Literature DB >> 15868337

[A new training program--a status report: vasculitis].

K Herlyn1, J Höder, W L Gross, E Reinhold-Keller.   

Abstract

Referring to the literature, it is known that structured standardized patient education represents an effective additional treatment in patients with chronic diseases. Programs are based on cognitive behavioral interventions. Within the last years an interdisciplinary approach for providing information on disease, therapies, side effects, coping strategies, nutrition and physiotherapy has been developed for patients with primary systemic vasculitides (PSV) in the vasculitis center Medical University of Luebeck/Bad Bramstedt. The contents of the seminars were revised and condensed into five modules. To evaluate the new program a documentation system consisting of patient and physician-administered questionnaires assessing socioeconomic, knowledge and disease-related outcome-parameters has been designed. Patients completed the questionnaires at baseline, 4 weeks, 6 and 12 months after training. First results show statistically significant improvement of knowledge and health-related quality of life.

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Year:  2005        PMID: 15868337     DOI: 10.1007/s00393-005-0543-9

Source DB:  PubMed          Journal:  Z Rheumatol        ISSN: 0340-1855            Impact factor:   1.372


  9 in total

1.  [Quality standards of the German Society of Rheumatology for Rheumatologic Patient Education--preliminary report, discharged by the governing body and with consultation of the German Society of Rheumatology in September 1999].

Authors:  H E Langer; I Ehlebracht-König; S Mattussek
Journal:  Z Rheumatol       Date:  2000-08       Impact factor: 1.372

Review 2.  Patient education in rheumatology.

Authors:  C D Lorish; M L Boutaugh
Journal:  Curr Opin Rheumatol       Date:  1997-03       Impact factor: 5.006

3.  The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection.

Authors:  J E Ware; C D Sherbourne
Journal:  Med Care       Date:  1992-06       Impact factor: 2.983

4.  Development and validation of a disease extent index for Wegener's granulomatosis.

Authors:  K de Groot; W L Gross; K Herlyn; E Reinhold-Keller
Journal:  Clin Nephrol       Date:  2001-01       Impact factor: 0.975

Review 5.  Nomenclature of systemic vasculitides. Proposal of an international consensus conference.

Authors:  J C Jennette; R J Falk; K Andrassy; P A Bacon; J Churg; W L Gross; E C Hagen; G S Hoffman; G G Hunder; C G Kallenberg
Journal:  Arthritis Rheum       Date:  1994-02

6.  An interdisciplinary approach to the care of patients with Wegener's granulomatosis: long-term outcome in 155 patients.

Authors:  E Reinhold-Keller; N Beuge; U Latza; K de Groot; H Rudert; B Nölle; M Heller; W L Gross
Journal:  Arthritis Rheum       Date:  2000-05

7.  [Scientifically based patient education exemplified by patients with primary systemic vasculitis. The vasculitis patient education program--development, contents and initial results of evaluation].

Authors:  K Herlyn; J Höder; W L Gross; E Reinhold-Keller
Journal:  Z Rheumatol       Date:  2002-02       Impact factor: 1.372

Review 8.  [Basic principles in rheumatologic patient education. Theoretical principles and didactic aspects].

Authors:  I Ehlebracht-König; A Bönisch
Journal:  Z Rheumatol       Date:  2002-02       Impact factor: 1.372

9.  Birmingham Vasculitis Activity Score (BVAS) in systemic necrotizing vasculitis.

Authors:  R A Luqmani; P A Bacon; R J Moots; B A Janssen; A Pall; P Emery; C Savage; D Adu
Journal:  QJM       Date:  1994-11
  9 in total
  4 in total

Review 1.  [Patient education in rheumatology: a way to better disease management using patients' empowerment].

Authors:  Gudrun Lind-Albrecht
Journal:  Wien Med Wochenschr       Date:  2006-11

2.  Patient perceptions about illness self-management in ANCA-associated small vessel vasculitis.

Authors:  C T Thorpe; R F DeVellis; S J Blalock; S L Hogan; M A Lewis; B M DeVellis
Journal:  Rheumatology (Oxford)       Date:  2008-04-09       Impact factor: 7.580

Review 3.  [Patient education in rheumatologic care--a review].

Authors:  E Genth
Journal:  Z Rheumatol       Date:  2008-05       Impact factor: 1.372

4.  [Longitudinal effects of structured patient education programs for vasculitis patients].

Authors:  K Herlyn; W L Gross; E Reinhold-Keller
Journal:  Z Rheumatol       Date:  2008-05       Impact factor: 1.372

  4 in total

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