Literature DB >> 16528615

Democratising access to genetic services.

Bryn Williams-Jones1, Michael M Burgess.   

Abstract

Professional and policy discussions about the appropriate funding and allocation of health cares services are an essential part of the management of public and private health care insurance plans. However, the ability of governments and health professionals to equitably decide on the distribution of health care is being challenged by the increasing drive to patent health care technologies. Referring to the case of genetic testing for hereditary breast cancer (and Myriad Genetics' patenting of the BRCA1 & BRCA2 genes), this paper applies some concepts from moral philosophy to think through the effects of the commercialisation of genetic technologies, and what would constitute a more just and rational approach to health care decision-making, in the context of the Canadian health insurance system.

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Year:  2006        PMID: 16528615     DOI: 10.1007/s10689-005-2582-4

Source DB:  PubMed          Journal:  Fam Cancer        ISSN: 1389-9600            Impact factor:   2.375


  18 in total

1.  The illegality of private health care in Canada.

Authors:  C M Flood; T Archibald
Journal:  CMAJ       Date:  2001-03-20       Impact factor: 8.262

Review 2.  Justice, health, and healthcare.

Authors:  N Daniels
Journal:  Am J Bioeth       Date:  2001       Impact factor: 11.229

3.  Reflections: the challenge of biotechnology and public policy.

Authors:  B M Knoppers
Journal:  McGill Law J       Date:  2000-05

4.  History of a gene patent: tracing the development and application of commercial BRCA testing.

Authors:  Bryn Williams-Jones
Journal:  Health Law J       Date:  2002

5.  Limitations of direct-to-consumer advertising for clinical genetic testing.

Authors:  Sarah E Gollust; Sara Chandros Hull; Benjamin S Wilfond
Journal:  JAMA       Date:  2002-10-09       Impact factor: 56.272

6.  Public consultation in ethics: an experiment in representative ethics.

Authors:  Michael M Burgess
Journal:  J Bioeth Inq       Date:  2004       Impact factor: 1.352

7.  Breast cancer susceptibility tests still valid, companies argue.

Authors:  O Smith
Journal:  Nat Med       Date:  1997-07       Impact factor: 53.440

8.  Reluctant rationers: public input to health care priorities.

Authors:  J Lomas
Journal:  J Health Serv Res Policy       Date:  1997-04

9.  Clinical characteristics of individuals with germline mutations in BRCA1 and BRCA2: analysis of 10,000 individuals.

Authors:  Thomas S Frank; Amie M Deffenbaugh; Julia E Reid; Mark Hulick; Brian E Ward; Beth Lingenfelter; Kathi L Gumpper; Thomas Scholl; Sean V Tavtigian; Dmitry R Pruss; Gregory C Critchfield
Journal:  J Clin Oncol       Date:  2002-03-15       Impact factor: 44.544

10.  The ethics of accountability in managed care reform.

Authors:  N Daniels; J Sabin
Journal:  Health Aff (Millwood)       Date:  1998 Sep-Oct       Impact factor: 6.301

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  1 in total

Review 1.  Biobanks: importance, implications and opportunities for genetic counselors.

Authors:  Alice K Hawkins
Journal:  J Genet Couns       Date:  2010-08-03       Impact factor: 2.537

  1 in total

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