
Journal:  J Genet Couns       Date:  2007-08-13       Impact factor: 2.537

2.  Having a brother or sister with Down syndrome: perspectives from siblings.

Authors:  Brian G Skotko; Susan P Levine; Richard Goldstein
Journal:  Am J Med Genet A       Date:  2011-09-09       Impact factor: 2.802

3.  To transfer or not to transfer: the case of comprehensive chromosome screening of the in vitro embryo.

Authors:  Kristien Hens
Journal:  Health Care Anal       Date:  2015-06

4.  Women's knowledge, attitudes, and beliefs about Down syndrome: a qualitative research study.

Authors:  Denise M Levis; Shelly Harris; Nedra Whitehead; Rebecca Moultrie; Kara Duwe; Sonja A Rasmussen
Journal:  Am J Med Genet A       Date:  2012-04-27       Impact factor: 2.802

5.  Parental Communication and Experiences and Knowledge of Adolescent Siblings of Children with 22q11.2 Deletion Syndrome.

Authors:  Rebecca Okashah; Kelly Schoch; Stephen R Hooper; Vandana Shashi; Nancy Callanan
Journal:  J Genet Couns       Date:  2014-12-27       Impact factor: 2.537

Review 6.  Non-invasive prenatal testing: a review of international implementation and challenges.

Authors:  Megan Allyse; Mollie A Minear; Elisa Berson; Shilpa Sridhar; Margaret Rote; Anthony Hung; Subhashini Chandrasekharan
Journal:  Int J Womens Health       Date:  2015-01-16
  6 in total

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