Literature DB >> 14626550

The use of medical records in research: what do patients want?

Nancy E Kass1, Marvin R Natowicz, Sara Chandros Hull, Ruth R Faden, Laura Plantinga, Lawrence O Gostin, Julia Slutsman.   

Abstract

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach

Mesh：

Year:  2003        PMID： 14626550      PMCID： PMC4816216          DOI： 10.1111/j.1748-720x.2003.tb00105.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN： 1073-1105            Impact factor:   1.718


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  10 in total

1.  Using patient-identifiable data for observational research and audit.

Authors:  R Al-Shahi; C Warlow
Journal:  BMJ       Date:  2000-10-28

2.  Risk of uterine rupture during labor among women with a prior cesarean delivery.

Authors:  M Lydon-Rochelle; V L Holt; T R Easterling; D P Martin
Journal:  N Engl J Med       Date:  2001-07-05       Impact factor: 91.245

3.  Health services research: public benefits, personal privacy, and proprietary interests.

Authors:  L O Gostin; J Hadley
Journal:  Ann Intern Med       Date:  1998-11-15       Impact factor: 25.391

4.  The threat to medical-records research.

Authors:  L J Melton
Journal:  N Engl J Med       Date:  1997-11-13       Impact factor: 91.245

5.  National health information privacy: regulations under the Health Insurance Portability and Accountability Act.

Authors:  L O Gostin
Journal:  JAMA       Date:  2001-06-20       Impact factor: 56.272

6.  Thromboembolism and oral contraceptives: an epidemiologic case-control study.

Authors:  P E Sartwell; A T Masi; F G Arthes; G R Greene; H E Smith
Journal:  Am J Epidemiol       Date:  1969-11       Impact factor: 4.897

7.  Use of personal medical records for research purposes.

Authors:  N Wald; M Law; T Meade; G Miller; E Alberman; J Dickinson
Journal:  BMJ       Date:  1994-11-26

8.  Researchers' access to patient records: an analysis of the ethical problems.

Authors:  P S Appelbaum; L H Roth; T Detre
Journal:  Clin Res       Date:  1984-10

9.  Quality of medical care delivered to Medicare beneficiaries: A profile at state and national levels.

Authors:  S F Jencks; T Cuerdon; D R Burwen; B Fleming; P M Houck; A E Kussmaul; D S Nilasena; D L Ordin; D R Arday
Journal:  JAMA       Date:  2000-10-04       Impact factor: 56.272

10.  The impact of requiring patient authorization for use of data in medical records research.

Authors:  B P Yawn; R A Yawn; G R Geier; Z Xia; S J Jacobsen
Journal:  J Fam Pract       Date:  1998-11       Impact factor: 0.493
  10 in total
  34 in total

1.  Generating a taxonomy of regulatory responses to emerging issues in biomedicine.

Authors:  Wendy Lipworth
Journal:  J Bioeth Inq       Date:  2005       Impact factor: 1.352

2.  Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?

Authors:  Donald J Willison; Lisa Schwartz; Julia Abelson; Cathy Charles; Marilyn Swinton; David Northrup; Lehana Thabane
Journal:  J Am Med Inform Assoc       Date:  2007-08-21       Impact factor: 4.497

3.  Self-report versus medical record - perinatal factors in a study of infant leukaemia: a study from the Children's Oncology Group.

Authors:  Anne M Jurek; Sander Greenland; Logan G Spector; Michelle A Roesler; Leslie L Robison; Julie A Ross
Journal:  Paediatr Perinat Epidemiol       Date:  2011-08-10       Impact factor: 3.980

4.  Patient preferences toward an interactive e-consent application for research using electronic health records.

Authors:  Christopher A Harle; Elizabeth H Golembiewski; Kiarash P Rahmanian; Janice L Krieger; Dorothy Hagmajer; Arch G Mainous; Ray E Moseley
Journal:  J Am Med Inform Assoc       Date:  2018-03-01       Impact factor: 4.497

5.  Perspectives of Patients With Cancer on the Ethics of Rapid-Learning Health Systems.

Authors:  Reshma Jagsi; Kent A Griffith; Aaron Sabolch; Rochelle Jones; Rebecca Spence; Raymond De Vries; David Grande; Angela R Bradbury
Journal:  J Clin Oncol       Date:  2017-05-24       Impact factor: 44.544

6.  Privacy and confidentiality in pragmatic clinical trials.

Authors:  Deven McGraw; Sarah M Greene; Caroline S Miner; Karen L Staman; Mary Jane Welch; Alan Rubel
Journal:  Clin Trials       Date:  2015-09-15       Impact factor: 2.486

7.  Saudi views on consenting for research on medical records and leftover tissue samples.

Authors:  Mohammad M Al-Qadire; Muhammad M Hammami; Hunida M Abdulhameed; Eman A Al Gaai
Journal:  BMC Med Ethics       Date:  2010-10-18       Impact factor: 2.652

8.  Legal and ethical values in the resolution of research-related disputes: how can IRBS respond to participant complaints?

Authors:  Kristen Underhill
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

9.  Public opinion about the importance of privacy in biobank research.

Authors:  David J Kaufman; Juli Murphy-Bollinger; Joan Scott; Kathy L Hudson
Journal:  Am J Hum Genet       Date:  2009-10-29       Impact factor: 11.025

10.  Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?

Authors:  Donald J Willison; Valerie Steeves; Cathy Charles; Lisa Schwartz; Jennifer Ranford; Gina Agarwal; Ji Cheng; Lehana Thabane
Journal:  BMC Med Ethics       Date:  2009-07-24       Impact factor: 2.652
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