Literature DB >> 16441330

Family decision-making for nursing home residents with dementia: rural-urban differences.

Charles E Gessert1, Barbara A Elliott, Cynthia Peden-McAlpine.   

Abstract

CONTEXT: Research has demonstrated substantial differences between end-of-life care in rural and urban settings. As the end of life approaches, rural elders are less likely to be hospitalized, to be placed in an intensive care unit, or to have a feeding tube, compared to their urban counterparts. These differences cannot be fully explained by rural-urban differences in access to medical services.
PURPOSE: To describe and understand rural-urban differences in attitudes toward death and in end-of-life decision making.
METHODS: Eight focus groups were convened in rural and urban Minnesota nursing homes. The 38 focus group participants were family members of nursing home residents with severe cognitive impairment.
FINDINGS: Most rural focus group participants voiced unqualified acceptance of death and placed few conditions on death, beyond their hope that it would be quick and peaceful. Urban respondents presented a wider range of attitudes toward death, from unambiguous acceptance of immediate death to evident discomfort with welcoming death under any circumstances. These rural-urban differences had practical implications. Rural respondents were much less likely to endorse interventions that would impede death, compared to their urban counterparts.
CONCLUSIONS: Rural respondents tended to express confidence in natural forces; death was seen as neutral or beneficent. Resistance to the approach of death was more characteristic of urban respondents, some of whom insisted upon aggressive medical care in advanced dementia.

Entities:  

Mesh:

Year:  2006        PMID: 16441330     DOI: 10.1111/j.1748-0361.2006.00013.x

Source DB:  PubMed          Journal:  J Rural Health        ISSN: 0890-765X            Impact factor:   4.333


  15 in total

1.  Does Quality of End-of-Life Care Differ by Urban-Rural Location? A Comparison of Processes and Family Evaluations of Care in the VA.

Authors:  Cindy Del Rosario; Ann Kutney-Lee; Julie Sochalski; Mary Ersek
Journal:  J Rural Health       Date:  2019-02-11       Impact factor: 4.333

2.  Life-Sustaining Treatment Decisions Initiative: Early Implementation Results of a National Veterans Affairs Program to Honor Veterans' Care Preferences.

Authors:  Cari Levy; Mary Ersek; Winifred Scott; Joan G Carpenter; Jennifer Kononowech; Ciaran Phibbs; Jill Lowry; Jennifer Cohen; Marybeth Foglia
Journal:  J Gen Intern Med       Date:  2020-02-24       Impact factor: 5.128

3.  Nursing Home Alzheimer's Special Care Units: Geographic Location Matters.

Authors:  Jessica Orth; John G Cagle
Journal:  J Am Med Dir Assoc       Date:  2021-08-17       Impact factor: 4.669

4.  The influence of nursing home culture on the use of feeding tubes.

Authors:  Ruth Palan Lopez; Elaine J Amella; Neville E Strumpf; Joan M Teno; Susan L Mitchell
Journal:  Arch Intern Med       Date:  2010-01-11

5.  'Traversing difficult terrain'. Advance care planning in residential aged care through multidisciplinary case conferences: A qualitative interview study exploring the experiences of families, staff and health professionals.

Authors:  Suzanne Rainsford; Sally Hall Dykgraaf; Rosny Kasim; Christine Phillips; Nicholas Glasgow
Journal:  Palliat Med       Date:  2021-05-21       Impact factor: 4.762

Review 6.  Rural definition of health: a systematic literature review.

Authors:  Charles Gessert; Stephen Waring; Lisa Bailey-Davis; Pat Conway; Melissa Roberts; Jeffrey VanWormer
Journal:  BMC Public Health       Date:  2015-04-14       Impact factor: 3.295

7.  Variation in Emergency Department Transfer Rates from Nursing Homes in Ontario, Canada.

Authors:  Andrea Gruneir; Susan E Bronskill; Alice Newman; Chaim M Bell; Peter Gozdyra; Geoffrey M Anderson; Paula A Rochon
Journal:  Healthc Policy       Date:  2016-11

8.  Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies.

Authors:  Marcus Sellars; Olivia Chung; Linda Nolte; Allison Tong; Dimity Pond; Deirdre Fetherstonhaugh; Fran McInerney; Craig Sinclair; Karen M Detering
Journal:  Palliat Med       Date:  2018-11-08       Impact factor: 4.762

9.  Palliative and end-of-life care for people living with dementia in rural areas: A scoping review.

Authors:  Valerie Elliot; Debra Morgan; Julie Kosteniuk; Melanie Bayly; Amanda Froehlich Chow; Allison Cammer; Megan E O'Connell
Journal:  PLoS One       Date:  2021-01-14       Impact factor: 3.240

Review 10.  Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis.

Authors:  Nathan Davies; Laura Maio; Greta Rait; Steve Iliffe
Journal:  Palliat Med       Date:  2014-03-13       Impact factor: 4.762

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