Literature DB >> 19436527

Ethical issues in health research in children.

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Abstract

Health research is a moral duty because it is the foundation for evidence-based care by all health care practitioners. Specific Canadian policies and regulations govern the conduct of human research; ethics review of research is required before research is conducted. Research in children poses important challenges with regard to informed consent and assent, vulnerability and potential conflicts of interest (COI). Paediatric health researchers should advocate for research participation by children, while being attentive to mitigating risks.

Entities:  

Year:  2008        PMID： 19436527      PMCID： PMC2606083          DOI： 10.1093/pch/13.8.707

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN： 1205-7088            Impact factor:   2.253


  50 in total

1.  Ethical issues associated with conducting genetic family studies of complex disease.

Authors:  Nedal H Arar; Helen Hazuda; Rebecca Steinbach; Mazen Y Arar; Hanna E Abboud
Journal:  Ann Epidemiol       Date:  2005-10       Impact factor: 3.797

2.  American Society Of Clinical Oncology: revised conflict of interest policy.

Authors: 
Journal:  J Clin Oncol       Date:  2005-12-19       Impact factor: 44.544

3.  Providing research participants with findings from completed cancer-related clinical trials: not quite as simple as it sounds.

Authors:  Maurie Markman
Journal:  Cancer       Date:  2006-04-01       Impact factor: 6.860

4.  Assent in pediatric research.

Authors:  Alexander A Kon
Journal:  Pediatrics       Date:  2006-05       Impact factor: 7.124

Review 5.  Assent in paediatric research: theoretical and practical considerations.

Authors:  D S Wendler
Journal:  J Med Ethics       Date:  2006-04       Impact factor: 2.903

Review 6.  Informed consent for emergency surgery in infants and children.

Authors:  Benedict C Nwomeh; Andrea L Waller; Donna A Caniano; Kelly J Kelleher
Journal:  J Pediatr Surg       Date:  2005-08       Impact factor: 2.545

7.  Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

Authors:  Ebony B Bookman; Aleisha A Langehorne; John H Eckfeldt; Kathleen C Glass; Gail P Jarvik; Michael Klag; Greg Koski; Arno Motulsky; Benjamin Wilfond; Teri A Manolio; Richard R Fabsitz; Russell V Luepker
Journal:  Am J Med Genet A       Date:  2006-05-15       Impact factor: 2.802

8.  Receiving a summary of the results of a trial: qualitative study of participants' views.

Authors:  Mary Dixon-Woods; Clare Jackson; Kate C Windridge; Sara Kenyon
Journal:  BMJ       Date:  2006-01-09

9.  How do institutional review boards apply the federal risk and benefit standards for pediatric research?

Authors:  Seema Shah; Amy Whittle; Benjamin Wilfond; Gary Gensler; David Wendler
Journal:  JAMA       Date:  2004-01-28       Impact factor: 56.272

10.  Communication of randomization in childhood leukemia trials.

Authors:  Eric Kodish; Michelle Eder; Robert B Noll; Kathleen Ruccione; Beverly Lange; Anne Angiolillo; Rebecca Pentz; Stephen Zyzanski; Laura A Siminoff; Dennis Drotar
Journal:  JAMA       Date:  2004-01-28       Impact factor: 56.272
View more
  10 in total

Review 1.  The intensive care medicine clinical research agenda in paediatrics.

Authors:  Mark J Peters; Andrew Argent; Marino Festa; Stéphane Leteurtre; Jefferson Piva; Ann Thompson; Douglas Willson; Pierre Tissières; Marisa Tucci; Jacques Lacroix
Journal:  Intensive Care Med       Date:  2017-03-17       Impact factor: 17.440

2.  Health research involving First Nations, Inuit and Métis children and their communities.

Authors:  Jill M Starkes; Lola T Baydala
Journal:  Paediatr Child Health       Date:  2014-02       Impact factor: 2.253

3.  Paediatric patient family engagement with clinical research at a tertiary care paediatric hospital.

Authors:  Carson Gill; Mark J Ansermino; Shubhayan Sanatani; Kishore Mulpuri; Quynh Doan
Journal:  Paediatr Child Health       Date:  2014-12       Impact factor: 2.253

4.  Ethical participation of children and youth in medical education.

Authors:  Ri Hilliard; Cv Fernandez; E Tsai
Journal:  Paediatr Child Health       Date:  2011-04       Impact factor: 2.253

Review 5.  Ethics review of pediatric multi-center drug trials.

Authors:  Allison C Needham; Mufiza Z Kapadia; Martin Offringa
Journal:  Paediatr Drugs       Date:  2015-02       Impact factor: 3.022

6.  Consent and recruitment: the reporting of paediatric trials published in 2012.

Authors:  Allison Gates; Patrina Caldwell; Sarah Curtis; Leonila Dans; Ricardo M Fernandes; Lisa Hartling; Lauren E Kelly; Katrina Williams; Kerry Woolfall; Michele P Dyson
Journal:  BMJ Paediatr Open       Date:  2018-11-26

7.  Analysis of non-respondent pregnant women who were registered in the Japan Environment and Children's Study: a longitudinal cohort study.

Authors:  Mika Kigawa; Akiko Tsuchida; Kayoko Miura; Mika Ito; Tomomi Tanaka; Kei Hamazaki; Yuichi Adachi; Shigeru Saito; Hideki Origasa; Hidekuni Inadera
Journal:  BMJ Open       Date:  2019-06-27       Impact factor: 2.692

Review 8.  Inclusion of children with disabilities in qualitative health research: A scoping review.

Authors:  Janet Njelesani; Vongai Mlambo; Tsedenia Denekew; Jean Hunleth
Journal:  PLoS One       Date:  2022-09-01       Impact factor: 3.752

9.  The Potential Harm of Cytomegalovirus Infection in Immunocompetent Critically Ill Children.

Authors:  Raidan Alyazidi; Srinivas Murthy; Jennifer A Slyker; Soren Gantt
Journal:  Front Pediatr       Date:  2018-04-10       Impact factor: 3.418

Review 10.  Trends and gaps in precision health research: a scoping review.

Authors:  John Noel Viana; Sarah Edney; Shakuntla Gondalia; Chelsea Mauch; Hamza Sellak; Nathan O'Callaghan; Jillian C Ryan
Journal:  BMJ Open       Date:  2021-10-25       Impact factor: 2.692
  10 in total

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