Literature DB >> 16139466

Support provision and emotional work in an Internet support group for cancer patients.

Helen R Winefield1.   

Abstract

OBJECTIVE: The study examined the content and frequency of messages to an Internet support group, using a conceptual framework based on support-giving and emotional work. The main questions addressed concerned what correspondents seem to be gaining from their involvement and whether the high-frequency correspondents differ motivationally from the lower-frequency correspondents.
METHODS: Messages to an Internet support group for women with breast cancer were collected over 12 months. The number of contributions written by individual correspondents could be determined. Messages were reliably coded for their main themes in terms of seeking or providing support.
RESULTS: The majority of correspondents (94%) wrote fewer than 10 messages. Two high-frequency correspondents emerged whose messages significantly less often referred to seeking and more often to providing support than did the messages of the less-frequent correspondents. These volunteer emotion workers both reported gaining personal satisfaction from their role.
CONCLUSION: The high-frequency correspondents act as informal volunteer emotion workers for the other users, and valuably supplement the role of the group's initiators. Further research is needed on how to amplify the psychological rewards for volunteer emotion workers in online support groups for adults with cancer. PRACTICE IMPLICATIONS: Volunteer assistants in electronic groups may be crucial to the sustainability of online support initiatives.

Entities:  

Mesh:

Year:  2005        PMID: 16139466     DOI: 10.1016/j.pec.2005.07.002

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  9 in total

1.  Predictors of supportive message expression and reception in an interactive cancer communication system.

Authors:  Eunkyung Kim; Jeong Yeob Han; Dhavan Shah; Bret Shaw; Fiona McTavish; David H Gustafson; David Fan
Journal:  J Health Commun       Date:  2011-06-22

2.  Communicating about self and others within an online support group for women with breast cancer and subsequent outcomes.

Authors:  Bret R Shaw; Robert P Hawkins; Fiona M McTavish; David H Gustafson
Journal:  J Health Psychol       Date:  2008-10

3.  Giving and Receiving Emotional Support Online: Communication Competence as a Moderator of Psychosocial Benefits for Women with Breast Cancer.

Authors:  Woohyun Yoo; Kang Namkoong; Mina Choi; Dhavan V Shah; Stephanie Tsang; Yangsun Hong; Michael Aguilar; David H Gustafson
Journal:  Comput Human Behav       Date:  2014-01

4.  Microaggression clues from social media: revealing and counteracting the suppression of women's health care.

Authors:  Hyeyoung Ryu; Wanda Pratt
Journal:  J Am Med Inform Assoc       Date:  2022-01-12       Impact factor: 4.497

5.  Content and frequency of writing on diabetes bulletin boards: does race make a difference?

Authors:  Siobhan Case; Valarie Jernigan; Audra Gardner; Philip Ritter; Catherine A Heaney; Kate R Lorig
Journal:  J Med Internet Res       Date:  2009-06-24       Impact factor: 5.428

6.  Threading together patient expertise.

Authors:  Andrea Civan; Wanda Pratt
Journal:  AMIA Annu Symp Proc       Date:  2007-10-11

7.  Managing the personal side of health: how patient expertise differs from the expertise of clinicians.

Authors:  Andrea Hartzler; Wanda Pratt
Journal:  J Med Internet Res       Date:  2011-08-16       Impact factor: 5.428

8.  Analyzing hidden populations online: topic, emotion, and social network of HIV-related users in the largest Chinese online community.

Authors:  Chuchu Liu; Xin Lu
Journal:  BMC Med Inform Decis Mak       Date:  2018-01-05       Impact factor: 2.796

9.  The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups.

Authors:  Sadaf Ashtari; Adam Daniel Taylor
Journal:  J Med Internet Res       Date:  2022-08-25       Impact factor: 7.076

  9 in total

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