Literature DB >> 14993570

Transition to adulthood: the important role of the pediatrician.

Donna Gore Olsen1, Nancy L Swigonski.   

Abstract

This article, written by a parent of 2 youths with special health care needs and a pediatrician, builds on the Medical Home framework to give concrete examples of what physicians and families can and should do to prepare families for transition(s). The article consists of 3 parts. The first part is an introduction giving an overview of the importance of transition. "Developing a Life (not Illness) Plan: Begin With the End in Mind," emphasizes that no matter how challenging the disability or compromising the chronic illness, we owe it to our children to take the risk of thinking about the future and beginning to help them to develop a life (not illness) plan. The third part, "With a Little Help from My Friends," looks at how linking families with other parents, young adults, and adults living with disabilities and serious chronic illness can be a source of information to both families and physicians as they plan for the future.

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Year:  2004        PMID: 14993570     DOI: 10.1542/peds.113.3.e159

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  5 in total

1.  Transition from a pediatric HIV intramural clinical research program to adolescent and adult community-based care services:assessing transition readiness.

Authors:  Lori S Wiener; Melissa Zobel; Haven Battles; Celia Ryder
Journal:  Soc Work Health Care       Date:  2007

Review 2.  Who will care for me next? Transitioning to adulthood with hydrocephalus.

Authors:  Tamara D Simon; Sara Lamb; Nancy A Murphy; Bonnie Hom; Marion L Walker; Edward B Clark
Journal:  Pediatrics       Date:  2009-10-19       Impact factor: 7.124

3.  Perceptions of parenting children with type 1 diabetes diagnosed in early childhood.

Authors:  Arlene Smaldone; Marilyn D Ritholz
Journal:  J Pediatr Health Care       Date:  2010-01-15       Impact factor: 1.812

4.  Parents' perception of self-advocacy of children with myositis: an anonymous online survey.

Authors:  James D Katz; Gulnara Mamyrova; Shilpi Agarwal; Olcay Y Jones; Harriet Bollar; Adam M Huber; Lisa G Rider; Patience H White
Journal:  Pediatr Rheumatol Online J       Date:  2011-06-07       Impact factor: 3.054

5.  Systematic review of study designs and methods in health transition research for young people with intellectual disabilities.

Authors:  Axel Kaehne; Joann Kiernan; James Ridley
Journal:  Heliyon       Date:  2019-11-19
  5 in total

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