Literature DB >> 16322157

Thirty-six-month outcomes for families of children who have disabilities and participated in early intervention.

Donald B Bailey1, Kathleen Hebbeler, Donna Spiker, Anita Scarborough, Sangeeta Mallik, Lauren Nelson.   

Abstract

OBJECTIVE: Infants and toddlers with disabilities in the United States and their families are eligible for early intervention services under Part C of the Individuals With Disabilities Education Act. The purpose of this study was to assess family outcomes at the end of early intervention (near the child's third birthday).
METHODS: A nationally representative sample of 2586 parents in 20 states completed a 40-minute telephone interview on or near their child's third birthday. This article summarizes data related to perceived family outcomes at the end of early intervention.
RESULTS: At the end of early intervention, most parents felt competent in caring for their children, advocating for services, and gaining access to formal and informal supports. They also were generally optimistic about the future. Most (82%) parents believed that their family was better off as a result of early intervention. Parents were somewhat less positive in their perceived ability to deal with their child's behavior problems or gain access to community resources, and lower family outcome scores were found for parents of minority children, children with health problems, and children who were living with a single adult.
CONCLUSION: Results suggest that Part C early intervention provides important supports for families of young children with disabilities. The findings reinforce the need for experimental research to identify factors that are most likely to lead to successful outcomes for all families. In the meantime, early identification and expeditious referral are important so that maximum benefit can be realized for children with disabilities and their families.

Entities:  

Mesh:

Year:  2005        PMID: 16322157     DOI: 10.1542/peds.2004-1239

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  19 in total

1.  Part C Early Intervention Enrollment in Low Birth Weight Infants At-Risk for Developmental Delays.

Authors:  Kristi L Atkins; Susanne W Duvall; Jill K Dolata; Patricia M Blasco; Sage N Saxton
Journal:  Matern Child Health J       Date:  2017-02

Review 2.  Developmental Support for Infants With Genetic Disorders.

Authors:  Monica H Wojcik; Jane E Stewart; Susan E Waisbren; Jonathan S Litt
Journal:  Pediatrics       Date:  2020-05       Impact factor: 7.124

Review 3.  Racial, ethnic, and language disparities in early childhood developmental/behavioral evaluations: a narrative review.

Authors:  Katharine E Zuckerman; Kimber M Mattox; Brianna K Sinche; Gregory S Blaschke; Christina Bethell
Journal:  Clin Pediatr (Phila)       Date:  2013-09-10       Impact factor: 1.168

Review 4.  Global perspective on early diagnosis and intervention for children with developmental delays and disabilities.

Authors:  Alfred L Scherzer; Meera Chhagan; Shuaib Kauchali; Ezra Susser
Journal:  Dev Med Child Neurol       Date:  2012-07-13       Impact factor: 5.449

5.  Current survey of early childhood intervention services in infants and young children with sex chromosome aneuploidies.

Authors:  Talia Thompson; Susan Howell; Shanlee Davis; Rebecca Wilson; Jennifer Janusz; Richard Boada; Laura Pyle; Nicole Tartaglia
Journal:  Am J Med Genet C Semin Med Genet       Date:  2020-05-25       Impact factor: 3.908

6.  Availing services for developmental disabilities: parental experiences from a referral center in developing country.

Authors:  Monica Juneja; Rahul Jain; Swati Singhal; Devendra Mishra
Journal:  Indian J Pediatr       Date:  2011-12-17       Impact factor: 1.967

7.  Missed opportunities in the referral of high-risk infants to early intervention.

Authors:  Brian G Tang; Heidi M Feldman; Lynne C Huffman; Kimie J Kagawa; Jeffrey B Gould
Journal:  Pediatrics       Date:  2012-05-21       Impact factor: 7.124

8.  Accuracy of Modified Checklist for Autism in Toddlers (M-CHAT) in Detecting Autism and Other Developmental Disorders in Community Clinics.

Authors:  Teck-Hock Toh; Vivian Wee-Yen Tan; Peter Sie-Teck Lau; Andrew Kiyu
Journal:  J Autism Dev Disord       Date:  2018-01

9.  Using linked data to assess patterns of early intervention (EI) referral among very low birth weight infants.

Authors:  Wanda D Barfield; Karen M Clements; Kimberly G Lee; Milton Kotelchuck; Nancy Wilber; Paul H Wise
Journal:  Matern Child Health J       Date:  2007-06-12

10.  Getting ready for preschool: linking early intervention and family mental health for infants and toddlers with developmental delay.

Authors:  Daniel M Bagner; Stacy L Frazier; Michelle Berkovits
Journal:  Adm Policy Ment Health       Date:  2014-11
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