Literature DB >> 15053130

Instruments for assessing the burden of informal caregiving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and self-rated burden.

N Job A van Exel1, Wilma J M Scholte op Reimer, Werner B F Brouwer, Bernard van den Berg, Marc A Koopmanschap, Geertrudis A M van den Bos.   

Abstract

OBJECTIVE: To compare the feasibility, convergent and clinical validity of three commonly used burden scales: Caregiver Strain Index (CSI), Caregiver Reaction Assessment (CRA) and Sense of Competence Questionnaire (SCQ), with a self-developed single question on self-rated burden (SRB).
SUBJECTS: Stroke patients receiving support from an informal caregiver (n = 148) and their caregivers were followed up to six months after stroke. INTERVENTION: Feasibility was assessed with several measures of missing values. Convergent validity was assessed on the basis of the correlation patterns between the burden scales, and clinical validity through evaluation of expected associations between levels of burden and explanatory patients' and caregivers' characteristics.
RESULTS: Missing values were less often observed on CSI and SRB than SCQ and CRA. Significant correlation coefficients (p < 0.05) could be demonstrated between all burden scales, except for one subscale of CRA. Evidence for clinical validity was strongest for CSI and SRB, based on associations between higher burden scores and patients' disability, and patients' and caregivers' poor level of health-related quality of life (all p < 0.05).
CONCLUSIONS: A concise and simple measure would facilitate early detection of caregivers at risk in clinical practice and research. CSI and SRB are more feasible and at least as valid instruments for assessment of caregiver burden in stroke than the longer and more complex SCQ and CRA. SRB could be used for quick screening of caregivers at risk. CSI is indicated for further diagnosis of the burden of informal caregivers.

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Year:  2004        PMID: 15053130     DOI: 10.1191/0269215504cr723oa

Source DB:  PubMed          Journal:  Clin Rehabil        ISSN: 0269-2155            Impact factor:   3.477


  54 in total

1.  When Time is Not on Your Side: Patient Experiences with Waiting for Home Care and Admission to a Nursing or Residential Home.

Authors:  N Job A van Exel; Marion de Ruiter; Werner B F Brouwer
Journal:  Patient       Date:  2008-01-01       Impact factor: 3.883

2.  The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations.

Authors:  W B F Brouwer; N J A van Exel; B van Gorp; W K Redekop
Journal:  Qual Life Res       Date:  2006-08       Impact factor: 4.147

3.  How to include informal care in economic evaluations.

Authors:  Renske J Hoefman; Job van Exel; Werner Brouwer
Journal:  Pharmacoeconomics       Date:  2013-12       Impact factor: 4.981

4.  Measuring health and well-being effects in family caregivers of children with craniofacial malformations.

Authors:  Nalin Payakachat; J Mick Tilford; Werner Bf Brouwer; N Job van Exel; Scott D Grosse
Journal:  Qual Life Res       Date:  2011-02-24       Impact factor: 4.147

5.  Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS).

Authors:  J E Lutomski; N J A van Exel; G I J M Kempen; E P Moll van Charante; W P J den Elzen; A P D Jansen; P F M Krabbe; B Steunenberg; E W Steyerberg; M G M Olde Rikkert; R J F Melis
Journal:  Qual Life Res       Date:  2014-11-08       Impact factor: 4.147

6.  Measuring caregiver outcomes in palliative care: a construct validation study of two instruments for use in economic evaluations.

Authors:  Renske Hoefman; Hareth Al-Janabi; Nikki McCaffrey; David Currow; Julie Ratcliffe
Journal:  Qual Life Res       Date:  2014-11-08       Impact factor: 4.147

7.  Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers.

Authors:  Catherine Riffin; Peter H Van Ness; Jennifer L Wolff; Terri Fried
Journal:  J Am Geriatr Soc       Date:  2018-11-19       Impact factor: 5.562

8.  A comprehensive assessment of family caregivers of stroke survivors during inpatient rehabilitation.

Authors:  Mary Ellen Young; Barbara J Lutz; Kerry Rae Creasy; Kim J Cox; Crystal Martz
Journal:  Disabil Rehabil       Date:  2014-01-28       Impact factor: 3.033

9.  The heart of the matter: health status of aged care clients receiving home- and community-based care.

Authors:  Deborah Yarmo-Roberts; Rosanne Laura Freak-Poli; Brad Cooper; Tim Noonan; Just Stolewinder; Christopher M Reid
Journal:  J Aging Res       Date:  2010-07-12

10.  Caring for a child with autism spectrum disorder and parents' quality of life: application of the CarerQol.

Authors:  Renske Hoefman; Nalin Payakachat; Job van Exel; Karen Kuhlthau; Erica Kovacs; Jeffrey Pyne; J Mick Tilford
Journal:  J Autism Dev Disord       Date:  2014-08
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