Literature DB >> 15111476

Considerations and costs of disclosing study findings to research participants.

Conrad V Fernandez1, Chris Skedgel, Charles Weijer.   

Abstract

Entities:  

Keywords:  Biomedical and Behavioral Research

Mesh：

Year:  2004        PMID： 15111476      PMCID： PMC395816          DOI： 10.1503/cmaj.1031668

Source DB:  PubMed          Journal:  CMAJ        ISSN： 0820-3946            Impact factor:   8.262


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  17 in total

1.  Anticipated versus actual emotional reactions to disclosure of results of genetic tests for cancer susceptibility: findings from p53 and BRCA1 testing programs.

Authors:  M Dorval; A F Patenaude; K A Schneider; S A Kieffer; L DiGianni; K J Kalkbrenner; J I Bromberg; L A Basili; K Calzone; J Stopfer; B L Weber; J E Garber
Journal:  J Clin Oncol       Date:  2000-05       Impact factor: 44.544

2.  Protecting communities in research: current guidelines and limits of extrapolation.

Authors:  C Weijer; G Goldsand; E J Emanuel
Journal:  Nat Genet       Date:  1999-11       Impact factor: 38.330

Review 3.  The ethical analysis of risk.

Authors:  C Weijer
Journal:  J Law Med Ethics       Date:  2000       Impact factor: 1.718

4.  Informing clinical trial participants about study results.

Authors:  Ann H Partridge; Eric P Winer
Journal:  JAMA       Date:  2002-07-17       Impact factor: 56.272

5.  Do patients participating in clinical trials want to know study results?

Authors:  Ann H Partridge; Harold J Burstein; Rebecca S Gelman; P Kelly Marcom; Eric P Winer
Journal:  J Natl Cancer Inst       Date:  2003-03-19       Impact factor: 13.506

6.  Workers' response to risk notification.

Authors:  W L Boal; J Friedland; P A Schulte
Journal:  Am J Ind Med       Date:  1995-04       Impact factor: 2.214

7.  Perspective on the content of worker notifications.

Authors:  J F Acquavella; J J Collins
Journal:  Am J Ind Med       Date:  1993-01       Impact factor: 2.214

8.  Breast cancer screening in women previously treated for Hodgkin's disease: a prospective cohort study.

Authors:  Lisa Diller; Cheryl Medeiros Nancarrow; Kitt Shaffer; Ursula Matulonis; Peter Mauch; Donna Neuberg; Nancy J Tarbell; Heather Litman; Judy Garber
Journal:  J Clin Oncol       Date:  2002-04-15       Impact factor: 44.544

9.  Psychological costs and benefits of predictive testing for Huntington's disease.

Authors:  A M Codori; J Brandt
Journal:  Am J Med Genet       Date:  1994-09-15

10.  Breast cancer and other second neoplasms after childhood Hodgkin's disease.

Authors:  S Bhatia; L L Robison; O Oberlin; M Greenberg; G Bunin; F Fossati-Bellani; A T Meadows
Journal:  N Engl J Med       Date:  1996-03-21       Impact factor: 91.245
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  37 in total

Review 1.  Incidental findings found in "healthy" volunteers during imaging performed for research: current legal and ethical implications.

Authors:  T C Booth; A Jackson; J M Wardlaw; S A Taylor; A D Waldman
Journal:  Br J Radiol       Date:  2010-03-24       Impact factor: 3.039

2.  Informing research participants of research results: analysis of Canadian university based research ethics board policies.

Authors:  S D Macneil; C V Fernandez
Journal:  J Med Ethics       Date:  2006-01       Impact factor: 2.903

3.  Attitudes of research ethics board chairs towards disclosure of research results to participants: results of a national survey.

Authors:  S Danielle MacNeil; Conrad V Fernandez
Journal:  J Med Ethics       Date:  2007-09       Impact factor: 2.903

Review 4.  Detecting awareness after severe brain injury.

Authors:  Davinia Fernández-Espejo; Adrian M Owen
Journal:  Nat Rev Neurosci       Date:  2013-10-03       Impact factor: 34.870

5.  Utilizing Focus Groups with Potential Participants and Their Parents: An Approach to Inform Study Design in a Large Clinical Trial.

Authors:  Sandeep Kadimpati; Jennifer B McCormick; Yichen Chiu; Ashley B Parker; Aliya Z Iftikhar; Randall P Flick; David O Warner
Journal:  AJOB Empir Bioeth       Date:  2014-01-01

6.  Public perspectives on returning genetics and genomics research results.

Authors:  J O'Daniel; S B Haga
Journal:  Public Health Genomics       Date:  2011-05-07       Impact factor: 2.000

7.  Ethical, Legal, and Social Issues (ELSI) in Clinical Genetics Research.

Authors:  Daryl Pullman; Holly Etchegary
Journal:  Methods Mol Biol       Date:  2021

8.  One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants.

Authors:  Fiona Alice Miller; Robin Zoe Hayeems; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2012-02-15       Impact factor: 4.246

9.  Health research participants' preferences for receiving research results.

Authors:  Christopher R Long; M Kathryn Stewart; Thomas V Cunningham; T Scott Warmack; Pearl A McElfish
Journal:  Clin Trials       Date:  2016-08-24       Impact factor: 2.486

10.  Participants' uptake of clinical trial results: a randomised experiment.

Authors:  J Mancini; D Genre; F Dalenc; J-M Ferrero; P Kerbrat; A-L Martin; H Roché; F Maylevin; C Tarpin; P Viens; J Genève; C Julian-Reynier
Journal:  Br J Cancer       Date:  2010-03-02       Impact factor: 7.640
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