Literature DB >> 15135122

Transition of young people with respiratory diseases to adult health care.

David S Rosen1.   

Abstract

As many more young people with chronic health conditions survive well into adulthood, transition of affected young people from paediatric to adult health care is increasingly becoming the expected standard of care. Despite this, there is still little objective or long-term evidence to guide the development or deployment of developmentally appropriate transition processes or to define the precise manner in which the transfer of care should take place. Nevertheless, certain principles of transition have now received nearly universal endorsement. In this paper, the rationale for transition is discussed, practical strategies for transition are described, the existing evidence base supporting transition is reviewed and limitations in our knowledge are outlined. Ultimately, a carefully planned transition to adult health care should improve self-reliance, enhance autonomy and independence and support young people in attaining their maximum potential and meaningful adult lives.

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Year:  2004        PMID: 15135122     DOI: 10.1016/j.prrv.2004.01.008

Source DB:  PubMed          Journal:  Paediatr Respir Rev        ISSN: 1526-0542            Impact factor:   2.726


  9 in total

1.  Transition of young people with chronic conditions: a cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care.

Authors:  Christoph Rutishauser; Susan M Sawyer; Anne-Emmanuelle Ambresin
Journal:  Eur J Pediatr       Date:  2014-03-09       Impact factor: 3.183

2.  The Role of Pediatric Psychologists in the Transition of Youth to Adult Health Care: A Descriptive Qualitative Study of Their Practice and Recommendations.

Authors:  Marco Bonanno; David Ogez; Claude Julie Bourque; Caroline Laverdière; Serge Sultan
Journal:  J Clin Psychol Med Settings       Date:  2019-09

3.  Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents.

Authors:  Christoph Rutishauser; Christina Akré; Joan-Carles Surìs
Journal:  Eur J Pediatr       Date:  2010-12-22       Impact factor: 3.183

Review 4.  Developmentally appropriate healthcare for young people: a scoping study.

Authors:  Albert Farre; Victoria Wood; Tim Rapley; Jeremy R Parr; Debbie Reape; Janet E McDonagh
Journal:  Arch Dis Child       Date:  2014-09-26       Impact factor: 3.791

Review 5.  Late consequences of chronic pediatric illness.

Authors:  Susan Turkel; Maryland Pao
Journal:  Psychiatr Clin North Am       Date:  2007-12

6.  Transitioning the adolescent inflammatory bowel disease patient: guidelines for the adult and pediatric gastroenterologist.

Authors:  Yvette Leung; Melvin B Heyman; Uma Mahadevan
Journal:  Inflamm Bowel Dis       Date:  2010-12-16       Impact factor: 5.325

7.  The Longitudinal Relationship Between Satisfaction with Transitional Care and Social and Emotional Quality of Life Among Chronically Ill Adolescents.

Authors:  Jane M Cramm; Mathilde M H Strating; Henk M Sonneveld; Anna P Nieboer
Journal:  Appl Res Qual Life       Date:  2013-01-25

8.  Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease.

Authors:  Laurie N Fishman; Sonja I Ziniel; Max E Adrichem; Susan M Fernandes; Janis Arnold
Journal:  J Pediatr Gastroenterol Nutr       Date:  2014-08       Impact factor: 2.839

Review 9.  European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre.

Authors:  Steven Conway; Ian M Balfour-Lynn; Karleen De Rijcke; Pavel Drevinek; Juliet Foweraker; Trudy Havermans; Harry Heijerman; Louise Lannefors; Anders Lindblad; Milan Macek; Sue Madge; Maeve Moran; Lisa Morrison; Alison Morton; Jacquelien Noordhoek; Dorota Sands; Anneke Vertommen; Daniel Peckham
Journal:  J Cyst Fibros       Date:  2014-05       Impact factor: 5.482

  9 in total

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