Literature DB >> 16781973

Transition to adulthood in congenital heart disease: missed adolescent milestones.

Maureen E Lyon1, Karen Kuehl, Robert McCarter.   

Abstract

PURPOSE: To determine whether adults with congenital heart disease (CHD) are better adjusted than adults with acquired heart disease (AHD).
METHODS: Twenty-five adults with CHD completed the Patient Adjustment to Illness Self Report (PAIS-SR).
RESULTS: CHD patients had good adjustment for Heath Care Orientation and Family Relations, but poorer adjustment for Vocational, Social and Domestic Environment, Sexual Relations, and Psychological Distress.
CONCLUSIONS: The needs of CHD patients are not being met.

Entities:  

Mesh:

Year:  2006        PMID: 16781973     DOI: 10.1016/j.jadohealth.2005.09.008

Source DB:  PubMed          Journal:  J Adolesc Health        ISSN: 1054-139X            Impact factor:   5.012


  11 in total

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2.  Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire.

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4.  Lifetime prevalence of sexual intercourse and contraception use at last sex among adolescents and young adults with congenital heart disease.

Authors:  Kevin M Fry; Cynthia A Gerhardt; Jerry Ash; Ali N Zaidi; Vidu Garg; Kim L McBride; Sara M Fitzgerald-Butt
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5.  Adolescent dialysis patient transition to adult care: a cross-sectional survey.

Authors:  Lorraine Bell
Journal:  Pediatr Nephrol       Date:  2007-02-27       Impact factor: 3.714

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Authors:  Yvette Leung; Melvin B Heyman; Uma Mahadevan
Journal:  Inflamm Bowel Dis       Date:  2010-12-16       Impact factor: 5.325

7.  Characteristics of young people with long term conditions close to transfer to adult health services.

Authors:  Hannah Merrick; Helen McConachie; Ann Le Couteur; Kay Mann; Jeremy R Parr; Mark S Pearce; Allan Colver
Journal:  BMC Health Serv Res       Date:  2015-09-30       Impact factor: 2.655

8.  Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services.

Authors:  Jenni Hislop; Helen Mason; Jeremy R Parr; Luke Vale; Allan Colver
Journal:  J Adolesc Health       Date:  2016-06-08       Impact factor: 5.012

9.  Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services.

Authors:  Allan F Colver; Hannah Merrick; Mark Deverill; Ann Le Couteur; Jeremy Parr; Mark S Pearce; Tim Rapley; Luke Vale; Rose Watson; Helen McConachie
Journal:  BMC Public Health       Date:  2013-07-23       Impact factor: 3.295

Review 10.  New understanding of adolescent brain development: relevance to transitional healthcare for young people with long term conditions.

Authors:  Allan Colver; Sarah Longwell
Journal:  Arch Dis Child       Date:  2013-08-28       Impact factor: 3.791

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