Literature DB >> 14717248

Children's understanding of their research rights before and after debriefing: informed assent, confidentiality, and stopping participation.

Jennifer C Hurley1, Marion K Underwood.   

Abstract

This study explored children's understanding of their research rights in the context of an investigation of how children cope with peer provocation. Participants were 178 children (97 girls and 81 boys) who had finished the second, fourth, and sixth grades (average ages: 8, 10, and 12, respectively). After children agreed to take part in research on "how kids get along together," as well as after debriefing, their perceptions of free assent, their understanding of what they would be doing and why, their belief in voluntary participation and freedom to withdraw, and their comprehension of confidentiality were assessed. The vast majority of participants gave assent freely and reported no undue pressure from their families or the experimenters to participate. Older children knew before participating in the research what their participation would involve, comprehended confidentiality, and understood the study's purpose after their participation, but second graders were less likely to understand these issues than fourth and sixth graders were. Following debriefing, children's understanding of their research rights was largely unchanged; most children still had difficulty describing the research goals.

Entities:  

Mesh:

Year:  2002        PMID: 14717248     DOI: 10.1111/1467-8624.00396

Source DB:  PubMed          Journal:  Child Dev        ISSN: 0009-3920


  8 in total

1.  Reactive aggression in boys with disruptive behavior disorders: behavior, physiology, and affect.

Authors:  Daniel A Waschbusch; William E Pelham; J Richard Jennings; Andrew R Greiner; Ralph E Tarter; Howard B Moss
Journal:  J Abnorm Child Psychol       Date:  2002-12

2.  Older Adolescents' Understanding of Participant Rights in the BlackBerry Project, a Longitudinal Ambulatory Assessment Study.

Authors:  Diana J Meter; Samuel E Ehrenreich; Christopher Carker; Elinor Flynn; Marion K Underwood
Journal:  J Res Adolesc       Date:  2019-09

3.  A qualitative study of women's views on medical confidentiality.

Authors:  G Jenkins; J F Merz; P Sankar
Journal:  J Med Ethics       Date:  2005-09       Impact factor: 2.903

4.  Ethical issues in health research in children.

Authors: 
Journal:  Paediatr Child Health       Date:  2008-10       Impact factor: 2.253

Review 5.  Parental permission and child assent in research on children.

Authors:  Michelle Roth-Cline; Robert M Nelson
Journal:  Yale J Biol Med       Date:  2013-09-20

Review 6.  Ethical considerations in research involving children.

Authors:  Theresa A O'Lonergan; Henry Milgrom
Journal:  Curr Allergy Asthma Rep       Date:  2005-11       Impact factor: 4.919

7.  Moral structuring of children during the process of obtaining informed consent in clinical and research settings.

Authors:  Anderson Díaz-Pérez; Elkin Navarro Quiroz; Dilia Esther Aparicio Marenco
Journal:  BMC Med Ethics       Date:  2020-11-25       Impact factor: 2.652

8.  A pilot assessment of parental practices and attitudes regarding risk disclosure and clinical research involving children in Huntington disease families.

Authors:  Leon S Dure; Kimberly Quaid; T Mark Beasley
Journal:  Genet Med       Date:  2008-11       Impact factor: 8.822

  8 in total

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