Literature DB >> 15240086

Being in the light or in the shade: persons with Parkinson's disease and their partners' experience of support.

A M B Birgersson1, A-K Edberg.   

Abstract

Interviews with six couples, persons with Parkinson's disease and their partners, were tape-recorded, transcribed and analysed using manifest and latent content analysis. The couples' experiences could be interpreted as Being in the light and Being in the shade of support, with internal variations for the patients and their partners. The narratives also revealed that the disease meant a transition of roles in their relation seen in different patterns: From unity towards unity, From unity towards distance and From distance towards unity. The results indicate that there is a need for more specialised and individually adjusted support. Copyright 2004 Elsevier Ltd.

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Year:  2004        PMID: 15240086     DOI: 10.1016/j.ijnurstu.2004.01.007

Source DB:  PubMed          Journal:  Int J Nurs Stud        ISSN: 0020-7489            Impact factor:   5.837


  8 in total

1.  Transitions and challenges for people with Parkinson's and their family members: A qualitative study.

Authors:  Joy Read; Rachael Frost; Kate Walters; Remco Tuijt; Jill Manthorpe; Bev Maydon; Jennifer Pigott; Anette Schrag; Nathan Davies
Journal:  PLoS One       Date:  2022-07-18       Impact factor: 3.752

Review 2.  The subjective experience of family caregivers of people living with Parkinson's disease: a meta-ethnography of qualitative literature.

Authors:  Yiping Chen; Wentao Zhou; Liyuan Hou; Xianhui Zhang; Qiaohong Wang; Jing Gu; Ru Zhang; Hui Yang
Journal:  Aging Clin Exp Res       Date:  2021-10-14       Impact factor: 4.481

Review 3.  The experience of Parkinson's disease: a systematic review and meta-ethnography.

Authors:  Andrew Soundy; Brendon Stubbs; Carolyn Roskell
Journal:  ScientificWorldJournal       Date:  2014-11-30

4.  Coping with Cognitive Impairment in People with Parkinson's Disease and Their Carers: A Qualitative Study.

Authors:  Rachael A Lawson; Daniel Collerton; John-Paul Taylor; David J Burn; Katie R Brittain
Journal:  Parkinsons Dis       Date:  2018-04-08

5.  Relationship Dynamics of Couples Facing Advanced-Stage Parkinson's Disease: A Dyadic Interpretative Phenomenological Analysis.

Authors:  Emilie Constant; Elodie Brugallé; Emilie Wawrziczny; Céline Sokolowski; Charlotte Manceau; Bérengère Flinois; Guillaume Baille; Defebvre Luc; Kathy Dujardin; Pascal Antoine
Journal:  Front Psychol       Date:  2022-01-24

6.  The everyday experience of living with and managing a neurological condition (the LINC study): study design.

Authors:  Joan Versnel; Tanya Packer; Lori E Weeks; Jocelyn Brown; Marshall Godwin; Susan Hutchinson; George Kephart; Diane MacKenzie; Kerstin Roger; Robin Stadnyk; Michelle Villeneuve; Grace Warner
Journal:  BMC Neurol       Date:  2013-03-21       Impact factor: 2.474

7.  Mediating Effect of Mutuality on Health-Related Quality of Life in Patients with Parkinson's Disease.

Authors:  Michaela Karlstedt; Seyed-Mohammad Fereshtehnejad; Dag Aarsland; Johan Lökk
Journal:  Parkinsons Dis       Date:  2018-09-16

8.  Sharing our story individualized and triadic nurse meetings support couples adjustment to living with deep brain stimulation for Parkinson's disease.

Authors:  Anita Haahr; Annelise Norlyk; Elisabeth O C Hall; Kirsten Elisabeth Hansen; Karen Østergaard; Marit Kirkevold
Journal:  Int J Qual Stud Health Well-being       Date:  2020-12
  8 in total

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