A C Franzoi1, A Q C Araújo. 1. The Federal University of Rio de Janeiro (UFRJ), Clementino Fraga Filho University Hospital (HUCFF), Rio de Janeiro, Brazil.
Abstract
STUDY DESIGN: Survey. OBJECTIVE: To determine the disability profile of a group of patients with human T-cell lymphotropic virus type I-associated myelopathy/tropical spastic paraparesis (HAM/TSP), using the Functional Independence Measure (FIM) to identify the most affected functional areas. SETTING: Reference center for HTLV Rio de Janeiro, Brazil. METHODS: A total of 72 patients (49 female and 23 male), consecutively referred by tertiary care centers, were assessed using the FIM. RESULTS: The average FIM score was 108 (+/-12 SD) ranging from 58 to 122. The lowest items scores were obtained in locomotion and bladder management. When divided into two groups (above, and below or equal to the average score), there were significant differences (P<0.05) in age at time of assessment, in the degree of muscular power and in low back pain. There were no significant differences in terms of age of onset and duration of the disease. CONCLUSIONS: The most affected areas in FIM motor items were locomotion (walk and stairs) and bladder management. Age, strength in lower limbs and low back pain interfere with functional activities in patients with HAM/TSP. The duration of the disease is not a significant factor for patient disabilities. The goals of rehabilitation in HAM/TSP patients should target the modifiable factors, such as pain, strength and the neurogenic bladder.
STUDY DESIGN: Survey. OBJECTIVE: To determine the disability profile of a group of patients with human T-cell lymphotropic virus type I-associated myelopathy/tropical spastic paraparesis (HAM/TSP), using the Functional Independence Measure (FIM) to identify the most affected functional areas. SETTING: Reference center for HTLV Rio de Janeiro, Brazil. METHODS: A total of 72 patients (49 female and 23 male), consecutively referred by tertiary care centers, were assessed using the FIM. RESULTS: The average FIM score was 108 (+/-12 SD) ranging from 58 to 122. The lowest items scores were obtained in locomotion and bladder management. When divided into two groups (above, and below or equal to the average score), there were significant differences (P<0.05) in age at time of assessment, in the degree of muscular power and in low back pain. There were no significant differences in terms of age of onset and duration of the disease. CONCLUSIONS: The most affected areas in FIM motor items were locomotion (walk and stairs) and bladder management. Age, strength in lower limbs and low back pain interfere with functional activities in patients with HAM/TSP. The duration of the disease is not a significant factor for patient disabilities. The goals of rehabilitation in HAM/TSPpatients should target the modifiable factors, such as pain, strength and the neurogenic bladder.
Authors: Bernardo Galvão-Castro; Maria Fernanda Rios Grassi; Ana Verena Galvão-Castro; Aidê Nunes; Ana Karina Galvão-Barroso; Thessika Hialla Almeida Araújo; Regina Helena Rathsam-Pinheiro; Ceuci Lima Xavier Nunes; Adriele Ribeiro; Monique Lírio; Noilson Lázaro Gonçalves; Sônia Lúcia Rangel; Cristiane Maria Carvalho Costa Dias; Daniele Piai Ozores; Selena Márcia Dubois-Mendes; Isabela Lima; André Luís Pereira Silva; Washington Luiz Abreu de Jesus; Fred Luciano Neves Santos; José Guilherme Reis de Oliveira; Yscela Vanessa Pimentel de Moraes; Adijeane Oliveira de Jesus; Francisco Daltro; Ney Boa-Sorte; Humberto Castro-Lima; Maria Luísa Carvalho Soliani Journal: Front Med (Lausanne) Date: 2022-06-07
Authors: Katia N Sá; Maíra C Macêdo; Rosana P Andrade; Selena D Mendes; José V Martins; Abrahão F Baptista Journal: J Multidiscip Healthc Date: 2015-02-23