Literature DB >> 16320721

Multiple sclerosis management for low-income minorities.

Debra Shabas1, Megan Heffner.   

Abstract

Low-income minorities with complex chronic diseases and physical disabilities have difficulty accessing appropriate healthcare often resulting in suboptimal care. A survey was performed to determine the impact of cultural and socioeconomic factors on the quality of care for low-income minorities with multiple sclerosis (MS) enrolled in Independence Care System (ICS), a Medicaid long-term managed care plan. All 92 ICS members with a diagnosis of MS were surveyed on three aspects of their care: specialty contact, immunomodulating drug therapy and osteoporosis prevention. Of those surveyed, 32% were never seen by an MS specialist. One third were not taking immunomodulatory medications, primarily due to noncompliance caused by a lack of understanding about these drugs. The prevention of osteoporosis and potential fracture in this high-risk population was largely neglected by providers despite the fact that the majority of those surveyed also reported balance difficulties and a history of falling. The survey revealed several deficiencies in the care of low-income minorities with MS. A major issue was the lack of adequate education, particularly about the immunomodulating drugs. Education about the importance of osteoporosis prevention, falls mitigation programmes and rehabilitation evaluations are critical interventions to decrease the risk of fracture.

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Year:  2005        PMID: 16320721     DOI: 10.1191/1352458505ms1215oa

Source DB:  PubMed          Journal:  Mult Scler        ISSN: 1352-4585            Impact factor:   6.312


  14 in total

Review 1.  Ethical Considerations of Patient-Funded Research for Multiple Sclerosis Therapeutics.

Authors:  Lilyana Amezcua; Flavia Nelson
Journal:  Neurotherapeutics       Date:  2017-10       Impact factor: 7.620

2.  Place of birth,age of immigration,and disability in Hispanics with multiple sclerosis.

Authors:  Lilyana Amezcua; David V Conti; Lihua Liu; Karina Ledezma; Annette M Langer-Goulda
Journal:  Mult Scler Relat Disord       Date:  2015-01       Impact factor: 4.339

3.  Multiple sclerosis in US minority populations: Clinical practice insights.

Authors:  Omar Khan; Mitzi J Williams; Lilyana Amezcua; Adil Javed; Kristin E Larsen; Jennifer M Smrtka
Journal:  Neurol Clin Pract       Date:  2015-04

4.  Perceptions of Multiple Sclerosis in Hispanic Americans: Need for Targeted Messaging.

Authors:  Ozioma Obiwuru; Sarah Joseph; Lihua Liu; Ana Palomeque; Leslie Tarlow; Annette M Langer-Gould; Lilyana Amezcua
Journal:  Int J MS Care       Date:  2017 May-Jun

5.  Bone mineral density in ambulatory patients with multiple sclerosis.

Authors:  Chrissa Sioka; Stylianos Papakonstantinou; Andreas Fotopoulos; Yiannis Alamanos; Athanasia Georgiou; Sofia Tsouli; Sygliti-Henrietta Pelidou; Athanassios P Kyritsis; John Kalef-Ezra
Journal:  Neurol Sci       Date:  2011-05-18       Impact factor: 3.307

6.  Perceptions and Preferences Regarding Multiple Sclerosis Research Among Racial and Ethnic Groups.

Authors:  Daniela A Pimentel Maldonado; April Moreno; Mitzi J Williams; Lilyana Amezcua; Shawn Feliciano; Anita Williams; Daniel Machemer; Terrie Livingston; Monique LaRocque; Melissa Glim; Hollie Schmidt
Journal:  Int J MS Care       Date:  2021-01-12

Review 7.  Advancing Care and Outcomes for African American Patients With Multiple Sclerosis.

Authors:  Annette F Okai; Annette M Howard; Mitzi J Williams; Justine D Brink; Chiayi Chen; Tamela L Stuchiner; Elizabeth Baraban; Grace Jeong; Stanley L Cohan
Journal:  Neurology       Date:  2022-04-25       Impact factor: 11.800

8.  A cross-sectional study of bone health in multiple sclerosis.

Authors:  Ruth Ann Marrie; Gary Cutter; Tuula Tyry; Timothy Vollmer
Journal:  Neurology       Date:  2009-10-27       Impact factor: 9.910

Review 9.  Race and ethnicity on MS presentation and disease course.

Authors:  Lilyana Amezcua; Jacob L McCauley
Journal:  Mult Scler       Date:  2020-01-22       Impact factor: 6.312

10.  Clinical predictors of early second event in patients with clinically isolated syndrome.

Authors:  Ellen M Mowry; Mila Pesic; Barbara Grimes; Serina R Deen; Peter Bacchetti; Emmanuelle Waubant
Journal:  J Neurol       Date:  2009-03-01       Impact factor: 4.849

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