Literature DB >> 15520796

The social and ethical issues of post-genomic human biobanks.

Anne Cambon-Thomsen1.   

Abstract

Biobanking - the organized collection of biological samples and associated data - ranges in scope from small collections of samples in academic or hospital settings to large-scale national repositories. Biobanks raise many ethical concerns, to which authorities are responding by introducing specific regulations. Genomics research, which thrives on the sharing of samples and information, is affected by two prominent ethical questions: do ethical principles prevent or promote the sharing of stored biological resources? How does the advent of large-scale biobanking alter the way in which ethical issues are addressed?

Entities:  

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction

Mesh:

Year:  2004        PMID: 15520796     DOI: 10.1038/nrg1473

Source DB:  PubMed          Journal:  Nat Rev Genet        ISSN: 1471-0056            Impact factor:   53.242


  49 in total

Review 1.  The tension between data sharing and the protection of privacy in genomics research.

Authors:  Jane Kaye
Journal:  Annu Rev Genomics Hum Genet       Date:  2012-03-09       Impact factor: 8.929

2.  Can Broad Consent be Informed Consent?

Authors:  Mark Sheehan
Journal:  Public Health Ethics       Date:  2011-08-03       Impact factor: 1.940

Review 3.  Biobanks: importance, implications and opportunities for genetic counselors.

Authors:  Alice K Hawkins
Journal:  J Genet Couns       Date:  2010-08-03       Impact factor: 2.537

4.  Structuring public engagement for effective input in policy development on human tissue biobanking.

Authors:  Kieran C O'Doherty; A Hawkins
Journal:  Public Health Genomics       Date:  2010-04-15       Impact factor: 2.000

5.  Why governance? A challenge to good governance of biobanks.

Authors:  Katharine Browne
Journal:  Monash Bioeth Rev       Date:  2015-12

6.  Of genomics and public health: Building public "goods"?

Authors:  Bartha Maria Knoppers
Journal:  CMAJ       Date:  2005-11-08       Impact factor: 8.262

7.  Epidemiology: Biorepositories for cancer research in developing countries.

Authors:  Sandipan Ray; Aliasgar Moiyadi; Sanjeeva Srivastava
Journal:  Nat Rev Clin Oncol       Date:  2013-07-09       Impact factor: 66.675

8.  [Biobanking and Biomolecular Resources Research Infrastructure (BBMRI). Implications for pathology].

Authors:  C Viertler; K Zatloukal
Journal:  Pathologe       Date:  2008-11       Impact factor: 1.011

9.  Banking together. A unified model of informed consent for biobanking.

Authors:  Elena Salvaterra; Lucilla Lecchi; Silvia Giovanelli; Barbara Butti; Maria Teresa Bardella; Pier Alberto Bertazzi; Silvano Bosari; Guido Coggi; Domenico A Coviello; Faustina Lalatta; Maurizio Moggio; Mario Nosotti; Alberto Zanella; Paolo Rebulla
Journal:  EMBO Rep       Date:  2008-04       Impact factor: 8.807

10.  The Human Immunopeptidome Project, a suggestion for yet another postgenome next big thing.

Authors:  Arie Admon; Michal Bassani-Sternberg
Journal:  Mol Cell Proteomics       Date:  2011-08-02       Impact factor: 5.911

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