Literature DB >> 16401680

Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way?

Avani C Modi1, Alexandra L Quittner.   

Abstract

OBJECTIVES: The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence.
METHODS: Participants included 73 children with CF or asthma and their parents. The mean age of the sample was 9.9 years, and 58% were males.
RESULTS: Results indicated that barriers were quite similar by illness and informant (e.g., parent and child) for the same treatments, but unique barriers were identified for disease-specific treatments. Frequently mentioned barriers across diseases included forgetting, oppositional behaviors, and difficulties with time management. Trends were identified between adherence and barriers, suggesting that a greater number of barriers were related to poorer adherence.
CONCLUSION: Overall, this study provided evidence that patients and their parents experience specific barriers within the context of their own illness and highlights the need for disease-specific measures and interventions.

Entities:  

Mesh:

Year:  2006        PMID: 16401680     DOI: 10.1093/jpepsy/jsj096

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  73 in total

1.  Development and validation of the Pediatric Epilepsy Medication Self-Management Questionnaire.

Authors:  Avani C Modi; Sally Monahan; Dee Daniels; Tracy A Glauser
Journal:  Epilepsy Behav       Date:  2010-05-08       Impact factor: 2.937

2.  Adolescence: what the cystic fibrosis team needs to know.

Authors:  Terry Y Segal
Journal:  J R Soc Med       Date:  2008-07       Impact factor: 5.344

Review 3.  Developmental and psychosocial issues in cystic fibrosis.

Authors:  Michelle M Ernst; Mark C Johnson; Lori J Stark
Journal:  Child Adolesc Psychiatr Clin N Am       Date:  2010-04

4.  High treatment burden in adults with cystic fibrosis: challenges to disease self-management.

Authors:  Gregory S Sawicki; Deborah E Sellers; Walter M Robinson
Journal:  J Cyst Fibros       Date:  2008-10-26       Impact factor: 5.482

5.  Barriers to asthma self-management in adolescents: Relationships to psychosocial factors.

Authors:  Hyekyun Rhee; Michael J Belyea; Susan Ciurzynski; Judith Brasch
Journal:  Pediatr Pulmonol       Date:  2009-02

6.  Barriers to oral medication adherence for adolescents with inflammatory bowel disease.

Authors:  Lisa M Ingerski; Robert N Baldassano; Lee A Denson; Kevin A Hommel
Journal:  J Pediatr Psychol       Date:  2009-09-23

7.  Family functioning in the context of pediatric chronic conditions.

Authors:  Michele Herzer; Neha Godiwala; Kevin A Hommel; Kimberly Driscoll; Monica Mitchell; Lori E Crosby; Carrie Piazza-Waggoner; Meg H Zeller; Avani C Modi
Journal:  J Dev Behav Pediatr       Date:  2010-01       Impact factor: 2.225

8.  Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives.

Authors:  Kristen K Marciel; Lisa Saiman; Lynne M Quittell; Kevin Dawkins; Alexandra L Quittner
Journal:  Pediatr Pulmonol       Date:  2010-02

Review 9.  Measuring and improving respiratory outcomes in cystic fibrosis lung disease: opportunities and challenges to therapy.

Authors:  Edith T Zemanick; J Kirk Harris; Steven Conway; Michael W Konstan; Bruce Marshall; Alexandra L Quittner; George Retsch-Bogart; Lisa Saiman; Frank J Accurso
Journal:  J Cyst Fibros       Date:  2009-10-14       Impact factor: 5.482

10.  Preliminary feasibility, acceptability, and efficacy of an innovative adherence intervention for children with newly diagnosed epilepsy.

Authors:  Avani C Modi; Shanna M Guilfoyle; Joseph Rausch
Journal:  J Pediatr Psychol       Date:  2013-04-23
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