Literature DB >> 15467079

Returning to the Alder Hey report and its reporting: addressing confusions and improving inquiries.

S Dewar1, P Boddington.   

Abstract

The Royal Liverpool Children's Inquiry investigated the circumstances leading to the removal, retention, and disposal of human tissue, including children's organs, at the Royal Liverpool Children's NHS Trust (the Alder Hey Hospital). It recommended changes to procedures for obtaining consent for postmortems and retaining organs and tissues for research or education. However, the report contains five areas of confusion. Firstly, it allowed the cultural and historical traditions of horror over the use and misuse of body parts to suffuse the logical analysis of past wrongs and future rights. Secondly, it makes an inappropriate conflation between seeking redress for past wrongs and shaping future policy. Thirdly, the report takes a muddled stance over the value of bodily integrity at burial. Fourthly, the report is inconsistent over the justification for future organ and tissue collections. Fifthly, the notion of "respect" is used with troublesome looseness. The extent to which subsequent policy work has furthered the search for greater ethical clarity over these difficult issues is discussed, together with reflection on three particular improvements that could be made to the process of such an inquiry.

Entities:  

Keywords:  Health Care and Public Health

Mesh:

Year:  2004        PMID: 15467079      PMCID: PMC1733951          DOI: 10.1136/jme.2002.002774

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  3 in total

1.  What have we learnt from the Alder Hey affair? That monitoring physicians' performance is necessary to ensure good practice.

Authors:  H Bauchner; R Vinci
Journal:  BMJ       Date:  2001-02-10

2.  What have we learnt from the Alder Hey affair? Criticism of pathologists has been unfair.

Authors:  N Kaushik
Journal:  BMJ       Date:  2001-06-23

3.  Fear and frustration--the Liverpool cholera riots of 1832.

Authors:  G Gill; S Burrell; J Brown
Journal:  Lancet       Date:  2001-07-21       Impact factor: 79.321

  3 in total
  3 in total

1.  Value of postmortem studies in deceased neonatal and pediatric intensive care unit patients.

Authors:  Raphael Widmann; Rosmarie Caduff; Luca Giudici; Qing Zhong; Alexander Vogetseder; Romaine Arlettaz; Bernhard Frey; Holger Moch; Peter K Bode
Journal:  Virchows Arch       Date:  2016-12-14       Impact factor: 4.064

Review 2.  Research governance: where did it come from, what does it mean?

Authors:  Sara Shaw; Petra M Boynton; Trisha Greenhalgh
Journal:  J R Soc Med       Date:  2005-11       Impact factor: 18.000

3.  From 'Consent or Anonymise' to 'Share and Protect': Facilitating Access to Surplus Tissue for Research Whilst Safeguarding Donor Interests.

Authors:  Catherine Blewett
Journal:  Health Care Anal       Date:  2021-07-14
  3 in total

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