Literature DB >> 16435327

A cascade of disparities: health and health care access for people with intellectual disabilities.

Gloria L Krahn1, Laura Hammond, Anne Turner.   

Abstract

People with ID represent approximately 2% of the population and, as a group, experience poorer health than the general population. This article presents recent conceptualizations that begin to disentangle health from disability, summarizes the literature from 1999 to 2005 in terms of the cascade of disparities, reviews intervention issues and promising practices, and provides recommendations for future action and research. The reconceptualization of health and disability examines health disparity in terms of the determinants of health (genetic, social circumstances, environment, individual behaviors, health care access) and types of health conditions (associated, comorbid, secondary). The literature is summarized in terms of a cascade of disparities experienced by people with ID, including a higher prevalence of adverse conditions, inadequate attention to care needs, inadequate focus on health promotion, and inadequate access to quality health care services. Promising practices are reviewed from the perspective of persons with ID, providers of care and services, and policies that influence systems of care. Recommendations across multiple countries and organizations are synthesized as guidelines to direct future action. They call for promoting principles of early identification, inclusion, and self-determination of people with ID; reducing the occurrence and impact of associated, comorbid, and secondary conditions; empowering caregivers and family members; promoting healthy behaviors in people with ID; and ensuring equitable access to quality health care by people with ID. Their broadscale implementations would begin to reduce the health disparity experienced by people with ID. (c) 2006 Wiley-Liss, Inc.

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Mesh:

Year:  2006        PMID: 16435327     DOI: 10.1002/mrdd.20098

Source DB:  PubMed          Journal:  Ment Retard Dev Disabil Res Rev        ISSN: 1080-4013


  119 in total

1.  Place of residence affects routine dental care in the intellectually and developmentally disabled adult population on Medicaid.

Authors:  Julie Bershadsky; Robert L Kane
Journal:  Health Serv Res       Date:  2010-10       Impact factor: 3.402

2.  Birth outcomes among US women with intellectual and developmental disabilities.

Authors:  Ilhom Akobirshoev; Susan L Parish; Monika Mitra; Eliana Rosenthal
Journal:  Disabil Health J       Date:  2017-04-06       Impact factor: 2.554

3.  Health and problem behavior among people with intellectual disabilities.

Authors:  Michael E May; Craig H Kennedy
Journal:  Behav Anal Pract       Date:  2010

4.  Patient-centred primary care of adults with severe and profound intellectual and developmental disabilities: Patient-caregiver-physician relationship.

Authors:  Katherine Stringer; Amanda L Terry; Bridget L Ryan; Andrea Pike
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

5.  Prevention of secondary conditions in fetal alcohol spectrum disorders: identification of systems-level barriers.

Authors:  Christie L M Petrenko; Naira Tahir; Erin C Mahoney; Nancy P Chin
Journal:  Matern Child Health J       Date:  2014-08

6.  Determinants of cervical cancer screening among women with intellectual disabilities: evidence from medical records.

Authors:  Susan L Parish; Jamie G Swaine; Esther Son; Karen Luken
Journal:  Public Health Rep       Date:  2013 Nov-Dec       Impact factor: 2.792

7.  Including Youth with Intellectual Disabilities in Health Promotion Research: Development and Reliability of a Structured Interview to Assess the Correlates of Physical Activity among Youth.

Authors:  Carol Curtin; Linda G Bandini; Aviva Must; Sarah Phillips; Melissa C T Maslin; Charmaine Lo; James M Gleason; Richard K Fleming; Heidi I Stanish
Journal:  J Appl Res Intellect Disabil       Date:  2015-07-14

8.  Care of adults with developmental disabilities: Effects of a continuing education course for primary care providers.

Authors:  Robert Balogh; Jessica Wood; Yona Lunsky; Barry Isaacs; Hélène Ouellette-Kuntz; William Sullivan
Journal:  Can Fam Physician       Date:  2015-07       Impact factor: 3.275

9.  "You can't be cold and scientific": community views on ethical issues in intellectual disability research.

Authors:  Katherine E McDonald; Nicole M Schwartz; Colleen M Gibbons; Robert S Olick
Journal:  J Empir Res Hum Res Ethics       Date:  2015-03-13       Impact factor: 1.742

10.  Promoting Healthy Aging of Individuals With Developmental Disabilities: A Qualitative Case Study.

Authors:  Anne E Roll; Barbara J Bowers
Journal:  West J Nurs Res       Date:  2016-09-25       Impact factor: 1.967

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