Literature DB >> 16131558

Paying research participants: a study of current practices in Australia.

C L Fry1, A Ritter, S Baldwin, K J Bowen, P Gardiner, T Holt, R Jenkinson, J Johnston.   

Abstract

OBJECTIVE: To examine current research payment practices and to inform development of clearer guidelines for researchers and ethics committees.
DESIGN: Exploratory email based questionnaire study of current research participant reimbursement practices. A diverse sample of organisations and individuals were targeted.
SETTING: Australia. PARTICIPANTS: Contacts in 84 key research organisations and select electronic listservers across Australia. A total of 100 completed questionnaires were received with representations from a variety of research areas (for example, market, alcohol and drug, medical, pharmaceutical and social research). MAIN MEASUREMENTS: Open-ended and fixed alternative questions about type of research agency; type of research; type of population under study; whether payment is standard; amounts and mechanisms of payment; factors taken into account when deciding on payment practices; and whether payment policies exist.
RESULTS: Reimbursement practice is highly variable. Where it occurs (most commonly for drug dependent rather than health professional or general population samples) it is largely monetary and is for time and out-of-pocket expenses. Ethics committees were reported to be often involved in decision making around reimbursement.
CONCLUSIONS: Research subject payment practices vary in Australia. Researchers who do provide payments to research participants generally do so without written policy and procedures. Ethics committees have an important role in developing guidelines in this area. Specific guidelines are needed considering existing local policies and procedures; payment models and their application in diverse settings; case study examples of types and levels of reimbursement; applied definitions of incentive and inducement; and the rationale for diverse payment practices in different settings.

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach

Mesh:

Year:  2005        PMID: 16131558      PMCID: PMC1734228          DOI: 10.1136/jme.2004.009290

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  8 in total

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Authors:  N Dickert; C Grady
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2.  The effects of variations in mode of delivery and monetary incentive on physicians' responses to a mailed survey assessing STD practice patterns.

Authors:  D Kasprzyk; D E Montaño; J S St Lawrence; W R Phillips
Journal:  Eval Health Prof       Date:  2001-03       Impact factor: 2.651

3.  How much are subjects paid to participate in research?

Authors:  J Latterman; J F Merz
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4.  Paying research subjects: an analysis of current policies.

Authors:  Neal Dickert; Ezekiel Emanuel; Christine Grady
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5.  Guinea pigs on the payroll: the ethics of paying research subjects.

Authors:  Trudo Lemmens; Carl Elliott
Journal:  Account Res       Date:  1999       Impact factor: 2.622

6.  National practices regarding payment to research subjects for participating in pediatric research.

Authors:  Kathryn L Weise; Martin L Smith; Karen J Maschke; H Liesel Copeland
Journal:  Pediatrics       Date:  2002-09       Impact factor: 7.124

7.  Research incentives: money versus gifts.

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8.  For love or money? An exploratory study of why injecting drug users participate in research.

Authors:  C Fry; R Dwyer
Journal:  Addiction       Date:  2001-09       Impact factor: 6.526

  8 in total
  15 in total

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Review 2.  Developing Data Sharing Models for Health Research with Real-World Data: A Scoping Review of Patient and Public Preferences.

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Journal:  Train Educ Prof Psychol       Date:  2020-02

5.  Bioethical Issues in Providing Financial Incentives to Research Participants.

Authors:  David B Resnik
Journal:  Medicoleg Bioeth       Date:  2015-06-24

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Authors:  Ilios Kotsou; Christophe Leys
Journal:  PLoS One       Date:  2016-04-14       Impact factor: 3.240

8.  "We're checking them out": Indigenous and non-Indigenous research participants' accounts of deciding to be involved in research.

Authors:  Marilys Guillemin; Lynn Gillam; Emma Barnard; Paul Stewart; Hannah Walker; Doreen Rosenthal
Journal:  Int J Equity Health       Date:  2016-01-16

9.  Women's reasons for participation in a clinical trial for menstrual pain: a qualitative study.

Authors:  Susanne Blödt; Claudia M Witt; Christine Holmberg
Journal:  BMJ Open       Date:  2016-12-13       Impact factor: 2.692

10.  Willingness to Participate and Associated Factors in a Zika Vaccine Trial in Indonesia: A Cross-Sectional Study.

Authors:  Harapan Harapan; Mudatsir Mudatsir; Amanda Yufika; Yusuf Nawawi; Nur Wahyuniati; Samsul Anwar; Fitria Yusri; Novi Haryanti; Nanda Putri Wijayanti; Rizal Rizal; Devi Fitriani; Nurul Fadhliati Maulida; Muhammad Syahriza; Ikram Ikram; Try Purwo Fandoko; Muniati Syahadah; Febrivan Wahyu Asrizal; Kurnia F Jamil; Yogambigai Rajamoorthy; Abram Luther Wagner; David Alexander Groneberg; Ulrich Kuch; Ruth Müller; R Tedjo Sasmono; Allison Imrie
Journal:  Viruses       Date:  2018-11-18       Impact factor: 5.048

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