BACKGROUND: [corrected] We have been repeatedly asked to clarify genetic issues that have cultural ramifications for Native communities. METHOD: In the following commentary, we explain selected genetic issues that may vary among tribal nations; nonetheless, scientists should allocate sufficient time to meet with the tribal leaders and/or members of the tribal institutional review board prior to designing a genetic study to learn how selected issues are perceived by that specific tribal nation. RESULTS: Tribal nations generally encourage and mandate community-based participatory research methodology. CONCLUSIONS: We have included in this commentary draft language for study protocols to support researchers and tribal nations when developing studies pertaining to genetic issues.
BACKGROUND: [corrected] We have been repeatedly asked to clarify genetic issues that have cultural ramifications for Native communities. METHOD: In the following commentary, we explain selected genetic issues that may vary among tribal nations; nonetheless, scientists should allocate sufficient time to meet with the tribal leaders and/or members of the tribal institutional review board prior to designing a genetic study to learn how selected issues are perceived by that specific tribal nation. RESULTS: Tribal nations generally encourage and mandate community-based participatory research methodology. CONCLUSIONS: We have included in this commentary draft language for study protocols to support researchers and tribal nations when developing studies pertaining to genetic issues.
Authors: Amelie G Ramirez; Patricia Chalela; Kipling J Gallion; Edgar Muñoz; Alan E Holden; Linda Burhansstipanov; Selina A Smith; Evaon Wong-Kim; Stephen W Wyatt; Lucina Suarez Journal: J Health Dispar Res Pract Date: 2015