Literature DB >> 16461450

Obstacles to shared care for patients with dementia: a qualitative study.

Steve Iliffe1, Jane Wilcock, Deborah Haworth.   

Abstract

BACKGROUND: All Primary Care Trusts in England were meant to have shared care protocols for antidementia medication use in place by 1 April 2004. Shared care of medical treatment in dementia depends upon early diagnosis, but under-recognition of and under-response to dementia appear widespread in general practice. AIM: To investigate the perceptions of specialists and generalists about the potential for shared care of people with dementia. DESIGN OF STUDY: Qualitative study with semistructured interviews.
SETTING: Three inner-city and two rural areas.
METHODS: Semistructured interviews were arranged at the participants' convenience and were tape-recorded and transcribed. Thematic analysis of the anonymized transcripts was undertaken and a case and cross-case analysis was performed.
RESULTS: Thirty-nine GPs and 30 specialists were interviewed. Broad themes were reduced to following four key categories which appear to be layered over each other: therapeutic nihilism; risk reduction or avoidance; concerns about competency; and resources for shared care.
CONCLUSION: Roles for primary and secondary care professionals are inappropriately distributed and require clearer definition. Resistance to shared care mostly comes from within general practice and reflects concerns about staffing, time constraints, lack of experience and confidence in making and disclosing a diagnosis. Developers of shared care protocols must dissect layered obstacles, addressing the issues of therapeutic nihilism, risk management and clinical competence.

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Mesh:

Year:  2006        PMID: 16461450     DOI: 10.1093/fampra/cmi116

Source DB:  PubMed          Journal:  Fam Pract        ISSN: 0263-2136            Impact factor:   2.267


  20 in total

Review 1.  Caring for dementia carers: the role of general practitioners in Ireland.

Authors:  C O'Connor
Journal:  Ir J Med Sci       Date:  2011-01-29       Impact factor: 1.568

Review 2.  Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies.

Authors:  Jeanette C Prorok; Salinda Horgan; Dallas P Seitz
Journal:  CMAJ       Date:  2013-09-03       Impact factor: 8.262

3.  Improving specialist drug prescribing in primary care using task and error analysis: an observational study.

Authors:  Narinder Chana; Talya Porat; Cate Whittlesea; Brendan Delaney
Journal:  Br J Gen Pract       Date:  2017-02-13       Impact factor: 5.386

4.  The role of primary care in the recognition of and response to dementia.

Authors:  T Koch; S Iliffe
Journal:  J Nutr Health Aging       Date:  2010-02       Impact factor: 4.075

5.  The primary care physician and Alzheimer's disease: an international position paper.

Authors:  H Villars; S Oustric; S Andrieu; J P Baeyens; R Bernabei; H Brodaty; K Brummel-Smith; C Celafu; N Chappell; J Fitten; G Frisoni; L Froelich; O Guerin; G Gold; I Holmerova; S Iliffe; A Lukas; R Melis; J E Morley; H Nies; F Nourhashemi; J Petermans; J Ribera Casado; L Rubenstein; A Salva; C Sieber; A Sinclair; R Schindler; E Stephan; R Y Wong; B Vellas
Journal:  J Nutr Health Aging       Date:  2010-02       Impact factor: 4.075

Review 6.  Rapid appraisal of barriers to the diagnosis and management of patients with dementia in primary care: a systematic review.

Authors:  Tamar Koch; Steve Iliffe
Journal:  BMC Fam Pract       Date:  2010-07-01       Impact factor: 2.497

7.  Difficulties in disclosing the diagnosis of dementia: a qualitative study in general practice.

Authors:  Jill Phillips; Constance Dimity Pond; Nerida Elizabeth Paterson; Cate Howell; Allan Shell; Nigel P Stocks; Susan M Goode; John E Marley
Journal:  Br J Gen Pract       Date:  2012-08       Impact factor: 5.386

8.  Survival of people with clinical diagnosis of dementia in primary care: cohort study.

Authors:  Greta Rait; Kate Walters; Christian Bottomley; Irene Petersen; Steve Iliffe; Irwin Nazareth
Journal:  BMJ       Date:  2010-08-05

9.  The Lay Public's Understanding and Perception of Dementia in a Developed Asian Nation.

Authors:  Wai Jia Tan; Song-Iee Hong; Nan Luo; Tong Jen Lo; Philip Yap
Journal:  Dement Geriatr Cogn Dis Extra       Date:  2012-10-18

10.  A review of barriers and enablers to diagnosis and management of persons with dementia in primary care.

Authors:  Faranak Aminzadeh; Frank J Molnar; William B Dalziel; Debbie Ayotte
Journal:  Can Geriatr J       Date:  2012-09-20
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