Literature DB >> 23613481

Preliminary feasibility, acceptability, and efficacy of an innovative adherence intervention for children with newly diagnosed epilepsy.

Avani C Modi1, Shanna M Guilfoyle, Joseph Rausch.   

Abstract

OBJECTIVE: To report acceptability, feasibility, and preliminary efficacy from a randomized controlled trial of a family-tailored adherence intervention (AI) targeting nonadherence to antiepileptic drugs in pediatric new-onset epilepsy.
METHOD: 30 children with new-onset epilepsy (7.2 ± 3.1 years old, 47% male) and their caregivers participated. At baseline, participants were given adherence electronic monitors. After a 1-month run-in period, participants with good adherence (≥90%) were monitored. Participants with adherence <90% were randomized to the AI or Treatment-As-Usual (TAU) group. The AI group received four adherence promotion intervention sessions over >2 months. Follow-up adherence data were collected.
RESULTS: 8 families were randomized (AI, n = 4; TAU, n = 4). Families perceived AI to be feasible and acceptable. Preliminary results demonstrated that the AI group had improved adherence from baseline to post-test.
CONCLUSIONS: A family-tailored AI appears promising and needs to be tested with a larger pediatric epilepsy sample.

Entities:  

Keywords:  adherence; chronic illness; neurological disorders; randomized controlled trial

Mesh:

Substances:

Year:  2013        PMID: 23613481      PMCID: PMC3701128          DOI: 10.1093/jpepsy/jst021

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  37 in total

Review 1.  Treatment adherence in chronic disease.

Authors:  J Dunbar-Jacob; M K Mortimer-Stephens
Journal:  J Clin Epidemiol       Date:  2001-12       Impact factor: 6.437

2.  Adjustment in children with intractable epilepsy: importance of seizure duration and family factors.

Authors:  Christopher G McCusker; Patrick John Kennedy; Jennifer Anderson; Elaine M Hicks; Donncha Hanrahan
Journal:  Dev Med Child Neurol       Date:  2002-10       Impact factor: 5.449

3.  The effects of refractory epilepsy on intellectual functioning in children and adults. A longitudinal study.

Authors:  H Bjørnaes; K Stabell; O Henriksen; Y Løyning
Journal:  Seizure       Date:  2001-06       Impact factor: 3.184

4.  The cost of epilepsy in the United States: an estimate from population-based clinical and survey data.

Authors:  C E Begley; M Famulari; J F Annegers; D R Lairson; T F Reynolds; S Coan; S Dubinsky; M E Newmark; C Leibson; E L So; W A Rocca
Journal:  Epilepsia       Date:  2000-03       Impact factor: 5.864

5.  Behavior therapy for families of adolescents with diabetes: maintenance of treatment effects.

Authors:  T Wysocki; P Greco; M A Harris; J Bubb; N H White
Journal:  Diabetes Care       Date:  2001-03       Impact factor: 19.112

6.  Intelligence in childhood epilepsy syndromes.

Authors:  Melinda A Nolan; M Antoinette Redoblado; Suncica Lah; Mark Sabaz; John A Lawson; Anne M Cunningham; Andrew F Bleasel; Ann M E Bye
Journal:  Epilepsy Res       Date:  2003-02       Impact factor: 3.045

7.  Pattern of diagnostic and therapeutic care of childhood epilepsy in Alexandria, Egypt.

Authors:  Amal Bassili; Tarek Omar; Adel Zaki; Moataz Abdel-Fattah; Gianni Tognoni
Journal:  Int J Qual Health Care       Date:  2002-08       Impact factor: 2.038

8.  Uninformed clinical decisions resulting from lack of adherence assessment in children with new-onset epilepsy.

Authors:  Avani C Modi; Yelena P Wu; Shanna M Guilfoyle; Tracy A Glauser
Journal:  Epilepsy Behav       Date:  2012-11-13       Impact factor: 2.937

9.  Patient adherence and medical treatment outcomes: a meta-analysis.

Authors:  M Robin DiMatteo; Patrick J Giordani; Heidi S Lepper; Thomas W Croghan
Journal:  Med Care       Date:  2002-09       Impact factor: 2.983

10.  Patient compliance in rheumatoid arthritis, polymyalgia rheumatica, and gout.

Authors:  Erik de Klerk; Désirée van der Heijde; Robert Landewé; Hille van der Tempel; John Urquhart; Sjef van der Linden
Journal:  J Rheumatol       Date:  2003-01       Impact factor: 4.666

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  24 in total

Review 1.  Strategies for improving adherence to antiepileptic drug treatment in people with epilepsy.

Authors:  Sinaa Al-Aqeel; Olga Gershuni; Jawza Al-Sabhan; Mickael Hiligsmann
Journal:  Cochrane Database Syst Rev       Date:  2017-02-03

2.  Interventions to Promote Oral Medication Adherence in the Pediatric Chronic Illness Population: A Systematic Review From the Children's Oncology Group.

Authors:  Kelly D Coyne; Katherine A Trimble; Ashley Lloyd; Laura Petrando; Jennie Pentz; Kari Van Namen; Andrea Fawcett; Catherine M Laing
Journal:  J Pediatr Oncol Nurs       Date:  2019-04-04       Impact factor: 1.636

3.  Adherence barriers in pediatric epilepsy: From toddlers to young adults.

Authors:  Ana M Gutierrez-Colina; Aimee W Smith; Constance A Mara; Avani C Modi
Journal:  Epilepsy Behav       Date:  2018-02-09       Impact factor: 2.937

4.  Parent and family stress factors predict health-related quality in pediatric patients with new-onset epilepsy.

Authors:  Yelena P Wu; Katherine Follansbee-Junger; Joseph Rausch; Avani Modi
Journal:  Epilepsia       Date:  2014-03-27       Impact factor: 5.864

5.  A pilot randomized controlled clinical trial to improve antiepileptic drug adherence in young children with epilepsy.

Authors:  Avani C Modi; Shanna M Guilfoyle; Krista A Mann; Joseph R Rausch
Journal:  Epilepsia       Date:  2015-12-23       Impact factor: 5.864

6.  Antiepileptic drug nonadherence predicts pediatric epilepsy seizure outcomes.

Authors:  Avani C Modi; Yelena P Wu; Joseph R Rausch; James L Peugh; Tracy A Glauser
Journal:  Neurology       Date:  2014-10-29       Impact factor: 9.910

7.  Supporting Treatment Adherence Regimens in young children with epilepsy and their families: Trial design and baseline characteristics.

Authors:  Avani C Modi; Tracy A Glauser; Shanna M Guilfoyle
Journal:  Contemp Clin Trials       Date:  2020-02-14       Impact factor: 2.226

8.  Outcome of Newly Diagnosed Epilepsy in Children: "Drugs Don't Work in Patients Who Don't [Always] Take Them".

Authors:  Dale C Hesdorffer
Journal:  Epilepsy Curr       Date:  2015 Mar-Apr       Impact factor: 7.500

9.  Predictors of trajectories of epilepsy-specific quality of life among children newly diagnosed with epilepsy.

Authors:  Rachelle R Ramsey; Kristin Loiselle; Joseph R Rausch; Jordan Harrison; Avani C Modi
Journal:  Epilepsy Behav       Date:  2016-03-12       Impact factor: 2.937

Review 10.  Psychological treatments for people with epilepsy.

Authors:  Rosa Michaelis; Venus Tang; Janelle L Wagner; Avani C Modi; William Curt LaFrance; Laura H Goldstein; Tobias Lundgren; Markus Reuber
Journal:  Cochrane Database Syst Rev       Date:  2017-10-27
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