Literature DB >> 15343177

Ethical issues in newborn screening research: lessons from the Wisconsin cystic fibrosis trial.

Holly A Taylor1, Benjamin S Wilfond.   

Abstract

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach; Genetics and Reproduction

Mesh：

Year:  2004        PMID： 15343177     DOI： 10.1016/j.jpeds.2004.04.010

Source DB:  PubMed          Journal:  J Pediatr        ISSN： 0022-3476            Impact factor:   4.406


× No keyword cloud information.
  5 in total

Review 1.  Potential Uses and Inherent Challenges of Using Genome-Scale Sequencing to Augment Current Newborn Screening.

Authors:  Jonathan S Berg; Cynthia M Powell
Journal:  Cold Spring Harb Perspect Med       Date:  2015-10-05       Impact factor: 6.915

2.  Quality improvement ethics: lessons from the SUPPORT study.

Authors:  Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2013       Impact factor: 11.229

3.  Parents' decisions to screen newborns for FMR1 gene expansions in a pilot research project.

Authors:  Debra Skinner; Summer Choudhury; John Sideris; Sonia Guarda; Allen Buansi; Myra Roche; Cynthia Powell; Donald B Bailey
Journal:  Pediatrics       Date:  2011-05-29       Impact factor: 7.124

4.  Parental permission for pilot newborn screening research: guidelines from the NBSTRN.

Authors:  Jeffrey R Botkin; Michelle Huckaby Lewis; Michael S Watson; Kathryn J Swoboda; Rebecca Anderson; Susan A Berry; Natasha Bonhomme; Jeffrey P Brosco; Anne M Comeau; Aaron Goldenberg; Edward Goldman; Bradford Therrell; Jill Levy-Fisch; Beth Tarini; Benjamin Wilfond
Journal:  Pediatrics       Date:  2014-01-06       Impact factor: 7.124

5.  Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy.

Authors:  Erin Rothwell; Rebecca A Anderson; Kathryn J Swoboda; Louisa Stark; Jeffrey R Botkin
Journal:  Am J Med Genet A       Date:  2013-02-26       Impact factor: 2.802
  5 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.