Literature DB >> 16020855

Survey of informed consent for registration of congenital anomalies in Europe.

Araceli Busby1, Annukka Ritvanen, Helen Dolk, Nicola Armstrong, Hermien De Walle, Isolina Riaño-Galán, Miriam Gatt, Robert McDonnell, Vera Nelen, David Stone.   

Abstract

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach; Legal Approach

Mesh:

Year:  2005        PMID: 16020855      PMCID: PMC558699          DOI: 10.1136/bmj.331.7509.140

Source DB:  PubMed          Journal:  BMJ        ISSN: 0959-8138


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  4 in total

1.  Consent, confidentiality, and the threat to public health surveillance.

Authors:  Chris Verity; Angus Nicoll
Journal:  BMJ       Date:  2002-05-18

2.  Potential effect of authorization bias on medical record research.

Authors:  S J Jacobsen; Z Xia; M E Campion; C H Darby; M F Plevak; K D Seltman; L J Melton
Journal:  Mayo Clin Proc       Date:  1999-04       Impact factor: 7.616

3.  The threat to medical-records research.

Authors:  L J Melton
Journal:  N Engl J Med       Date:  1997-11-13       Impact factor: 91.245

4.  Impracticability of informed consent in the Registry of the Canadian Stroke Network.

Authors:  Jack V Tu; Donald J Willison; Frank L Silver; Jiming Fang; Janice A Richards; Andreas Laupacis; Moira K Kapral
Journal:  N Engl J Med       Date:  2004-04-01       Impact factor: 91.245

  4 in total
  4 in total

1.  Passive consent for clinical research in the age of HIPAA.

Authors:  Benjamin Littenberg; Charles D MacLean
Journal:  J Gen Intern Med       Date:  2006-03       Impact factor: 5.128

2.  Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records: A EUROlinkCAT study.

Authors:  M Loane; J E Given; J Tan; A Reid; D Akhmedzhanova; G Astolfi; I Barišić; N Bertille; L B Bonet; C C Carbonell; O Mokoroa Carollo; A Coi; J Densem; E Draper; E Garne; M Gatt; S V Glinianaia; A Heino; E Den Hond; S Jordan; B Khoshnood; S Kiuru-Kuhlefelt; K Klungsøyr; N Lelong; L R Lutke; A J Neville; L Ostapchuk; A Puccini; A Rissmann; M Santoro; I Scanlon; G Thys; D Tucker; S K Urhoj; H E K de Walle; D Wellesley; O Zurriaga; J K Morris
Journal:  PLoS One       Date:  2021-08-27       Impact factor: 3.240

3.  Detecting congenital malformations - Lessons learned from the Mpepu study, Botswana.

Authors:  Gbolahan Ajibola; Rebecca Zash; Roger L Shapiro; Oganne Batlang; Kerapetse Botebele; Kara Bennett; Florence Chilisa; Erik von Widenfelt; Joseph Makhema; Shahin Lockman; Lewis B Holmes; Kathleen M Powis
Journal:  PLoS One       Date:  2017-03-24       Impact factor: 3.240

4.  The European data protection legislation and its consequences for public health monitoring: a plea for action.

Authors:  Marieke Verschuuren; Gérard Badeyan; Javier Carnicero; Mika Gissler; Renzo Pace Asciak; Luule Sakkeus; Magnus Stenbeck; Walter Devillé
Journal:  Eur J Public Health       Date:  2008-12       Impact factor: 3.367

  4 in total

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