Literature DB >> 15805909

Associations between specific measures of vision and vision-related quality of life in patients with bothnia dystrophy, a defined type of retinitis pigmentosa.

Marie S I Burstedt1, Eva Mönestam, Ola Sandgren.   

Abstract

PURPOSE: To assess the relationship between objective tests of visual function and vision-related quality of life in patients with Bothnia dystrophy (BD), a retinal dystrophy of retinitis pigmentosa type with progressive maculopathy.
METHODS: Forty-nine patients were tested. Weighted distance logMAR visual acuity (WVA), weighted logMAR low contrast VA (WCS), and binocular visual field (VF) areas were calculated. Vision-related quality of life (VRQL) was assessed using the 25-item National Eye Institute-Visual Function Questionnaire (NEI-VFQ-25). Correlation statistics were used and adjusted analyses of the relationship between the composite score and the objective visual function tests were performed with multiple linear regression.
RESULTS: VRQL was significantly correlated with age, WVA, WCS, and binocular VF areas (P < 0.001). Calculation of partial correlation coefficients showed age to be significantly correlated only with VF (V-4-e) area (P < 0.0001). Multiple linear regression analyses revealed age and WVA to be significantly associated with the NEI-VFQ-25 composite score (P < 0.02 and P = 0.001, respectively). WVA alone was the strongest predictor of self-reported experience of total visual function in BD patients (r 2= 0.69).
CONCLUSIONS: A strong relationship between objective tests of visual function and patient perceived VRQL as assessed by a questionnaire was found. WVA was the strongest predictor and together with age explained almost 70% of the variability of the composite score of the questionnaire.

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Year:  2005        PMID: 15805909     DOI: 10.1097/00006982-200504000-00011

Source DB:  PubMed          Journal:  Retina        ISSN: 0275-004X            Impact factor:   4.256


  9 in total

1.  Development of an Arabic version of the National Eye Institute Visual Function Questionnaire as a tool to study eye diseases patients in Egypt.

Authors:  Nizar Saleh Abdelfattah; Mohamed Amgad; Ahmed A Salama; Marina E Israel; Ghada A Elhawary; Ahmed E Radwan; Mohamed M Elgayar; Tamer M El Nakhal; Islam T Elkhateb; Heba A Hashem; Doha K Embaby; Amira A Elabd; Reem K Elwy; Magdi S Yacoub; Hamdy Salem; Mohamed Abdel-Baqy; Ahmad Kassem
Journal:  Int J Ophthalmol       Date:  2014-10-18       Impact factor: 1.779

2.  Self-reported quality of life in patients with retinitis pigmentosa and maculopathy of Bothnia type.

Authors:  Marie S I Burstedt; Eva Mönestam
Journal:  Clin Ophthalmol       Date:  2010-03-24

3.  Effects of prolonged dark adaptation in patients with retinitis pigmentosa of Bothnia type: an electrophysiological study.

Authors:  Marie S I Burstedt; Ola Sandgren; Irina Golovleva; Lillemor Wachtmeister
Journal:  Doc Ophthalmol       Date:  2007-10-06       Impact factor: 2.379

4.  Toward a wide-field retinal prosthesis.

Authors:  Hossein Ameri; Tanapat Ratanapakorn; Stefan Ufer; Helmut Eckhardt; Mark S Humayun; James D Weiland
Journal:  J Neural Eng       Date:  2009-05-20       Impact factor: 5.379

5.  Relationship between vision-related quality of life and different types of existing visual fields in Japanese patients.

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Journal:  Int Ophthalmol       Date:  2012-05-12       Impact factor: 2.031

6.  The Michigan Vision-Related Anxiety Questionnaire: A Psychosocial Outcomes Measure for Inherited Retinal Degenerations.

Authors:  Gabrielle D Lacy; Maria Fernanda Abalem; Chris A Andrews; Rebhi Abuzaitoun; Lilia T Popova; Erin P Santos; Gina Yu; Hanan Y Rakine; Natasha Baig; Joshua R Ehrlich; Abigail T Fahim; Kari H Branham; Bonnielin K Swenor; Paul R Lichter; Gislin Dagnelie; Joan A Stelmack; David C Musch; K Thiran Jayasundera
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7.  Validation of a vision-related activity scale for patients with retinitis pigmentosa.

Authors:  Francisco M Costela; Konrad Pesudovs; Michael A Sandberg; Carol Weigel-DiFranco; Russell L Woods
Journal:  Health Qual Life Outcomes       Date:  2020-06-22       Impact factor: 3.186

8.  Psychometric properties of the Greek version of the NEI-VFQ 25.

Authors:  Georgios Labiris; Andreas Katsanos; Michael Fanariotis; Theodora Tsirouki; Maria Pefkianaki; Dimitrios Chatzoulis; Evangelia Tsironi
Journal:  BMC Ophthalmol       Date:  2008-03-06       Impact factor: 2.209

9.  Qualitative Interviews to Better Understand the Patient Experience and Evaluate Patient-Reported Outcomes (PRO) in RLBP1 Retinitis Pigmentosa (RLBP1 RP).

Authors:  Jane Green; Chloe Tolley; Sarah Bentley; Rob Arbuckle; Marie Burstedt; James Whelan; Karen Holopigian; Kali Stasi; Brigitte Sloesen; Claudio Spera; Jean-Yves Deslandes; Anmol Mullins
Journal:  Adv Ther       Date:  2020-05-05       Impact factor: 3.845

  9 in total

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