Literature DB >> 15355433

Genetic discrimination: the clinician perspective.

R Nedelcu1, K R Blazer, B U Schwerin, P Gambol, P Mantha, G C Uman, J N Weitzel.   

Abstract

Clinicians attending continuing education sessions in California were surveyed about their beliefs and attitudes regarding genetic discrimination and their knowledge of protective legislation. Two hundred seventy-one surveys were collected from physicians (n = 191) and nurses (n = 80). Most respondents lacked information or were misinformed about the existence of protective legislation (58.3%) or published cases of insurance discrimination (85.2%); 52.4% believed that mutation carriers have difficulty obtaining health insurance; 13% would not encourage genetic testing, despite a family history of cancer. Clinician concerns about potential genetic discrimination, and lack of information regarding protective legislation, may influence access to care.

Entities:  

Keywords:  Empirical Approach; Genetics and Reproduction

Mesh:

Year:  2004        PMID: 15355433     DOI: 10.1111/j.1399-0004.2004.00303.x

Source DB:  PubMed          Journal:  Clin Genet        ISSN: 0009-9163            Impact factor:   4.438


  11 in total

1.  Factors associated with experiences of genetic discrimination among individuals at risk for Huntington disease.

Authors:  Yvonne Bombard; JoAnne Palin; Jan M Friedman; Gerry Veenstra; Susan Creighton; Jane S Paulsen; Joan L Bottorff; Michael R Hayden
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2010-11-10       Impact factor: 3.568

2.  Consumer awareness and attitudes about insurance discrimination post enactment of the Genetic Information Nondiscrimination Act.

Authors:  Dawn C Allain; Sue Friedman; Leigha Senter
Journal:  Fam Cancer       Date:  2012-12       Impact factor: 2.375

3.  Family physicians' awareness and knowledge of the Genetic Information Non-Discrimination Act (GINA).

Authors:  Amanda L Laedtke; Suzanne M O'Neill; Wendy S Rubinstein; Kristen J Vogel
Journal:  J Genet Couns       Date:  2011-09-07       Impact factor: 2.537

4.  Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.

Authors:  Cheryl Erwin; Janet K Williams; Andrew R Juhl; Michelle Mengeling; James A Mills; Yvonne Bombard; Michael R Hayden; Kimberly Quaid; Ira Shoulson; Sandra Taylor; Jane S Paulsen
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2010-07       Impact factor: 3.568

5.  Evolving perspectives on genetic discrimination in health insurance among health care providers.

Authors:  Carin R Huizenga; Katrina Lowstuter; Kimberly C Banks; Veronica I Lagos; Virginia O Vandergon; Jeffrey N Weitzel
Journal:  Fam Cancer       Date:  2010-06       Impact factor: 2.375

6.  Views of Black nurses toward genetic research and testing.

Authors:  Yolanda M Powell-Young; Ida J Spruill
Journal:  J Nurs Scholarsh       Date:  2013-03-07       Impact factor: 3.176

7.  Why is genetic screening for autosomal dominant disorders underused in families? The case of hereditary hemorrhagic telangiectasia.

Authors:  Barbara A Bernhardt; Cara Zayac; Reed E Pyeritz
Journal:  Genet Med       Date:  2011-09       Impact factor: 8.822

8.  Myriad Genetics: In the eye of the policy storm.

Authors:  E Richard Gold; Julia Carbone
Journal:  Genet Med       Date:  2010-04       Impact factor: 8.822

9.  Bioethical issues of preventing hereditary diseases with late onset in the Sakha Republic (Yakutia).

Authors:  Sardana K Kononova; Oksana G Sidorova; Sardana A Fedorova; Fedor A Platonov; Vera L Izhevskaya; Elza K Khusnutdinova
Journal:  Int J Circumpolar Health       Date:  2014-07-24       Impact factor: 1.228

10.  Recruiting terminally ill patients into non-therapeutic oncology studies: views of health professionals.

Authors:  Erika Kleiderman; Denise Avard; Lee Black; Zuanel Diaz; Caroline Rousseau; Bartha Maria Knoppers
Journal:  BMC Med Ethics       Date:  2012-12-05       Impact factor: 2.652

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