Literature DB >> 15221065

[Attitudes towards patient care at the end of life. A survey of directors of neurological departments].

G D Borasio1, B Weltermann, R Voltz, H Reichmann, S Zierz.   

Abstract

In view of the increasing importance of palliative medicine and end-of-life care of neurological patients, a survey from the American Academy of Neurology was translated in a validated fashion and sent to all medical directors of neurological departments in Germany. The topics of the survey comprised-based on clinical scenarios-the withdrawal or withholding of life-sustaining measures, physician-assisted suicide (PAS) and euthanasia, advance directives and health care proxies, principles of palliative care, and ethical and legal questions in end-of-life care. Of 411 directors of departments, 152 participated in the survey. Almost all respondents support a patient's right to refuse life-sustaining treatment. Thirty-two percent think it is illegal to administer analgesics in doses that risk respiratory depression. Forty-five percent believe that treating terminal dyspnea with morphine is the same as euthanasia. Despite the fact that 88% of the respondents regard advance directives as helpful, only an average of 4% of their patients have completed one. About one third of the respondents have been confronted with a request by patients for PAS or euthanasia. Thirty-five percent believe that PAS should be made explicitly legal for terminally ill patients. Forty-six percent of the respondents believe that their training in end-of-life care was insufficient, and 91% express interest in education programs on palliative care.

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Year:  2004        PMID: 15221065     DOI: 10.1007/s00115-004-1751-2

Source DB:  PubMed          Journal:  Nervenarzt        ISSN: 0028-2804            Impact factor:   1.214


  15 in total

1.  Sedation for intractable distress of a dying patient: acute palliative care and the principle of double effect.

Authors:  E L Krakauer; R T Penson; R D Truog; L A King; B A Chabner; T J Lynch
Journal:  Oncologist       Date:  2000

2.  Assisted suicide, euthanasia, and the neurologist. The Ethics and Humanities Subcommittee of the American Academy of Neurology.

Authors: 
Journal:  Neurology       Date:  1998-03       Impact factor: 9.910

3.  Euthanasia, physician-assisted suicide, and other medical practices involving the end of life in the Netherlands, 1990-1995.

Authors:  P J van der Maas; G van der Wal; I Haverkate; C L de Graaff; J G Kester; B D Onwuteaka-Philipsen; A van der Heide; J M Bosma; D L Willems
Journal:  N Engl J Med       Date:  1996-11-28       Impact factor: 91.245

Review 4.  A systematic review of the use of opioids in the management of dyspnoea.

Authors:  A-L Jennings; A N Davies; J P T Higgins; J S R Gibbs; K E Broadley
Journal:  Thorax       Date:  2002-11       Impact factor: 9.139

5.  The effects of morphine on dyspnea and ventilatory function in elderly patients with advanced cancer: a randomized double-blind controlled trial.

Authors:  C Mazzocato; T Buclin; C H Rapin
Journal:  Ann Oncol       Date:  1999-12       Impact factor: 32.976

6.  Position of the American Academy of Neurology on certain aspects of the care and management of the persistent vegetative state patient. Adopted by the Executive Board, American Academy of Neurology, April 21, 1988, Cincinnati, Ohio.

Authors: 
Journal:  Neurology       Date:  1989-01       Impact factor: 9.910

7.  Palliative care in neurology. The American Academy of Neurology Ethics and Humanities Subcommittee.

Authors: 
Journal:  Neurology       Date:  1996-03       Impact factor: 9.910

8.  End-of-life care: a survey of US neurologists' attitudes, behavior, and knowledge.

Authors:  A C Carver; B G Vickrey; J L Bernat; C Keran; S P Ringel; K M Foley
Journal:  Neurology       Date:  1999-07-22       Impact factor: 9.910

9.  Attitudes of terminally ill cancer patients about euthanasia and assisted suicide: predominance of psychosocial determinants and beliefs over symptom distress and subsequent survival.

Authors:  Maria E Suarez-Almazor; Catherine Newman; John Hanson; Eduardo Bruera
Journal:  J Clin Oncol       Date:  2002-04-15       Impact factor: 44.544

10.  Breaking bad news: starting palliative care.

Authors:  D Doyle; S O'Connell
Journal:  J R Soc Med       Date:  1996-10       Impact factor: 18.000

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  7 in total

1.  [Between patient autonomy and the ethics of care : difficult end-of-life decision-making in intensive care].

Authors:  F Erbguth
Journal:  Anaesthesist       Date:  2012-06       Impact factor: 1.041

2.  "What the patient wants…": Lay attitudes towards end-of-life decisions in Germany and Israel.

Authors:  Julia Inthorn; Silke Schicktanz; Nitzan Rimon-Zarfaty; Aviad Raz
Journal:  Med Health Care Philos       Date:  2015-08

3.  Evaluation of diagnostic and treatment approaches towards acute dyspnea in a palliative care setting among medical students at the University of Vienna.

Authors:  Gudrun Pohl; Christine Marosi; Karin Dieckmann; Gregor Goldner; Katarzyna Elandt; Marco Hassler; Michael Schemper; Kathrin Strasser-Weippl; Friedemann Nauck; Jan Gaertner; Herbert Watzke
Journal:  Wien Med Wochenschr       Date:  2012-01

4.  Importance of the advance directive and the beginning of the dying process from the point of view of German doctors and judges dealing with guardianship matters: results of an empirical survey.

Authors:  B van Oorschot; A Simon
Journal:  J Med Ethics       Date:  2006-11       Impact factor: 2.903

5.  Prevalence of icaA and icaD genes in Staphylococcus aureus and Staphylococcus epidermidis strains isolated from patients and hospital staff.

Authors:  Sara Elena Satorres; Lucia Esther Alcaráz
Journal:  Cent Eur J Public Health       Date:  2007-06       Impact factor: 1.163

Review 6.  Culture and end of life care: a scoping exercise in seven European countries.

Authors:  Marjolein Gysels; Natalie Evans; Arantza Meñaca; Erin Andrew; Franco Toscani; Sylvia Finetti; H Roeline Pasman; Irene Higginson; Richard Harding; Robert Pool
Journal:  PLoS One       Date:  2012-04-03       Impact factor: 3.240

7.  Physician-assisted suicide, euthanasia and palliative sedation: attitudes and knowledge of medical students.

Authors:  Johanna Anneser; Ralf J Jox; Tamara Thurn; Gian Domenico Borasio
Journal:  GMS J Med Educ       Date:  2016-02-15
  7 in total

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