Literature DB >> 16600617

Genetic testing for hereditary cancers: the impact of gender on interest, uptake and ethical considerations.

Lori d'Agincourt-Canning1, Patricia Baird.   

Abstract

Genetic testing promises earlier intervention and more successful outcomes for individuals at risk for hereditary breast/ovarian and colorectal cancer. Research shows that gender influences health and access to health care services. In this paper, we review theoretical issues of gender, and research outcomes, in relation to genetic testing for hereditary cancers. We argue that integrating a gender analysis into assessment of new technologies and health programs is necessary to improve appropriateness, accessibility and effectiveness. Attention to gender is also critical to developing a deeper understanding of the ethical issues (both benefits and harms) raised by new genetic technologies.

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Year:  2006        PMID: 16600617     DOI: 10.1016/j.critrevonc.2006.03.001

Source DB:  PubMed          Journal:  Crit Rev Oncol Hematol        ISSN: 1040-8428            Impact factor:   6.312


  17 in total

1.  Stigmatization and male identity: Norwegian males' experience after identification as BRCA1/2 mutation carriers.

Authors:  Nina Strømsvik; Målfrid Råheim; Nina Oyen; Lars Fredrik Engebretsen; Eva Gjengedal
Journal:  J Genet Couns       Date:  2010-03-20       Impact factor: 2.537

2.  Reproductive Decision-Making in MMR Mutation Carriers After Results Disclosure: Impact of Psychological Status in Childbearing Options.

Authors:  Jacqueline Duffour; Audrey Combes; Evelyne Crapez; Florence Boissière-Michot; Frédéric Bibeau; Pierre Senesse; Marc Ychou; Julie Courraud; Hélène de Forges; Lise Roca
Journal:  J Genet Couns       Date:  2015-09-22       Impact factor: 2.537

3.  Balancing life with an increased risk of cancer: lived experiences in healthy individuals with Lynch syndrome.

Authors:  Helle Vendel Petersen; Mef Nilbert; Inge Bernstein; Christina Carlsson
Journal:  J Genet Couns       Date:  2014-01-08       Impact factor: 2.537

4.  Peutz-Jeghers syndrome and family planning: the attitude towards prenatal diagnosis and pre-implantation genetic diagnosis.

Authors:  Margot G F van Lier; Susanne E Korsse; Elisabeth M H Mathus-Vliegen; Ernst J Kuipers; Ans M W van den Ouweland; Kathleen Vanheusden; Monique E van Leerdam; Anja Wagner
Journal:  Eur J Hum Genet       Date:  2011-08-10       Impact factor: 4.246

5.  Much more than a gene: hereditary breast and ovarian cancer, reproductive choices and family life.

Authors:  Catherine Dekeuwer; Simone Bateman
Journal:  Med Health Care Philos       Date:  2013-05

6.  Preserving the self: the process of decision making about hereditary breast cancer and ovarian cancer risk reduction.

Authors:  A Fuchsia Howard; Lynda G Balneaves; Joan L Bottorff; Patricia Rodney
Journal:  Qual Health Res       Date:  2010-10-27

7.  The Precision Medicine Nation.

Authors:  Maya Sabatello; Paul S Appelbaum
Journal:  Hastings Cent Rep       Date:  2017-07       Impact factor: 2.683

8.  Uptake of carrier testing in families after cystic fibrosis diagnosis through newborn screening.

Authors:  Belinda J McClaren; Sylvia A Metcalfe; Maryanne Aitken; R John Massie; Obioha C Ukoumunne; David J Amor
Journal:  Eur J Hum Genet       Date:  2010-05-26       Impact factor: 4.246

9.  In Different Voices: The Views of People with Disabilities about Return of Results from Precision Medicine Research.

Authors:  Maya Sabatello; Yuan Zhang; Ying Chen; Paul S Appelbaum
Journal:  Public Health Genomics       Date:  2020-04-15       Impact factor: 2.000

10.  Interest of individuals from BRCA families to participate in research studies focused on male BRCA carriers.

Authors:  Tuya Pal; Susan Vadaparampil; Jongphil Kim; Yan Xu; Sue Friedman; Steven A Narod; Kelly Metcalfe
Journal:  Fam Cancer       Date:  2013-12       Impact factor: 2.375

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