OBJECTIVES: Hydrocephalus is a prototypical chronic condition that follows children into adulthood. The objectives of this study were to (1) review how the health care needs of young adults with hydrocephalus are not being met, (2) estimate the numbers of adults with childhood-onset hydrocephalus, (3) describe a novel program to provide care for young adults with hydrocephalus and other chronic pediatric conditions, and (4) propose national strategies to promote successful hydrocephalus transition care. RESULTS: Adults with hydrocephalus need continuous access to expert surgical and medical providers. Existing care models fail to meet this need. The number of young adults who have hydrocephalus, are aged 18 to 35 and need treatment in the United States is predicted to exceed 40000 annually within the next 2 decades. We are developing integrated teams of pediatric and adult medical and surgical specialists to provide continuous, coordinated, comprehensive care for individuals with hydrocephalus in a pediatric setting. This setting will train our future physician workforce on optimal transition care. Coordinated national efforts are also needed. CONCLUSIONS: Providers need to implement appropriate management and transition care for individuals with hydrocephalus. We must work at local and national levels to transform the care model, improve the quality of health care delivery, and improve outcomes for young adults with hydrocephalus.
OBJECTIVES:Hydrocephalus is a prototypical chronic condition that follows children into adulthood. The objectives of this study were to (1) review how the health care needs of young adults with hydrocephalus are not being met, (2) estimate the numbers of adults with childhood-onset hydrocephalus, (3) describe a novel program to provide care for young adults with hydrocephalus and other chronic pediatric conditions, and (4) propose national strategies to promote successful hydrocephalus transition care. RESULTS: Adults with hydrocephalus need continuous access to expert surgical and medical providers. Existing care models fail to meet this need. The number of young adults who have hydrocephalus, are aged 18 to 35 and need treatment in the United States is predicted to exceed 40000 annually within the next 2 decades. We are developing integrated teams of pediatric and adult medical and surgical specialists to provide continuous, coordinated, comprehensive care for individuals with hydrocephalus in a pediatric setting. This setting will train our future physician workforce on optimal transition care. Coordinated national efforts are also needed. CONCLUSIONS: Providers need to implement appropriate management and transition care for individuals with hydrocephalus. We must work at local and national levels to transform the care model, improve the quality of health care delivery, and improve outcomes for young adults with hydrocephalus.
Authors: Suzanne Elizabeth McLaughlin; Marie Diener-West; Alka Indurkhya; Haya Rubin; Rebekah Heckmann; Michael Patrick Boyle Journal: Pediatrics Date: 2008-05 Impact factor: 7.124
Authors: Michael A Williams; James P McAllister; Marion L Walker; Dory A Kranz; Marvin Bergsneider; Marc R Del Bigio; Laurel Fleming; David M Frim; Katrina Gwinn; John R W Kestle; Mark G Luciano; Joseph R Madsen; Mary Lou Oster-Granite; Giovanna Spinella Journal: J Neurosurg Date: 2007-11 Impact factor: 5.115
Authors: Tamara D Simon; Jay Riva-Cambrin; Raj Srivastava; Susan L Bratton; J Michael Dean; John R W Kestle Journal: J Neurosurg Pediatr Date: 2008-02 Impact factor: 2.375
Authors: Richard W Grant; Jonathan S Wald; Jeffrey L Schnipper; Tejal K Gandhi; Eric G Poon; E John Orav; Deborah H Williams; Lynn A Volk; Blackford Middleton Journal: Arch Intern Med Date: 2008-09-08
Authors: Denise M Goodman; Matthew Hall; Amanda Levin; R Scott Watson; Roberta G Williams; Samir S Shah; Anthony D Slonim Journal: Pediatrics Date: 2011-06-27 Impact factor: 7.124
Authors: Eyal Cohen; Dennis Z Kuo; Rishi Agrawal; Jay G Berry; Santi K M Bhagat; Tamara D Simon; Rajendu Srivastava Journal: Pediatrics Date: 2011-02-21 Impact factor: 7.124
Authors: M Preuss; A Kutscher; R Wachowiak; A Merkenschlager; M K Bernhard; M Reiss-Zimmermann; J Meixensberger; U Nestler Journal: Childs Nerv Syst Date: 2014-10-17 Impact factor: 1.475
Authors: James D Katz; Gulnara Mamyrova; Shilpi Agarwal; Olcay Y Jones; Harriet Bollar; Adam M Huber; Lisa G Rider; Patience H White Journal: Pediatr Rheumatol Online J Date: 2011-06-07 Impact factor: 3.054