Literature DB >> 25344758

"What the patient wants…": Lay attitudes towards end-of-life decisions in Germany and Israel.

Julia Inthorn1, Silke Schicktanz, Nitzan Rimon-Zarfaty, Aviad Raz.   

Abstract

National legislation, as well as arguments of experts, in Germany and Israel represent opposite regulatory approaches and positions in bioethical debates concerning end-of-life care. This study analyzes how these positions are mirrored in the attitudes of laypeople and influenced by the religious views and personal experiences of those affected. We qualitatively analyzed eight focus groups in Germany and Israel in which laypeople (religious, secular, affected, and non-affected) were asked to discuss similar scenarios involving the withholding or withdrawing of treatment, physician-assisted suicide, and euthanasia. In both countries, respect for patient autonomy and patients' wishes to die with dignity found broad consent. Laypeople argued in favor of accepting such wishes when they were put down in an advance directive. Laypeople in non-religious groups in both countries argued on the basis of a respect for autonomy for the possibility of euthanasia in severe cases but, at the same time, cautioned against its possible misuse. National contrast was apparent in the moral reasoning of lay respondents concerning the distinction between withholding and withdrawing treatment. The modern religious laypeople in Israel, especially, argued strongly, on the basis of the halakhic tradition, against allowing the withdrawal of treatment in accord with a patient's wish. We conclude by discussing the emergent notion of shared responsibility and views of professional responsibility, which we connect through relevant cultural themes such as religion and national culture.

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Year:  2015        PMID: 25344758     DOI: 10.1007/s11019-014-9606-5

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  34 in total

1.  A new law on advance directives in Germany.

Authors:  U Wiesing; R J Jox; H-J Hessler; G D Borasio
Journal:  J Med Ethics       Date:  2010-12       Impact factor: 2.903

2.  Exploring the positions of German and Israeli patient organizations in the bioethical context of end-of-life policies.

Authors:  Aviad Raz; Isabella Jordan; Silke Schicktanz
Journal:  Health Care Anal       Date:  2014-06

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Authors:  B van Oorschot; V Lipp; A Tietze; N Nickel; A Simon
Journal:  Dtsch Med Wochenschr       Date:  2005-02-11       Impact factor: 0.628

4.  Law and bioethics in Israel: between liberal ethical values and Jewish religious norms.

Authors:  Amos Shapira
Journal:  J Int Bioethique       Date:  2006 Mar-Jun

5.  On new reproductive technologies and family ethics: pre-implantation genetic diagnosis for sibling donor in Israel and Germany.

Authors:  Yael Hashiloni-Dolev; Shiri Shkedi
Journal:  Soc Sci Med       Date:  2007-07-31       Impact factor: 4.634

6.  Meanings and attitudes toward end-of-life preferences in Israel.

Authors:  R D Leichtentritt; K D Rettig
Journal:  Death Stud       Date:  1999-06

Review 7.  Advance directives.

Authors:  Linda L Emanuel
Journal:  Annu Rev Med       Date:  2008       Impact factor: 13.739

8.  End-of-life decision-making in six European countries: descriptive study.

Authors:  Agnes van der Heide; Luc Deliens; Karin Faisst; Tore Nilstun; Michael Norup; Eugenio Paci; Gerrit van der Wal; Paul J van der Maas
Journal:  Lancet       Date:  2003-08-02       Impact factor: 79.321

9.  The ethics of 'public understanding of ethics'--why and how bioethics expertise should include public and patients' voices.

Authors:  Silke Schicktanz; Mark Schweda; Brian Wynne
Journal:  Med Health Care Philos       Date:  2012-05

Review 10.  Culture and end of life care: a scoping exercise in seven European countries.

Authors:  Marjolein Gysels; Natalie Evans; Arantza Meñaca; Erin Andrew; Franco Toscani; Sylvia Finetti; H Roeline Pasman; Irene Higginson; Richard Harding; Robert Pool
Journal:  PLoS One       Date:  2012-04-03       Impact factor: 3.240

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  4 in total

1.  Islamic perspectives on clinical intervention near the end-of-life: We can but must we?

Authors:  Aasim I Padela; Omar Qureshi
Journal:  Med Health Care Philos       Date:  2017-12

2.  Beyond cultural stereotyping: views on end-of-life decision making among religious and secular persons in the USA, Germany, and Israel.

Authors:  Mark Schweda; Silke Schicktanz; Aviad Raz; Anita Silvers
Journal:  BMC Med Ethics       Date:  2017-02-17       Impact factor: 2.652

3.  Truth-telling and doctor-assisted death as perceived by Israeli physicians.

Authors:  Baruch Velan; Arnona Ziv; Giora Kaplan; Carmit Rubin; Yaron Connelly; Tami Karni; Orna Tal
Journal:  BMC Med Ethics       Date:  2019-02-18       Impact factor: 2.652

4.  Travelling to die: views, attitudes and end-of-life preferences of Israeli considering receiving aid-in-dying in Switzerland.

Authors:  Daniel Sperling
Journal:  BMC Med Ethics       Date:  2022-04-30       Impact factor: 2.834

  4 in total

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