Literature DB >> 16079362

Striving to survive: families' lived experiences when a child is diagnosed with cancer.

Maria Björk1, Thomas Wiebe, Inger Hallström.   

Abstract

When a child is ill with cancer, this affects the whole family for long periods. The aim of this study was to elucidate the family's lived experience when a child in the family was diagnosed with cancer. A descriptive inductive design with a hermeneutic phenomenological approach including interviews with 17 families (parents, children, and siblings) was chosen. The families' lived experience was described as a 2-fold essential theme comprising "a broken life world" and an immediate "striving to survive." The families' secure everyday life disappeared and was replaced by fear, chaos, and loneliness. When striving to make the child and the family survive, family members strove to feel hope and have a positive focus, to gain control, and to feel close to other people. Phenomenological human science research can deepen the understanding of the meaning of being a family with a child who is ill with cancer and can help pediatric oncology staff become increasingly thoughtful, and thus better prepared to take action to diminish the chaos occurring in the family.

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Mesh:

Year:  2005        PMID: 16079362     DOI: 10.1177/1043454205279303

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  16 in total

1.  Patterns of family relationships in pediatric oncology: implications for children's adjustment upon treatment completion.

Authors:  Nour Al Ghriwati; May Albee; Cole Brodsky; Matthew C Hocking
Journal:  Support Care Cancer       Date:  2021-05-12       Impact factor: 3.603

Review 2.  Fertility Preservation after a Cancer Diagnosis: A Systematic Review of Adolescents', Parents', and Providers' Perspectives, Experiences, and Preferences.

Authors:  Julia F Taylor; Mary A Ott
Journal:  J Pediatr Adolesc Gynecol       Date:  2016-04-21       Impact factor: 1.814

3.  Putting patient participation into practice in pediatrics-results from a qualitative study in pediatric oncology.

Authors:  Katharina Maria Ruhe; Tenzin Wangmo; Eva De Clercq; Domnita Oana Badarau; Marc Ansari; Thomas Kühne; Felix Niggli; Bernice Simone Elger
Journal:  Eur J Pediatr       Date:  2016-08-01       Impact factor: 3.183

Review 4.  Family adjustment to childhood cancer: a systematic review.

Authors:  Kristin A Long; Anna L Marsland
Journal:  Clin Child Fam Psychol Rev       Date:  2011-03

5.  Grandparents of children with cancer: a controlled comparison of perceived family functioning.

Authors:  Lauren Kelada; C E Wakefield; E L Doolan; D Drew; L Wiener; G Michel; R J Cohn
Journal:  Support Care Cancer       Date:  2018-09-18       Impact factor: 3.603

6.  Sense of coherence over time for parents with a child diagnosed with cancer.

Authors:  Ingrid Bergh; Maria Björk
Journal:  BMC Pediatr       Date:  2012-06-21       Impact factor: 2.125

7.  Challenges of children with cancer and their mothers: A qualitative research.

Authors:  Negar Reisi-Dehkordi; Hajar Baratian; Ali Zargham-Boroujeni
Journal:  Iran J Nurs Midwifery Res       Date:  2014-07

8.  Predictors of stress of parents of a child with cancer: a Jordanian perspective.

Authors:  Rami Masa'Deh; Jacqueline Collier; Carol Hall; Fadwa Alhalaiqa
Journal:  Glob J Health Sci       Date:  2013-09-04

9.  The Many Roles of the Rock: A Qualitative Inquiry into the Roles and Responsibilities of Fathers of Children with Brain Tumors.

Authors:  Jacob E Robinson; David Huskey; Jonathan Schwartz; Meaghann S Weaver
Journal:  Children (Basel)       Date:  2019-10-11

10.  Parental stress when caring for a child with cancer in Jordan: a cross-sectional survey.

Authors:  Rami Masa'Deh; Jacqueline Collier; Carol Hall
Journal:  Health Qual Life Outcomes       Date:  2012-07-28       Impact factor: 3.186

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