Literature DB >> 15928218

Longitudinal research and data collection in primary care.

Chris van Weel1.   

Abstract

PURPOSE: This article reviews examples of and experience with longitudinal research in family medicine. The objective is to use this empirical information to formulate recommendations for improving longitudinal research.
METHODS: The article discusses 3 longitudinal studies from the Nijmegen academic family practice research network: 1 on the prognosis of depression and 1 each on the prognosis of and outcomes of care for type 2 diabetes mellitus. The Nijmegen network has recorded all episodes of morbidity encountered in Dutch family medicine since 1971 in a stable practice population. This network's experience is evaluated to identify lessons that may help other practice-based research networks (PBRNs) in pursuing longitudinal research.
RESULTS: In terms of external conditions (conditions related to the general setting), the stability of a population and a high level of continuity of care substantially enhance the ability to perform longitudinal research. In terms of internal conditions (conditions related to the PBRN), motivation of family physicians and their staff to conduct ongoing data collection, and their ownership of the data are key for success. Other critical internal conditions include standardization of data; collection of data by clinician-friendly means; training of family physicians and their staff in data collection, as well as meetings for discussion of this task; provision of feedback to practices on the research findings; use of standard procedures to promote adherence to data collection; availability of facilities for regular measurement of patients' health status or chart review; and use of mechanisms for tracking patients who leave the practice area.
CONCLUSIONS: Insight from existing experience suggests that longitudinal research can be enhanced in PBRNs. The best way forward is to build longitudinal data collection by drawing on lessons from successful studies. Primary care research policy should advocate for a role of longitudinal research and stimulate its development in PBRNs under favorable population circumstances.

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Year:  2005        PMID: 15928218      PMCID: PMC1466952          DOI: 10.1370/afm.300

Source DB:  PubMed          Journal:  Ann Fam Med        ISSN: 1544-1709            Impact factor:   5.166


  18 in total

1.  Commentary: the HRT story: vindication of old epidemiological theory.

Authors:  Jan P Vandenbroucke
Journal:  Int J Epidemiol       Date:  2004-05-27       Impact factor: 7.196

2.  Commentary: the hormone replacement-coronary heart disease conundrum: is this the death of observational epidemiology?

Authors:  Debbie A Lawlor; George Davey Smith; Shah Ebrahim
Journal:  Int J Epidemiol       Date:  2004-05-27       Impact factor: 7.196

3.  Improving health care globally: a critical review of the necessity of family medicine research and recommendations to build research capacity.

Authors:  Chris van Weel; Walter W Rosser
Journal:  Ann Fam Med       Date:  2004-05-26       Impact factor: 5.166

4.  Family practice research networks. Experiences from 3 countries.

Authors:  C van Weel; H Smith; J W Beasley
Journal:  J Fam Pract       Date:  2000-10       Impact factor: 0.493

5.  Low-dose aspirin and vitamin E in people at cardiovascular risk: a randomised trial in general practice. Collaborative Group of the Primary Prevention Project.

Authors:  G de Gaetano
Journal:  Lancet       Date:  2001-01-13       Impact factor: 79.321

6.  Ten year follow-up of depression after diagnosis in general practice.

Authors:  E van Weel-Baumgarten; W van den Bosch; H van den Hoogen; F G Zitman
Journal:  Br J Gen Pract       Date:  1998-10       Impact factor: 5.386

7.  The Future of Family Medicine: a collaborative project of the family medicine community.

Authors:  James C Martin; Robert F Avant; Marjorie A Bowman; John R Bucholtz; John R Dickinson; Kenneth L Evans; Larry A Green; Douglas E Henley; Warren A Jones; Samuel C Matheny; Janice E Nevin; Sandra L Panther; James C Puffer; Richard G Roberts; Denise V Rodgers; Roger A Sherwood; Kurt C Stange; Cynthia W Weber
Journal:  Ann Fam Med       Date:  2004 Mar-Apr       Impact factor: 5.166

8.  Intensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes (UKPDS 33). UK Prospective Diabetes Study (UKPDS) Group.

Authors: 
Journal:  Lancet       Date:  1998-09-12       Impact factor: 79.321

9.  Validating long term morbidity recording.

Authors:  C Van Weel
Journal:  J Epidemiol Community Health       Date:  1995-08       Impact factor: 3.710

10.  Cardiovascular morbidity and mortality in type 2 diabetic patients: a 22-year historical cohort study in Dutch general practice.

Authors:  W J de Grauw; E H van de Lisdonk; H J van den Hoogen; C van Weel
Journal:  Diabet Med       Date:  1995-02       Impact factor: 4.359

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  18 in total

1.  Longitudinal studies.

Authors:  Edward Joseph Caruana; Marius Roman; Jules Hernández-Sánchez; Piergiorgio Solli
Journal:  J Thorac Dis       Date:  2015-11       Impact factor: 2.895

2.  Yield of opportunistic targeted screening for type 2 diabetes in primary care: the diabscreen study.

Authors:  Erwin P Klein Woolthuis; Wim J C de Grauw; Willem H E M van Gerwen; Henk J M van den Hoogen; Eloy H van de Lisdonk; Job F M Metsemakers; Chris van Weel
Journal:  Ann Fam Med       Date:  2009 Sep-Oct       Impact factor: 5.166

3.  Effect of shared care on blood pressure in patients with chronic kidney disease: a cluster randomised controlled trial.

Authors:  Nynke D Scherpbier-de Haan; Gerald M M Vervoort; Chris van Weel; Jozé C C Braspenning; Jan Mulder; Jack F M Wetzels; Wim J C de Grauw
Journal:  Br J Gen Pract       Date:  2013-12       Impact factor: 5.386

4.  Thirty-minute compared to standardised office blood pressure measurement in general practice.

Authors:  Nynke Scherpbier-de Haan; Mark van der Wel; Gijs Schoenmakers; Steve Boudewijns; Petronella Peer; Chris van Weel; Theo Thien; Carel Bakx
Journal:  Br J Gen Pract       Date:  2011-09       Impact factor: 5.386

5.  Informatics, evidence-based care, and research; implications for national policy: a report of an American Medical Informatics Association health policy conference.

Authors:  Meryl Bloomrosen; Don E Detmer
Journal:  J Am Med Inform Assoc       Date:  2010 Mar-Apr       Impact factor: 4.497

6.  Psychological risk factors of micro- and macrovascular outcomes in primary care patients with type 2 diabetes: rationale and design of the DiaDDZoB Study.

Authors:  Giesje Nefs; François Pouwer; Johan Denollet; Victor Jm Pop
Journal:  BMC Public Health       Date:  2010-07-01       Impact factor: 3.295

7.  Chiropractic care for patients with acute neck pain: results of a pragmatic practice-based feasibility study.

Authors:  Michael T Haneline; Robert Cooperstein
Journal:  J Chiropr Med       Date:  2009-12

8.  Skin diseases in family medicine: prevalence and health care use.

Authors:  Elisabeth W M Verhoeven; Floor W Kraaimaat; Chris van Weel; Peter C M van de Kerkhof; Piet Duller; Pieter G M van der Valk; Henk J M van den Hoogen; J Hans J Bor; Henk J Schers; Andrea W M Evers
Journal:  Ann Fam Med       Date:  2008 Jul-Aug       Impact factor: 5.166

9.  [The stable patient collective as a potential pitfall of prospective primary health-care studies. A qualitative inquiry among general practitioners].

Authors:  Dirk Mosshammer; Gernot Lorenz; Iris Natanzon
Journal:  Med Klin (Munich)       Date:  2009-10-25

10.  Depressive disorder in the last phase of life in patients with cardiovascular disease, cancer, and COPD: data from a 20-year follow-up period in general practice.

Authors:  Franca Warmenhoven; Hans Bor; Peter Lucassen; Kris Vissers; Chris van Weel; Judith Prins; Henk Schers
Journal:  Br J Gen Pract       Date:  2013-05       Impact factor: 5.386

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